National Comprehensive Cancer Network

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NCCN to Host 5th Annual Patient Advocacy Summit: Patient Concerns in 2014 – Big Data, Access, and Palliative Care

By Jessica DeMartino, PhD, Manager, Health Policy Programs

The National Comprehensive Cancer Network® (NCCN®) will be hosting its 5th annual Patient Advocacy Summit: Patient Concerns in 2014 – Big Data, Access, and Palliative Care, on November 3, 2014 at The National Press Club in Washington, DC.

Patients today face a variety of concerns and considerations when confronting cancer. From the plethora of data they encounter when making treatment decisions, to accessing and paying for drugs and biologics, to choices about palliative care, patients and their caregivers need resources to help them make appropriate health and financial decisions.

Moderated by Clifford Goodman, PhD, The Lewin Group, the Summit will address the patient role and experience in big data collection and utilization, how patients are accessing and paying for drugs and biologics in the current political and regulatory environment, and an assortment of issues related to palliative care, such as access to opioids for appropriate pain management, timely provision of palliative care, and early referral to hospice.

This year’s event includes three roundtable discussions featuring experts representing diverse stakeholders in oncology today. Confirmed speakers include Amy Abernethy, MD, PhD, Flatiron Health; Alan Balch, PhD, Patient Advocate Foundation; John Ioannidis, MD, Stanford Cancer Institute; Rebecca Kirch, JD, American Cancer Society; Michael Kolodziej, MD, Aetna; Jennifer Temel, MD, Massachusetts General Hospital Cancer Center; and Laurel Todd, MBA, Biotechnology Industry Organization.

To view a more detailed agenda or to register, visit