National Comprehensive Cancer Network

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NCCN Patient Advocacy Summit: Health Care Reform in 2013 and Beyond

Despite the passage of the Affordable Care Act (ACA) more than three years ago, many questions remain for providers, industry, and particularly patients. A March 2013 poll by the Kaiser Family Foundation shows that two-thirds of the uninsured and a majority of Americans overall say that they have too little information to know how the ACA will affect them. The survey also finds that the public is not tuned in to decisions states are making today about whether to expand their Medicaid program under the law and how to establish the insurance exchange marketplaces. Additional lingering questions remain—how will people get insurance and who will be responsible for paying those benefits? Will people continue to access insurance through employers, or will employers force their employees into the exchanges? How easy or difficult will uninsured people find accessing the exchanges and government subsidies to gain coverage? Will cancer patients be able to find plans they can afford that cover the services they actually need?

On November 22, 2013, the National Comprehensive Cancer Network® (NCCN®) convened the NCCN Patient Advocacy Summit: Health Care Reform in 2013 and Beyond. The NCCN Patient Advocacy Summit, which was held in Washington, DC, brought together oncology patient advocacy groups, patients, provider groups, policy makers, industry, and employers to discuss the implementation of certain aspects of the ACA and their effects on people with cancer and their caregivers. The Summit consisted of an expert overview of the current state of health care reform and three roundtable discussions, featuring key stakeholders, moderated by Clifford Goodman, PhD, The Lewin Group.

An in-depth summary of the Summit will be available on by December 23, 2013.

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