News Details
Oncology Experts and Patient Advocates to Deliberate Patient Concerns: Big Data, Access to Quality Cancer Care, and Palliative Care
On November 3, 2014, NCCN will host its annual Patient Advocacy Summit: Patient Concerns in 2014 – Big Data, Access, and Palliative Care, at The National Press Club in Washington, DC.
FORT WASHINGTON, PA — On November 3, 2014, as part of its Oncology Policy Program, the National Comprehensive Cancer Network® (NCCN®) will host its 5th Annual Patient Advocacy Summit: Patient Concerns in 2014 – Big Data, Access, and Palliative Care, at The National Press Club in Washington, DC.
Patients today face a variety of concerns and considerations when confronting cancer. From the plethora of data they encounter when making treatment decisions, to accessing and paying for quality care, to understanding palliative care, patients need resources to help them make appropriate care and financial decisions.
“With continued implementation of health care reform in the United States and an increase in media coverage surrounding access to care, advancements in treatment, and genetic testing, 2014 has proven daunting for people facing decisions about cancer care,” said Robert W. Carlson, MD, Chief Executive Officer, NCCN. “This year, NCCN is especially proud to facilitate a forum where oncology leaders can discuss what’s best for the patient and deliberate the best strategies to ensure patients have resources to make appropriate, informed choices.”
Topics for discussion at the summit include the patient role and experience in big data collection and utilization and how patients are accessing and paying for innovation, including drugs and biologics, in the current political and regulatory environment. The expert panelists will also deliberate an assortment of issues surrounding palliative care, such as access to opioids for appropriate pain management, timely provision of palliative care, and early referral to hospice.
Moderated by Clifford Goodman, PhD, The Lewin Group, this year’s event includes three roundtable discussions featuring experts representing diverse stakeholders in oncology today: Big Data and the Patient, Addressing Patient Access Issues, and Patient Perspectives on Palliative Care Issues. Confirmed speakers for the event include Amy Abernethy, MD, PhD, Flatiron Health; Alan Balch, PhD, Patient Advocate Foundation; John Ioannidis, MD, Stanford Cancer Institute; Rebecca Kirch, JD, American Cancer Society; Michael Kolodziej, MD, Aetna; Jennifer Temel, MD, Massachusetts General Hospital Cancer Center; and Laurel Todd, MBA, Biotechnology Industry Organization.
For a detailed agenda and to register for the NCCN Patient Advocacy Summit: Patient Concerns in 2014 – Big Data, Access, and Palliative Care, visit NCCN.org. Advocates interested in attending can contact Jessica K. DeMartino, PhD, Manager, Health Policy Programs, NCCN, at healthpolicy@nccn.org.
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