NCCN Guidelines for Patients
: Malignant Pleural Mesothelioma
How to use this booklet
Who should read this booklet?
Mesothelioma is a rare cancer of the mesothelium—a
layer of cells that makes fluid. Mesothelioma can start
in the lining of the abdomen (peritoneal mesothelioma),
heart (pericardial mesothlioma), testicles (testicular
mesothelioma), or lungs (pleural mesothelioma). This
booklet focuses on mesothelioma that starts in the lining
of the lungs since it is the most common type. This
booklet may be helpful for patients, caregivers, and other
family and friends dealing with this cancer. Reading this
booklet at home may help you absorb what your doctors
have said and prepare for treatment.
Does the whole booklet apply to me?
Parts 1 and 2 review some basics about mesothelioma
that may help you understand the cancer better. If you’re
unsure if you should be tested for mesothelioma, read
Part 3. The information in Parts 4 through 8 is for people
who have mesothelioma. This information covers many
situations. Thus, not everyone will get every test and
treatment listed. Your treatment team can point out
what applies to you and give you more information.
As you read through this booklet, you may find it
helpful to create a list of questions to ask your doctors.
The recommendations in this booklet include what the
NCCN doctors feel is the most useful based on science
and their experience. However, these recommendations
may not be right for you. Your doctors may suggest
other tests or treatments based on your medical history
and other factors. This booklet does not replace the
knowledge and suggestions of your doctors.
Help! I don’t know these words!
In this booklet, many medical words are included that
describe cancer, tests, and treatments. These are words
that you will likely hear your treatment team use in the
months and years ahead. Most of the information may
be new to you, and it may be a lot to learn. Don’t be
discouraged as you read. Keep reading and review the
Words that you may not know are defined in the
text or the sidebar. Words with sidebar definitions are
underlined when first used on a page. All definitions are
listed in the
in Part 9. Acronyms are also listed
in the text or the sidebar. Acronyms are words formed
from the first letters of other words. One example is
U.S. for United States.