National Comprehensive Cancer Network

Educational Events & Programs

Patient Advocacy Summit:
Patient Concerns in 2014 – Big Data, Access, and Palliative Care

Monday, November 3, 2014 
9:30 AM – 3:30 PM
(Breakfast and registration begin at 8:45 AM)

The National Press Club
Washington DC

Register Now


NCCN will be hosting its’ 5th annual Patient Advocacy Summit, Patient Concerns in 2014 – Big Data, Access, and Palliative Care, on November 3, 2014 at the National Press Club in Washington, DC. Patients today are facing a variety of concerns and considerations when confronting cancer. From the plethora of data they encounter when making treatment decisions to accessing and paying for drugs and biologics to palliative care, patients need resources to help them make appropriate care and financial decisions. Topics for discussion at the Summit include the patient role and experience in big data collection and utilization, how patients are accessing and paying for drugs and biologics in the current political and regulatory environment, and an assortment of issues within palliative care.

Click here to register

If you have questions about NCCN Patient Advocacy Summits, please contact Jessica DeMartino, Manager, Health Policy Programs.


Clifford Goodman, PhD
The Lewin Group


8:45 – 9:30 AM
Holeman Lounge

9:30 - 9:35 AM
Welcome and Introductions
Robert W. Carlson, MD
National Comprehensive Cancer Network

9:35 - 9:55 AM
Opening Remarks

9:55 – 10:05 AM
Big Data and Patient Perspective

10:05 – 10:25 AM

10:25 – 11:35 AM
Roundtable Discussion #1: Big Data and the Patient
Daniel Auclair, PhD
Multiple Myeloma Research Foundation

Amy Abernethy, MD, PhD
Flatiron Health, Inc

Adrian Gropper, MD
Patient Privacy Rights

John Ioannidis, MD
Stanford University

Paul Wallace, MD
Optum Labs


11:35 AM – 12:35 PM
Holeman Lounge

12:40 – 12:50 PM
Perspective on Patient Access Issues

12:50 – 2:00 PM
Roundtable #2: Addressing Patient Access Issues
Alan Balch, PhD
Patient Advocate Foundation

Dana Dzwonkowski
American Cancer Society Cancer Action Network

Jax Ferguson
Eli Lilly

Michael Kolodziej, MD

Laurel Todd, MBA
Biotechnology Industry Organization

Ray Wesik
International Myeloma Foundation and SPEAC

2:00 – 2:10 PM

2:10 – 2:20 PM
Patient Perspective on Palliative Care Issues

2:20 – 3:30 PM
Roundtable Discussion #3: Palliative Care and the Patient
Rebecca Kirch, JD
American Cancer Society

Shelley Fuld Nasso
National Coalition for Cancer Survivorship

Linda Sutton, MD
Duke Cancer Institute

Jennifer Temel, MD
Massachusetts General Hospital

3:30 PM

*Subject to change

Program Location:

The National Press Club
529 14th Street, NW
13th Floor
Washington, D.C. 20045


As a benefit of membership, NCCN extends a discounted registration fee to staff employed at NCCN Member Institutions. For a list of NCCN Member Institutions, please visit:

  Through October 2, 2014 After October 2, 2014
Government $149 $199
Health Care Professionals (Other) $249 $299
Industry $549 $599
NCCN Member Institution $70 $120
Nonprofit/Academia $249 $299
Patient Advocate Complimentary Complimentary
Physician $249 $299


This activity is supported by an educational donation provided by Amgen. This activity is supported by a contribution from Exelixis Inc. Supported by grants from Abbott Molecular and ImmunoGen, Inc.  Supported by Actelion Pharmaceuticals US, Inc.; Apotex Corp.; Astellas Pharma US, Inc.; Biodesix; Gilead Sciences, Inc; ImpediMed; Incyte Corporation; Janssen; Medivation Inc.; Millennium:  The Takeda Oncology Company; Onyx Pharmaceuticals, Inc., an Amgen subsidiary; Pharmacyclics, Inc., and TEVA Oncology. This activity is supported by an unrestricted grant from Eisai Inc.  This activity is sponsored by Boehringer Ingelheim Pharmaceuticals, Inc.; HELSINN; Novartis Oncology; and Xcenda and Lash Group, AmerisourceBergen Consulting Services companies.  This activity is supported by a contribution from Lilly.

As of September 5, 2014


Several hotels are within walking distance of the National Press Club. NCCN is not offering a preferred rate at any of these hotels. Please check with these hotels for price and availability:

JW Marriott Hotel
1331 Pennsylvania Avenue NW
Washington DC
Tel: 202.393.2000

Willard Intercontinental Hotel
1401 Pennsylvania Avenue NW
Washington DC
Tel:. 202.628.9100

W Washington DC
515 15th Street NW
Washington DC
Tel: 202.661.2400