Advocacy and Support Groups

Elderly Bench

Patient advocacy groups help patients, their families, and their caregivers navigate the cancer landscape. These groups work to ensure cancer patients receive appropriate and timely care, education, and financial assistance, when needed. Below, please find links to advocacy organizations, organized by their mission.

Click on the links below for a menu of Advocacy Organizations

General Cancer Information/Support

Alliance of Dedicated Cancer Centers (ADCC)

ADCC is comprised of 11 nationally recognized comprehensive or clinical cancer centers. The ADCC member cancer centers play a pivotal role in the National Cancer Program, which was enacted by Congress in 1971 to improve the detection, prevention, diagnosis, and treatment of cancer. The ADCC hospitals are singularly dedicated to deepening the understanding of the causes and cures for cancer; developing new treatments for cancer; and disseminating this knowledge to the provider community at large. The Centers' state-of-the-art therapies and research activities offer the greatest possibility for the successful treatment of cancer patients. Much of the recent progress in understanding cancer's biology and effective treatment is directly attributable to the work of the Centers.

American Association for Cancer Research (AACR)
The AACR is the oldest and largest scientific organization in the world focused on every aspect of high-quality, innovative cancer research. The mission of the AACR is to prevent and cure cancer through research, education, communication, and collaboration. 215.440.9300 or toll free 866.423.3965

American Cancer Society (ACS)
An extensive network of information resources and organizations fighting cancer by providing information, education, support and research funding. 800.ACS.2345 (800.227.2345)

American Society of Clinical Oncology (ASCO)
A non-profit organization, ASCO supports cancer research, especially patient-oriented clinical research. Membership is composed of clinical oncologists from all oncology disciplines and sub-specialties. Patient information: 571.483.1780 or 888.651.3038

Association of Cancer Online Resources (ACOR)
An internet-based public charity dedicated to improve the quality of care provided to patients with cancer and the quality of life of patients, survivors and their caregivers. 212.226.5525

Association of Community Cancer Centers (ACCC)
ACCC helps oncology professionals adapt to the complex challenges of program management, reimbursement restraints, hospital consolidation and mergers, and legislation and regulations that threaten to compromise the delivery of quality cancer care. ACCC works closely with members of Congress, government agencies, and other cancer care advocacy organizations to help assure patient access to quality cancer care. 301.984.9496

Association of Oncology Social Work (AOSW)
AOSW is a non-profit organization dedicated to the enhancement of psychosocial services to people with cancer and their families. AOSW was created in 1984 by social workers interested in oncology and by existing national cancer organizations. AOSW has over 1000 current members who embrace the AOSW Mission “to advance excellence in the psychosocial care of persons with cancer, their families, and caregivers through networking, education, advocacy, research and resource development.”  (215) 599-6093

Bone and Cancer Foundation
A resource for patients and health professionals concerned with the care and treatment of cancer involving bone. They provide information for cancer patients and family members on the causes and treatment of cancer involving bone. Toll free, 888.862.0999

Breathing Room Foundation (215.277.1006)
Breathing Room Foundation is dedicated to providing care and support to local families affected by cancer. We recognize that a cancer diagnosis affects every aspect of a family’s life; emotional, physical, spiritual and financial. Breathing Room Foundation strives to provide a family with whatever it is that will allow them a bit of "breathing room" from their daily struggle against cancer. It is our hope that this will allow them to concentrate all of their efforts towards regaining their physical health.

CancerCare
A non-profit, voluntary health agency devoted to education, research, and patient services relating to cancer patients and their families. The organization's programs include individual and group counseling for patients and their families, bereavement services, financial assistance, and education programs. 800.813.HOPE (4673)

Cancer Experience Registry
The Cancer Experience Registry is community of people touched by cancer. A primary focus is on collecting, analysing, and sharing information about the cancer experience, including the social and emotional needs of the patient and their family throughout the cancer journey.

Cancer Hope Network
Provides free, confidential, one-on-one support to people with cancer and their families. The program is available to all cancer patients and their loved ones from anywhere in the United States at no cost.  800-552-4366

Cancer Insurance Checklist
The Cancer Insurance Checklist is designed to help you when shopping for insurance on your state’s Health Insurance Marketplace/Exchange if you have cancer, a history of cancer, or are at risk for cancer.

Cancer Insurance Checklist: Guía de Cobertura Médica para Personas con Cáncer
Si padece cáncer, tiene antecedentes de cáncer o se encuentra en riesgo de padecer cáncer, la Guía de cobertura médica para personas con cáncer puede asistirle con la compra de un seguro en el mercado de seguros médicos de su estado.

Cancer.net
The patient information website of the American Society of Clinical Oncology (ASCO) is designed to help patients and families make informed health care decisions. The site provides information on more than 120 types of cancer and cancer-related syndromes, clinical trials, coping, side effects, a "Find an Oncologist" database, message boards, patient support organizations, and more. (English and Spanish) Patient Helpline: 571-483-1780 or 888-651-3038; for printed materials: 888-273-3508 or 703-519-1430

Cancer Support Community
Uniting The Wellness Community and Gilda's Club Worldwide, the Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer. 888.793.9355

Cancersymptoms.org
This website is sponsored by the Oncology Nursing Society (ONS). It is designed for patients and caregivers to provide information on learning about and managing each of ten cancer treatment-related symptoms that patients undergoing treatment for a cancer diagnosis commonly experience: anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal disturbances, neutropenia, pain, peripheral neuropathy, and sexual dysfunction.

Caring4Cancer
This web-based resource serves as a complete source of knowledge and support for people with cancer, empowering them with the expertise, strength and hope they need to live their lives to the fullest. Caring4Cancer combines a virtual encyclopedia of cancer information with a collection of powerful tools (including videos, message boards, and e-newsletters) that help patients take an active role in managing their disease.

CURE
Cancer Updates, Research & Education is a unique quarterly magazine bridging the knowledge gap between cancer patients and caregivers. CURE demystifies the science and medicine of cancer and gives readers links to important resources on the web and in the medical community. CURE provides readers the tools they need to take action, such as participating in clinical trials of new drugs that could mean the difference between life and death. 214.367.3500; Toll Free: 800.210.CURE (2873)

LIVESTRONG
LIVESTRONG provides free, confidential, one-on-one support to anyone affected by cancer, including those who have been diagnosed with cancer, loved ones, friends, health care professionals and caregivers. For assistance, call toll-free 855.220.7777, go online to www.livestrong.org, or visit the LIVESTRONG Cancer Navigation Center in Austin, TX.

The Marjorie E. Korff PACT Program
The PACT (parenting at a challenging time) program is a unique parenting program developed at the Massachusetts General Hospital Cancer Center to address the common challenges and needs of parents with cancer. The PACT website provides information for parents with cancer and their spouses or co-parents on communicating with their children and other important topics. For more information, e-mail moreinfo@mghpact.org 617-724-7272

National Cancer Institute (NCI)
Conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer. It also includes information on rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. 800.4.CANCER (800.422.6237)

National Center for Complementary and Alternative Medicine
One of the 27 institutes and centers that make up the National Institutes of Health (NIH). It is dedicated to exploring complementary and alternative healing practices in the context of rigorous science, training complementary and alternative medicine (CAM) researchers, and disseminating authoritative information to the public and professionals. United States: 888.644.6226.

National Coalition for Cancer Survivorship (NCCS)
A non-profit national advocacy organization, NCCS is a nationwide network of independent organizations and individuals working in the areas of cancer support, education, and advocacy. 877.NCCS.YES (877.622.7937)

National Hospice and Palliative Care Organization (NHPCO)
NHPCO is the largest non-profit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end-of-life care and expanding access to hospice care with the goal of profoundly enhancing the quality of life for people dying in America and their loved ones. (Spanish/English) Helpline: 800.658.8898

National Lymphedema Network (NLN)
An internationally recognized non-profit organization providing education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. The NLN also supports research into the causes of and possible alternative treatments for lymphedema. Hotline: 800.541.3259

National Organization for Rare Diseases (NORD)
A non-profit voluntary health organization dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Toll Free: 800.999.NORD

National Society of Genetic Counselors
An organization which promotes the genetic counseling profession as a recognized and integral part of health care delivery, education, research and public policy. Genetic Counselors can be searched by State, City, Counselor's Name, Institution or Areas of Practice or Specialization. Cancer genetic counselors are involved with individuals who have cancer or a family history of cancer. 312-321-6834 or nsgc@nsgc.org

Oncology Nursing Society
The Oncology Nursing Society (ONS) is a professional organization of over 35,000 registered nurses and other healthcare providers dedicated to excellence in patient care, education, research, and administration in oncology nursing. 1-866-257-4667 or 412-859-6100

Patient Advocate Foundation
The Patient Advocate Foundation is a national non-profit organization that serves as an active liaison between patients and their insurers, employers and/or creditors to resolve insurance, job discrimination, and/or debt crisis matters related to their diagnosis. It seeks to safeguard patients through effective mediation, assuring access to care, maintenance of employment, and preservation of financial stability. 800.532.5274

Patient Access Network (PAN) Foundation (866.316.7263)
PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic, and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000 patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.

Prevent Cancer Foundation
A national, non-profit health foundation whose mission is the prevention and early detection of cancer through scientific research, education and community outreach. The Foundation focuses its energies and resources on those cancers—including lung, breast, prostate, colorectal, cervical, skin, oral and testicular—that can be prevented through lifestyle changes or detection and treatment in their early stages. 800.227.2732

The Cancer Project
The Cancer Project is a non-profit organization advancing cancer prevention and survival through nutrition education and research. 202.686.2210

Blood and Marrow Transplant

Blood and Marrow Transplant Information Network
A non-profit organization that provides publications and support services to bone marrow, peripheral bloodstem cell, and cord blood transplant patients and survivors. All literature is written in lay language and reviewed for accuracy by a team of medical experts from transplant centers throughout the United States and Canada. 888.597.7674

National Marrow Donor Program
A non-profit organization which facilitates unrelated donor stem cell transplants for patients of all racial and socioeconomic backgrounds with life-threatening blood diseases who do not have matching donors in their families. Provides advice, support, and access to resources and information throughout the search process, coordinates research studies, and provides one-on-one advocacy for patients and medical professionals. Donors and other inquiries: 800.MARROW.2 (800.627.7692); Patients and families: 888.999.6743; International: 612.627.8140

Disease-Specific

Bladder Cancer

Bladder Cancer Advocacy Network (BCAN): The first national advocacy organization dedicated to improving public awareness of bladder cancer, and increasing research directed towards the diagnosis, treatment and cure of the disease. Founded in May 2005, BCAN is a cooperative effort among bladder cancer survivors, their families, caregivers, and the medical community. One of their goals is that no one should ever have to feel alone when dealing with bladder cancer. 301.215.9099 or 888.901.BCAN (2226)

Urology Care Foundation
The Urology Care Foundation is a leading advocate for patients, health care professionals and caregivers, providing accurate and up-to-date information about urologic health issues. 1-800-828-7866.

Brain Tumor

American Brain Tumor Association: A non-profit organization dedicated to eliminating brain tumors by funding and encouraging research. Provides educational materials and information to patients, their families, and medical professionals. 800.886.ABTA (2282)

National Brain Tumor Society: A non-profit organization that provides leadership within the brain tumor community and strives to improve the quality of life for those affected by brain tumors. NBTS provides educational materials and information to patients, their families, and medical professionals. 617.924.9997

Breast Cancer

After Breast Cancer Diagnosis (ABCD): ABCD provides free, personalized information and one-to-one support to people affected by breast cancer – patients, families and friends. ABCD complements the work of healthcare providers by providing the following breast cancer support services: One-to-One mentoring breast cancer support service, a Breast Cancer Helpline and Resource List, and MORE: Mentor Outreach and Education program. Breast Cancer Helpline: 800.977.4121

Breast Cancer Research Foundation (BCRF)
An independent 501(c)(3) not-for-profit organization whose mission is to achieve prevention and a cure for breast cancer by providing critical funding for innovative clinical and genetic research at leading medical centers worldwide, and increasing public awareness about good breast health. 646.497.2600 or 866.FIND-A-CURE (866.346.3228)

Breastcancer.org
A non-profit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer. They help women and their loved ones make sense of the complex medical and personal information about breast cancer, so they can make the best decisions for their lives.

Facing Our Risk of Cancer Empowered (FORCE)
A non-profit organization that provides resources and information for women with increased risk of breast and ovarian cancers, due to a family history and/or genetic status. FORCE is also a resource for members of families in which a BRCA mutation may be present. 866.288.RISK (7475).

Inflammatory Breast Cancer Research Foundation
A web-based organization dedicated to researching the cause of Inflammatory Breast Cancer (IBC), an advanced and accelerated form of breast cancer usually not detected by mammograms or ultrasounds. They provide e-mail discussion lists, an e-newsletter, volunteers who answer questions submitted to the website, articles, research information, videos, presentations, and inspirational stories on IBC.

Living Beyond Breast Cancer (LBBC)
LBBC assists women at all stages of breast cancer diagnosis, treatment and recovery. Their mission includes offering specialized programs and services for the newly diagnosed, young women, women with advanced breast cancer, women at high risk for developing the disease, and African-American and Latina women. Programs for caregivers and healthcare professionals are also available to help them better meet the needs of women affected by breast cancer. 484.708.1550 or 610.645.4567; Survivor’s helpline: 888.753.LBBC (5222)

National Breast Cancer Coalition
A grassroots advocacy organization consisting of more than 500 organizations and over 60,000 individuals from across the United States, dedicated to fighting breast cancer. Informs, trains, and directs patients and supporters in knowledgeable and effective advocacy efforts. 800.622.2838 or 202.296.7477

Sisters Network, Inc.
A non-profit African-American breast cancer survivors’ organization. It promotes the importance of breast health through personal empowerment, support, breast education programs, resources, information, and research through its strong affiliate chapter base. 713.781.0255 or 866.781.1808

Susan G. Komen Breast Cancer Foundation
The nation's largest private foundation dedicated solely to breast cancer research, education, screening, and treatment. 877.GO KOMEN (877.465.6636)

Young Survival Coalition (YSC)
The only international, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. The YSC also serves as a point of contact for young women living with breast cancer. 646.257.3000 or 877. 972.1011

Carcinoid Cancer/Neuroendocrine Tumors

Carcinoid Cancer Foundation, Inc.
The mission of this foundation is to conduct, encourage and support research and to educate the general public and health care professionals regarding carcinoid and related neuroendocrine tumors. 888.722.3132

Colon Cancers

Colon Cancer Alliance (CCA)
A non-profit organization of colon and rectal cancer survivors, their families, caregivers, people genetically predisposed to the disease, and the medical community dedicated to patient support, advocacy, and education. Helpline: 877.422.2030

Fight Colorectal Cancer
A national colorectal cancer advocacy organization that offers support for patients, family members and their caregivers. It  also serves as a resource for colorectal cancer advocates, policymakers, medical professionals, and healthcare providers. Web 877.427.2111

Gynecologic Cancers

Facing Our Risk of Cancer Empowered (FORCE)
A non-profit organization that provides resources and information for women with increased risk of breast and ovarian cancers, due to a family history and/or genetic status. FORCE is also a resource for members of families in which a BRCA mutation may be present. 866.824.RISK

National Cervical Cancer Coalition
An advocacy group dedicated to educating the public about cervical cancer prevention and outreach, new screening and treatment options, cervical cancer screening and follow-up programs, HPV, the limitations of the Pap smear AND its overwhelming success as a screening tool for clinicians. 800.685.5531

National Ovarian Cancer Coalition
Grassroots advocacy organization formed to raise awareness about ovarian cancer and to promote education about this disease. 888.OVARIAN (888.682.7426)

Ovarian Cancer National Alliance
A patient-led organization uniting ovarian cancer activists, women's health advocates and health care professionals in the effort to increase public and professional understanding of ovarian cancer and to advocate for more effective diagnostics, treatments and a cure. 202.331.1332 or Toll Free: 866.399.6262

Patient Access Network (PAN) Foundation (866.316.7263)
PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic, and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000 patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.

Foundation for Women’s Cancer Web Site
This is a not for profit organization founded by the by the Society of Gynecologic Oncology, It is dedicated to funding research and training, and ensuring education and public awareness of gynecologic cancer prevention, early detection and optimal treatment.  Their website provides patient information and resources for gynecologic cancers. Hotline: 800.444.4441; 312.578.1439

Head and Neck Cancer

Head and Neck Cancer Alliance (HNCA)
Formerly the Yul Brynner Head and Neck Cancer Foundation, HNCA expands on existing strengths to enhance the overall effort in prevention, detection, treatment, and rehabilitation. HNCA seeks to provide support to head and neck cancer patients, support ongoing research in head and neck oncology, and educate children and adults in the disease process, treatment and prevention of head and neck cancer. 866.792.HNCA (4622)

Oral Cancer Foundation
A non-profit advocacy organization that seeks to increase public and professional awareness of oral cancers. They promote lifestyle changes, early detection initiatives, education, improved treatment modalities, and provide a survivor/patient forum for the support of those patients and their families currently fighting this disease. 949.646.8000

Support for People with Oral and Head and Neck Cancer (SPOHNC)
SPOHNC is a patient-directed, self-help organization dedicated to meeting the needs of patients with oral and head and neck cancers. Offers information, support, and encouragement. 800.377.0928

Kidney Cancer

Kidney Cancer Association (KCA)
KCA is a national non-profit membership organization made up of patients, family members, physicians, researchers, and other health professionals which offers a broad range of services, including advocacy on behalf of patients, support of both public and private research, information, and education. 800.850.9132

Urology Care Foundation
The Urology Care Foundation is a leading advocate for patients, health care professionals and caregivers, providing accurate and up-to-date information about urologic health issues. 1-800-828-7866. 

Leukemia and Lymphoma

Leukemia and Lymphoma Society
Provides information, support, and guidance to persons living with leukemia, lymphoma, Hodgkin's disease, myeloma, and other blood-related cancers and to those involved in their care. 800.955.4572

Leukemia Research Foundation
The Leukemia Research Foundation is dedicated to conquering all blood cancers by funding research into their causes and cures, and enriching the quality of life of those touched by these diseases.
847-424-0600 or 888-558-5385

Lymphoma Research Foundation
LRF creates, promotes, and supports lymphoma research and provides comprehensive educational and supportive programs for lymphoma patients and their families. 800.500.9976

Patient Access Network (PAN) Foundation (866.316.7263)
PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic, and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000 patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.

Liver Cancer

American Liver Foundation
The American Liver Foundation (ALF)'s mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease. ALF makes a measurable difference in the fight against liver disease by providing research awards for medical research, education programs for medical professionals, and education programs and information, support services, and advocacy for patients and their families. The American Liver Foundation has 16 Divisions across the United States, serving individuals from all 50 states. 800-GO-LIVER (800.465.4837)

Lung Cancer

American Lung Association (ALA)
The oldest voluntary health organization in the United States, with a national office and constituent and affiliate associations around the country. Founded in 1904 to fight tuberculosis, ALA today fights lung disease in all its forms, with a special emphasis on asthma, tobacco control, and environmental health. 800.LUNG.USA (800.586.4872)

Lung Cancer Alliance
A non-profit organization dedicated to providing support and advocacy for people living with or at risk for the disease. They improve the quality of life of lung cancer patients through advocacy, support, and education.  800.298.2436 (U.S. only); 202.463.2080

Lung Cancer Online
A website, maintained by the Lung Cancer Alliance, devoted to education and support of lung cancer patients and their families.

National Lung Cancer Partnership
A non-profit organization dedicated to decreasing deaths due to lung cancer, and helping patients live longer and better, through research, awareness and advocacy. It is comprised of leading physicians, patient advocates, researchers, and lung cancer survivors. The organization is ultimately working to advance lung cancer treatments for all patients, but currently, its efforts are focused on women. 608.233.7905

Melanoma/Skin Cancer

Aim at Melanoma
Aim at Melanoma is the largest international melanoma organization focused on research, education, awareness, and legislation. Its mission is to provide comprehensive online melanoma information for patients and caregivers, support melanoma research, and promote prevention and education among the general public and medical professionals. The website also provides the following resources: "Nurse on Call" hotline, discussion board, breaking news, and a clinical trials matching service. Nurse on Call Service: 877.AIM.2MEL (877.246.2635)

American Academy of Dermatology
A professional organization representative of all dermatologic associations. With a membership of more than 13,700, it represents virtually all practicing dermatologists in the United States. Includes resource pages for various skin diseases including melanoma. 847.330.0230

Melanoma International Foundation (MIF)
Provides support of melanoma programs for the prevention, early detection, and treatment of melanoma. Philadelphia Area: 610.942.3432; Outside of the Philadelphia Region: 866.463.6663

Melanoma Research Foundation (MRF)
MRF supports medical research for finding effective treatments and eventually a cure for melanoma. It educates patients and physicians about the prevention, diagnosis and treatment of melanoma and acts as an advocate for the melanoma community to raise the awareness of this disease and the need for a cure. Patient Helpline: 877.MRF.6460 (877.673.6460); 800.673.1290

Patient Access Network (PAN) Foundation (866.316.7263)
PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic, and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000 patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.

Skin Cancer Foundation
The mission of The Skin Cancer Foundation is to reduce the incidence of skin cancer through the promotion of prevention, early detection, and effective treatment. 800.SKIN.490 (800.754.6490) or 212.725.5176

Myelodysplastic Syndromes

The MDS Foundation
A multi-disciplinary international organization devoted to the prevention, treatment and study of myelodysplastic syndromes. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to both physicians and patients. 800.MDS.0839 (800.637.0839) within the U.S. or 609.298.1035 (outside the U.S.)

Myeloma

International Myeloma Foundation (IMF)
Founded in 1990, the International Myeloma Foundation (IMF) is the oldest and largest myeloma-specific charity in the world. With more than 230,000 members in 120 countries, the IMF serves myeloma patients, family members, and the medical community. The IMF provides a wide range of programs in the areas of Research, Education, Support, and Advocacy. United States and Canada: 800.452.CURE (2873). International: 818.487.7455 800.452.CURE (2873). International: 818.487.7455

Multiple Myeloma Research Foundation (MMRF): International non-profit foundation founded in 1998 with the mission of accelerating the search for a cure for multiple myeloma. Today, the MMRF is the number one private funder of myeloma-specific research and offers educational programs to patients and professionals worldwide. 203.229.0464

Pancreatic Cancer

Cure Pancreatic Cancer: The Lustgarten Foundation
The mission of The Lustgarten Foundation is to advance the scientific and medical research related to the diagnosis, treatment, cure and prevention of pancreatic cancer. Toll Free: 866.789.1000 or 516.803.2304

Pancreatica.org
The purpose of this site is to serve as a worldwide gathering point on the internet for the latest news in regards to clinical trials and other responsible medical care in the treatment of pancreatic cancer. Additionally, their aim is to present impartial knowledge about pancreatic cancer where interested parties can sort through a large amount of information efficiently in order to give a sense of the range of existing treatment options, to aid patient/doctor partnerships, and thus to help optimize personal treatment strategies. Speak with a Counselor: 800.525.3777; Speak with a Survivor: 800.433.0464

Pancreatic Cancer Action Network (PanCAN)
The Pancreatic Cancer Action Network (PanCAN) works to focus national attention on the need to find the cure for pancreatic cancer. PanCAN provides public and professional education that embraces the urgent need for more research, effective treatments, prevention programs, and early detection methods. PanCAN is the first national patient-based advocacy organization specifically focused on pancreatic cancer. Toll Free: 877.272.6226 or 310.725.0025

Prostate Cancer

Alliance for Prostate Cancer Prevention
APCaP’s mission is to bring public and private business leaders, legislators, health providers and administrators, researchers, federal, state and local health officials, and prostate cancer advocates into a coordinated cohesive forum to enhance and promote prostate cancer awareness, education, research and primary and secondary prevention programs. It has been created to support efforts to prevent the serious consequences of the disease itself for men who have not been diagnosed and are unaware of the deadly effects of prostate cancer. 888.50.APCAP (888.502.7227)

Malecare
(Prostate, Testicular, and Male Breast Cancer) Malecare is a web-based information portal developed by oncologists, psychologists and social workers to facilitate health care programs, that are free and open to the public. Malecare has workshops, lectures, treatment and support groups that provide cancer education to men, their loved ones, and their families. Patient information is presented in English, Spanish, Hebrew, French and Italian. 212-673-4920.

Prostate Cancer Foundation
A non-profit public charity dedicated to finding cures and controls for prostate cancer and the world's largest private source of prostate cancer research funding. 800.757.CURE (2873)

Prostate Cancer International
Prostate Cancer International works to transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.

Urology Care Foundation
The Urology Care Foundation is a leading advocate for patients, health care professionals and caregivers, providing accurate and up-to-date information about urologic health issues. 1-800-828-7866. 

US-TOO! International, Inc.
An independent network of support group chapters for men with prostate cancer and their families. Offers fellowship, peer counseling, education about treatment options, discussion of medical alternatives without bias and increases public awareness of prostate disease. 800.80.USTOO (800.808.7866)

ZERO The Project to End Prostate Cancer
Zero is a non-profit public charity dedicated to finding cures and controls for prostate cancer. It is also the world's largest private source of prostate cancer research funding. 202.463.9455 or Toll Free: 888.245.9455

Sarcomas/GIST

GIST Support International (GSI)
An all-volunteer, non-profit organization that reaches out to GIST patients and their families and friends to provide education and support. GSI promotes and encourages ongoing research in the quest for a cure for Gastrointestinal Stromal Tumor (GIST). 215.340.9374

Sarcoma Alliance: An advocacy organization that provides support, education, and guidance for patients/family members with sarcoma. Also provides patient materials, web links, support group locations, and other resources. 415.381.7236

Sarcoma Foundation of America
This foundation serves as an advocate for increased research to find new and better therapies to treat sarcoma patients. It provides information and support to sarcoma patients and their families. 301-253-8687

Thyroid Cancer

American Thyroid Association
The ATA is the leading organization devoted to thyroid biology and to the prevention and treatment of thyroid disease through excellence in research, clinical care, education, and public health.

Thyroid Cancer Survivors Association, Inc.
A national non-profit organization advised by nationally recognized thyroid cancer specialists. Educates and supports patients and families through its web site, support groups, personalized support, conferences, and outreach programs. Toll-Free: 877.588.7904

Fertility and Pregnancy Information

Fertile Hope
This LIVESTRONG program provides free reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility at www.fertilehope.org. Help with fertility-related questions and information about the Sharing Hope financial assistance program are also available by calling toll-free 855.220.7777.

Hope for Two the Pregnant with Cancer Network
This is a national non-profit organization for women diagnosed with cancer during pregnancy. Their mission is to connect women who are pregnant with cancer with other women who have been pregnant with the same type of cancer. These women lend support, offer hope and share their experiences with one another through phone and e-mail conversation. 800.743.4471

MyOncofertility.org
This website helps patients to learn more about the potential effect of cancer (and other serious diseases) and treatments on their fertility, as well as the options for preserving fertility and resources for discussing these issues with their doctor. 866-708-FERT (3378)

General Prescription Assistance

Chronic Disease Fund:
Chronic Disease Fund® is an independent 501(c)(3) non-profit charitable organization that helps patients with chronic disease, cancer and other life-altering conditions obtain the life-saving medications they need. (877) 968-7233

NCCN Virtual Reimbursement Resource Room
The oncology reimbursement landscape continues to present ever-evolving challenges for clinicians and others that work with patients with cancer. As a response to these ongoing challenges, help is available through the NCCN Virtual Reimbursement Resource Room.

NeedyMeds
This non-profit organization provides help to patients who cannot afford medicine or health care costs. Its website enables you to search by generic or brand name drug names, program name, or drug company name. NeedyMeds also provides access to numerous cancer-based assistance programs, some of which may provide financial assistance. Helpline: 800.503.6897

Patient Advocate Foundation (PAF) Co-Pay Relief (CPR)
PAF CPR provides direct financial assistance to qualified patients, assisting them with prescription drug co-payments their insurance requires relative to their diagnosis. CPR call counselors work directly with the patient as well as with the provider of care to obtain necessary medical, insurance and income information to advance the application in an expeditious manner. 866.512.3861

Partnership for Prescription Assistance
The Partnership for Prescription Assistance brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free. Among the organizations collaborating on this program are the American Academy of Family Physicians, the American Autoimmune Related Diseases Association, the Lupus Foundation of America, the NAACP, the National Alliance for Hispanic Health and the National Medical Association. 888.4PPA.NOW 888.477.2669

Rx Assist
This pharmaceutical access information center was created by Volunteers in Health Care (VIH), a national resource center for safety net organizations. VIH operates out of the Brown University Center for Primary Care and Prevention at Memorial Hospital of Rhode Island.

International/Cultural Support Group

American Cancer Society (ACS) Asian and Pacific Language Materials
American Cancer Society site that provides resources and cancer information in several Asian languages including Chinese, Korean, and Vietnamese. 800.227.2345

Canadian Cancer Society
A national, community-based organization of volunteers whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer. 888.939.3333 or 416.961.7223

Intercultural Cancer Council (ICC)
Promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories. 713.798.4617

International Union Against Cancer (UICC)
UICC is an international non-profit, nonsectarian, nongovernmental association of more than 290 member organizations in 85 countries. Their mission is to advance scientific and medical knowledge in research, diagnosis, treatment, and prevention of cancer throughout the world, especially professional and public education. +41 22 809 18 11 UICC international cancer organizations by country: http://www.uicc.org/membership

Make-A-Wish Foundation International
A not-for-profit organization established to grant wishes to children with life-threatening illnesses around the world. The Make-A-Wish Foundation can now be found in 30 countries and territories around the world. 602.230.9900

Vital Options International
A non-profit cancer communications, support, and advocacy organization with a mission to facilitate a global cancer dialogue. It produces a weekly cancer talk radio show called The Group Room®, which allows callers to engage directly with noted oncology professionals from the US and Europe, as well as with advocates and other patients. Program information can be found on the Vital Options' websites which provides easy access for visitors to listen to archived shows, locate national and international cancer resources and organizations, information on clinical trials, cancer news, a message board, as well as special content for young adults with cancer (English, French, German) 818.508.5657

World Health Organization
A specialized agency of the United Nations with 191 Member States, WHO promotes technical cooperation for health among nations, carries out programs to control and eradicate disease, and strives to improve the quality of human life. + 41 22 791 21 11

Test, Imaging, and Treatment-Related Patient Information

Chemocare.com This website is part of the Scott Hamilton Care Initiative and is designed to provide the latest information about chemotherapy to patients and their families, caregivers and friends. We are here to help by supplementing what you may already have learned from your healthcare professional.

RadiologyInfo.org
RadiologyInfo™ is the public information website developed and funded by the American College of Radiology (ACR) and the Radiological Society of North America (RSNA). It was established to inform and educate the public about radiologic procedures and the role of radiologists in healthcare, and to improve communications between physicians and their patients. It informs patients how various x-ray, CT, MRI, ultrasound, radiation therapy and other procedures are performed. It also addresses what patients may experience and how to prepare for the exams.

Lab Tests Online
Lab Tests Online has been designed to help patients and/or family caregivers, to better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases.

MyBiopsy.org
Patient-oriented website developed by the College of American Pathologists (CAP) which features information on more than 40 of the most common cancers and cancer-related conditions including those affecting the breast, lungs, colon, prostate, and skin. It includes answers to questions about what the disease is, what treatment options are available, questions you should ask your doctors, a definition of key terms, and pictures of normal tissue as well as one that is diseased.

RT Answers
The American Society for Radiation Oncology (ASTRO), created this Web site to explain to patients, their families and the public how doctors, called radiation oncologists, use radiation therapy to treat cancer safely and effectively.

Travel and Lodging Assistance

Air Charity Network
A non-profit grassroots organization with a volunteer corps of more than 7,500 private pilots divided into six regions covering all 50 states and the District of Columbia. They transport patients and their families in private planes, free of charge, to hospitals for medical treatment. (United States Only) 877.621.7177

Corporate Angel Network
Provides free air transportation for cancer patients traveling to and from recognized cancer treatment centers in the United States without regard to their financial resources. 914.328.1313; TollFree Patient Line: 866.328.1313

Joe's House
Joe’s House is a non-profit organization that serves both the hospital staff and cancer patients that travel for their healthcare needs. Founded in 2003, Joe’s House assists in finding appropriate lodging in unfamiliar cities by providing a list of accommodations that cater to patients with cancer, their families, and caregivers. 877.JOESHOU (877.563.7468)

Ronald McDonald House Charities:  The mission of Ronald McDonald House Charities (RMHC) is to create, find and support programs that directly improve the health and well-being of children. They provide families with stability and resources that assist them with staying near and supporting a hospitalized child, they also help families stay together in another city while a child is undergoing treatment, or even getting basic medical and dental care while in a vulnerable community.

Age-Related Cancer Support

Childhood, Adolescent, and Young Adult

American Childhood Cancer Organization (ACCC): ACCO, founded in 1970 by concerned parents of children with cancer to assist families and survivors of childhood cancer, has a network of parent support groups in the United States and every continent. Toll Free Phone: 855.858.2226; Local Phone: 301.962.3520

Children's Cause Cancer Advocacy (CCCA)
A 501(c)3 non-profit organization that works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors. 202.336.8374

Cure Search for Children’s Cancer
An online resource for patients, their families and support systems. The website provides up-to-date information about the various types of children's cancer along with research trials, definitions and descriptions of tests, procedures and treatments and information to help families manage the emotional aspects of caring for a child with cancer. United States and Canada: 800.458.6223

Make-a-Wish Foundation
A non-profit organization dedicated to granting the wishes of children with life-threatening medical conditions. 800.722.9474

National Children’s Cancer Society (NCCS)
The mission of NCCS is to improve the quality of life for children with cancer and to reduce the risk of cancer by promoting children's health through financial and in-kind assistance, advocacy, support services, and education. 800.5.FAMILY (800.532.6459)

Stupid Cancer
Founded in 2007 by a young adult cancer survivor, Stupid Cancer is a non-profit organization that empowers young adults affected by cancer through innovative and award-winning programs and services. They are the nation's largest support community for this underserved population and serve as a bullhorn for the young adult cancer movement. 
877-735-4673