National Comprehensive Cancer Network



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Oncology Experts and Patient Advocates to Deliberate Patient Concerns: Big Data, Access to Quality Cancer Care, and Palliative Care

On November 3, 2014, NCCN will host its annual Patient Advocacy Summit: Patient Concerns in 2014 – Big Data, Access, and Palliative Care, at The National Press Club in Washington, DC. 

FORT WASHINGTON, PA — On November 3, 2014, as part of its Oncology Policy Program, the National Comprehensive Cancer Network® (NCCN®) will host its 5th Annual Patient Advocacy Summit: Patient Concerns in 2014 – Big Data, Access, and Palliative Care, at The National Press Club in Washington, DC.

Patients today face a variety of concerns and considerations when confronting cancer. From the plethora of data they encounter when making treatment decisions, to accessing and paying for quality care, to understanding palliative care, patients need resources to help them make appropriate care and financial decisions.

“With continued implementation of health care reform in the United States and an increase in media coverage surrounding access to care, advancements in treatment, and genetic testing, 2014 has proven daunting for people facing decisions about cancer care,” said Robert W. Carlson, MD, Chief Executive Officer, NCCN. “This year, NCCN is especially proud to facilitate a forum where oncology leaders can discuss what’s best for the patient and deliberate the best strategies to ensure patients have resources to make appropriate, informed choices.”

Topics for discussion at the summit include the patient role and experience in big data collection and utilization and how patients are accessing and paying for innovation, including drugs and biologics, in the current political and regulatory environment. The expert panelists will also deliberate an assortment of issues surrounding palliative care, such as access to opioids for appropriate pain management, timely provision of palliative care, and early referral to hospice.

Moderated by Clifford Goodman, PhD, The Lewin Group, this year’s event includes three roundtable discussions featuring experts representing diverse stakeholders in oncology today: Big Data and the Patient, Addressing Patient Access Issues, and Patient Perspectives on Palliative Care Issues. Confirmed speakers for the event include Amy Abernethy, MD, PhD, Flatiron Health; Alan Balch, PhD, Patient Advocate Foundation; John Ioannidis, MD, Stanford Cancer Institute; Rebecca Kirch, JD, American Cancer Society; Michael Kolodziej, MD, Aetna; Jennifer Temel, MD, Massachusetts General Hospital Cancer Center; and Laurel Todd, MBA, Biotechnology Industry Organization.

For a detailed agenda and to register for the NCCN Patient Advocacy Summit: Patient Concerns in 2014 – Big Data, Access, and Palliative Care, visit NCCN.org.  Advocates interested in attending can contact Jessica K. DeMartino, PhD, Manager, Health Policy Programs, NCCN, at healthpolicy@nccn.org.

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About the National Comprehensive Cancer Network

The National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 27 of the world's leading cancer centers, is dedicated to improving the quality and effectiveness of care provided to patients with cancer. Through the leadership and expertise of clinical professionals at NCCN Member Institutions, NCCN develops resources that present valuable information to the numerous stakeholders in the health care delivery system. As the arbiter of high-quality cancer care, NCCN promotes the importance of continuous quality improvement and recognizes the significance of creating clinical practice guidelines appropriate for use by patients, clinicians, and other health care decision-makers. The primary goal of all NCCN initiatives is to improve the quality, effectiveness, and efficiency of oncology practice so patients can live better lives. For more information, visit NCCN.org.

The NCCN Member Institutions are:

  • Fred & Pamela Buffett Cancer Center
  • Case Comprehensive Cancer Center/University Hospitals Seidman Cancer Center and Cleveland Clinic Taussig Cancer Institute
  • City of Hope Comprehensive Cancer Center
  • Dana-Farber/Brigham and Women's Cancer Center | Massachusetts General Hospital Cancer Center
  • Duke Cancer Institute
  • Fox Chase Cancer Center
  • Huntsman Cancer Institute at the University of Utah
  • Fred Hutchinson Cancer Research Center/Seattle Cancer Care Alliance
  • The Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins
  • Robert H. Lurie Comprehensive Cancer Center of Northwestern University
  • Mayo Clinic Cancer Center
  • Memorial Sloan Kettering Cancer Center
  • Moffitt Cancer Center
  • The Ohio State University Comprehensive Cancer Center - James Cancer Hospital and Solove Research Institute
  • Roswell Park Cancer Institute
  • Siteman Cancer Center at Barnes-Jewish Hospital and Washington University School of Medicine
  • St. Jude Children's Research Hospital/The University of Tennessee Health Science Center
  • Stanford Cancer Institute
  • University of Alabama at Birmingham Comprehensive Cancer Center
  • UC San Diego Moores Cancer Center
  • UCSF Helen Diller Family Comprehensive Cancer Center
  • University of Colorado Cancer Center
  • University of Michigan Comprehensive Cancer Center
  • The University of Texas MD Anderson Cancer Center
  • University of Wisconsin Carbone Cancer Center
  • Vanderbilt-Ingram Cancer Center
  • Yale Cancer Center/Smilow Cancer Hospital