Advocacy and Support Groups
Patient advocacy groups help patients, their families, and their caregivers navigate the cancer landscape. These groups work to ensure patients receive appropriate and timely care, education, and financial assistance, when needed. Below, please find links to advocacy organizations, organized by their mission.
Please use the dropdown menu below to filter your results.
General Cancer Information/Support
Alliance of Dedicated Cancer Centers (ADCC)
ADCC is comprised of 11 nationally recognized comprehensive or clinical cancer centers. The ADCC member cancer centers play a pivotal role in the National Cancer Program, which was enacted by Congress in 1971 to improve the detection, prevention, diagnosis, and treatment of cancer. The ADCC hospitals are singularly dedicated to deepening the understanding of the causes and cures for cancer; developing new treatments for cancer; and disseminating this knowledge to the provider community at large. The Centers' state-of-the-art therapies and research activities offer the greatest possibility for the successful treatment of cancer patients. Much of the recent progress in understanding cancer's biology and effective treatment is directly attributable to the work of the Centers.
American Association for Cancer Research (AACR)
The AACR is the oldest and largest scientific organization in the world focused on every aspect of high-quality, innovative cancer research. The mission of the AACR is to prevent and cure cancer through research, education, communication, and collaboration. 215.440.9300 or toll free 866.423.3965
American Cancer Society (ACS)
An extensive network of information resources and organizations fighting cancer by providing information, education, support and research funding. 800.ACS.2345 ( 800.227.2345)
American Society of Clinical Oncology (ASCO)
A non-profit organization, ASCO supports cancer research, especially patient-oriented clinical research. Membership is composed of clinical oncologists from all oncology disciplines and sub-specialties. Patient information: 571.483.1780 or 888.651.3038
Association of Cancer Online Resources (ACOR)
An internet-based public charity dedicated to improve the quality of care provided to patients with cancer and the quality of life of patients, survivors and their caregivers. 212.226.5525
Association of Community Cancer Centers (ACCC)
ACCC helps oncology professionals adapt to the complex challenges of program management, reimbursement restraints, hospital consolidation and mergers, and legislation and regulations that threaten to compromise the delivery of quality cancer care. ACCC works closely with members of Congress, government agencies, and other cancer care advocacy organizations to help assure patient access to quality cancer care. 301.984.9496
Association of Oncology Social Work (AOSW)
AOSW is a non-profit organization dedicated to the enhancement of psychosocial services to people with cancer and their families. AOSW was created in 1984 by social workers interested in oncology and by existing national cancer organizations. AOSW has over 1000 current members who embrace the AOSW Mission “to advance excellence in the psychosocial care of persons with cancer, their families, and caregivers through networking, education, advocacy, research and resource development.” (215) 599-6093
Bone and Cancer Foundation
A resource for patients and health professionals concerned with the care and treatment of cancer involving bone. They provide information for cancer patients and family members on the causes and treatment of cancer involving bone. Toll free, 888.862.0999
Breathing Room Foundation
(215.277.1006)Breathing Room Foundation is dedicated to providing care and support to local families affected by cancer. We recognize that a cancer diagnosis affects every aspect of a family’s life; emotional, physical, spiritual and financial. Breathing Room Foundation strives to provide a family with whatever it is that will allow them a bit of "breathing room" from their daily struggle against cancer. It is our hope that this will allow them to concentrate all of their efforts towards regaining their physical health.
Cancer and Careers
Cancer and Careers, founded in 2001, is a national nonprofit that empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events. The organization reaches more than 325,000 individuals per year online, in print and in person. Its free services include a comprehensive website and library of publications in English and Spanish; legal and insurance information; career coaching; resume review; professional development micro-grants; and national events and workshops for people with cancer and their healthcare providers, coworkers and employers.
CancerCare
Founded in 1944, CancerCare is the leading national organization providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer. Our comprehensive services include counseling and support groups over the phone, online and in-person, educational workshops, publications and financial and co-payment assistance. All CancerCare services are provided by oncology social workers and world-leading cancer experts. Headquartered in New York, NY, CancerCare maintains three additional locations in Norwalk, CT, Ridgewood, NJ and Syosset, NY. To learn more, visit www.cancercare.org or call 800-813-HOPE (4673).
Cancer Experience Registry
The Cancer Experience Registry is community of people touched by cancer. A primary focus is on collecting, analysing, and sharing information about the cancer experience, including the social and emotional needs of the patient and their family throughout the cancer journey.
Cancer Hope Network
Provides free, confidential, one-on-one support to people with cancer and their families. The program is available to all cancer patients and their loved ones from anywhere in the United States at no cost. 800-552-4366
Cancer Insurance Checklist
The Cancer Insurance Checklist is designed to help you when shopping for insurance on your state's Health Insurance Marketplace/Exchange if you have cancer, a history of cancer, or are at risk for cancer.
Cancer Insurance Checklist: Guía de Cobertura Médica para Personas con Cáncer
Si padece cáncer, tiene antecedentes de cáncer o se encuentra en riesgo de padecer cáncer, la Guía de cobertura médica para personas con cáncer puede asistirle con la compra de un seguro en el mercado de seguros médicos de su estado.
Cancer.net
The patient information website of the American Society of Clinical Oncology (ASCO) is designed to help patients and families make informed health care decisions. The site provides information on more than 120 types of cancer and cancer-related syndromes, clinical trials, coping, side effects, a "Find an Oncologist" database, message boards, patient support organizations, and more. (English and Spanish) Patient Helpline: 571-483-1780 or 888-651-3038; for printed materials: 888-273-3508 or 703-519-1430
Cancer Support Community
Uniting The Wellness Community and Gilda's Club Worldwide, the Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer. 888.793.9355
Cancersymptoms.org
This website is sponsored by the Oncology Nursing Society (ONS). It is designed for patients and caregivers to provide information on learning about and managing each of ten cancer treatment-related symptoms that patients undergoing treatment for a cancer diagnosis commonly experience: anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal disturbances, neutropenia, pain, peripheral neuropathy, and sexual dysfunction.
Caring4Cancer
This web-based resource serves as a complete source of knowledge and support for people with cancer, empowering them with the expertise, strength and hope they need to live their lives to the fullest. Caring4Cancer combines a virtual encyclopedia of cancer information with a collection of powerful tools (including videos, message boards, and e-newsletters) that help patients take an active role in managing their disease.
CURE
Cancer Updates, Research & Education is a unique quarterly magazine bridging the knowledge gap between cancer patients and caregivers. CURE demystifies the science and medicine of cancer and gives readers links to important resources on the web and in the medical community. CURE provides readers the tools they need to take action, such as participating in clinical trials of new drugs that could mean the difference between life and death. 214.367.3500; Toll Free: 800.210.CURE (2873)
Family Reach
Family Reach is a national non-profit providing financial assistance, education and outreach for families facing a cancer diagnosis. For more information, connect with your social worker or visit www.familyreach.org.
Good Days
Good Days is a national, independent 501(c)(3) non-profit charitable organization that provides financial assistance to patients so that they do not have to choose between getting the treatment the need and affording the necessities of everyday living.
International Cancer Advocacy Network (ICAN)
ICAN assists patients with cutting-edge information services, patient empowerment, and health information technology tools, as well as research regarding molecular profiling, clinical trials, and compassionate use. 602.618.0183; programservices@askican.org
LIVESTRONG
LIVESTRONG provides free, confidential, one-on-one support to anyone affected by cancer, including those who have been diagnosed with cancer, loved ones, friends, health care professionals and caregivers. For assistance, call toll-free 855.220.7777, go online to www.livestrong.org, or visit the LIVESTRONG Cancer Navigation Center in Austin, TX.
Lolly's Locks
Lolly's Locks connects high-quality wigs with cancer patients who are suffering hair loss as an effect of chemotherapy, and who are unable to afford them. www.lollyslocks.org
The Marjorie E. Korff PACT Program
The PACT (parenting at a challenging time) program is a unique parenting program developed at the Massachusetts General Hospital Cancer Center to address the common challenges and needs of parents with cancer. The PACT website provides information for parents with cancer and their spouses or co-parents on communicating with their children and other important topics. For more information, e-mail moreinfo@mghpact.org 617-724-7272
National Cancer Institute (NCI)
Conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer. It also includes information on rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. 800.4.CANCER (800.422.6237)
National Center for Complementary and Alternative Medicine
One of the 27 institutes and centers that make up the National Institutes of Health (NIH). It is dedicated to exploring complementary and alternative healing practices in the context of rigorous science, training complementary and alternative medicine (CAM) researchers, and disseminating authoritative information to the public and professionals. United States: 888.644.6226.
National Coalition for Cancer Survivorship (NCCS)
A non-profit national advocacy organization, NCCS is a nationwide network of independent organizations and individuals working in the areas of cancer support, education, and advocacy. 877.NCCS.YES (877.622.7937)
National Hospice and Palliative Care Organization (NHPCO)
NHPCO is the largest non-profit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end-of-life care and expanding access to hospice care with the goal of profoundly enhancing the quality of life for people dying in America and their loved ones. (Spanish/English) Helpline: 800.658.8898
National Lymphedema Network (NLN)
An internationally recognized non-profit organization providing education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. The NLN also supports research into the causes of and possible alternative treatments for lymphedema. Hotline: 800.541.3259
National Organization for Rare Diseases (NORD)
A non-profit voluntary health organization dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Toll Free: 800.999.NORD
National Society of Genetic Counselors
An organization which promotes the genetic counseling profession as a recognized and integral part of health care delivery, education, research and public policy. Genetic Counselors can be searched by State, City, Counselor's Name, Institution or Areas of Practice or Specialization. Cancer genetic counselors are involved with individuals who have cancer or a family history of cancer. 312-321-6834 or nsgc@nsgc.org
Oncology Nursing Society
The Oncology Nursing Society (ONS) is a professional organization of over 35,000 registered nurses and other healthcare providers dedicated to excellence in patient care, education, research, and administration in oncology nursing. 1-866-257-4667 or 412-859-6100
Patient Advocate Foundation
The Patient Advocate Foundation is a national non-profit organization that serves as an active liaison between patients and their insurers, employers and/or creditors to resolve insurance, job discrimination, and/or debt crisis matters related to their diagnosis. It seeks to safeguard patients through effective mediation, assuring access to care, maintenance of employment, and preservation of financial stability. 800.532.5274
Patient Access Network (PAN) Foundation
(866.316.7263)PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic, and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000 patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.
Prevent Cancer Foundation
A national, non-profit health foundation whose mission is the prevention and early detection of cancer through scientific research, education and community outreach. The Foundation focuses its energies and resources on those cancers—including lung, breast, prostate, colorectal, cervical, skin, oral and testicular—that can be prevented through lifestyle changes or detection and treatment in their early stages. 800.227.2732
The Cancer Project
The Cancer Project is a non-profit organization advancing cancer prevention and survival through nutrition education and research. 202.686.2210
Triage Cancer
Triage Cancer is a national, nonprofit organization providing information and resources on the full spectrum of cancer survivorship issues to patients, survivors, caregivers, advocates, and healthcare professionals, through a national Speakers Bureau, educational events, and online tools. Triage Cancer also offers an educational blog at www.TriageCancer.org/blog.
Blood and Marrow Transplant
Blood & Marrow Transplant Information Network
BMT InfoNet provides information and support services to patients before, during and after a stem cell, bone marrow or cord blood transplant. Our GVHD programs include support groups, a free booklet entitled Graft-versus-Host Disease: What to Know, What to Do (www.bmtinfonet.org/GVHDbook) and a video learning library featuring videos about how GVHD affects various organs and tissues (www.bmtinfonet.org/videos). Our peer support program, Caring Connections, links patients experiencing GVHD with others who have had GVHD and can provide emotional support.
National Bone Marrow Transplant Link
The mission of the National Bone Marrow Transplant Link is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services. 1.800.546.5268
National Marrow Donor Program
A non-profit organization which facilitates unrelated donor stem cell transplants for patients of all racial and socioeconomic backgrounds with life-threatening blood diseases who do not have matching donors in their families. Provides advice, support, and access to resources and information throughout the search process, coordinates research studies, and provides one-on-one advocacy for patients and medical professionals. Donors and other inquiries: 800.MARROW.2 (800.627.7692); Patients and families: 888.999.6743; International: 612.627.8140
The Be The Match® Patient Support Center
Provides free support, information and resources for you and your loved ones from diagnosis through recovery. To learn more, call 888.999.6743 or email patientinfo@nmdp.org.
Gallbladder and Bile Duct Cancers
The Bili Project Foundation
Mission statement - Reduce the INCIDENCE and IMPROVE THE OUTCOMES of Hepatobiliary cancers by funding research to identify early detection methods and curative treatments for cancers of the bile duct, liver and gallbladder. thebiliproject.org
The Cholangiocarcinoma Foundation
A global nonprofit organization whose mission is to find a cure and improve the quality of life for those affected by bile duct cancer. The Cholangiocarcinoma Foundation continues its efforts to raise awareness of all stakeholders in the cholangiocarcinoma community through advocacy, education, collaboration and research. 888.936.6731 cholangiocarcinoma.org
Anal Cancer
Anal Cancer Foundation (ACF)
The Anal Cancer Foundation (ACF) is an internationally-acclaimed leader dedicated to ending anal cancer and improving the lives of those affected by it. ACF achieves this mission through robust advocacy, education, research, and patient services. ACF’s Peer-To-Peer Program matches patients and caregivers with trained volunteers for empathetic, practical guidance. ACF also provides patients with expert-reviewed information on treatment, side-effect mitigation, and recovery. Devoted to finding a cure for this disease, ACF funded the first new drug for anal cancer in 40+ years and the International Anal Neoplasia Society. For help during any stage of your journey, please visit www.analcancerfoundation.org or contact connect@analcancerfoundation.org.
Bladder Cancer
American Bladder Cancer Society
The American Bladder Cancer Society provides a web site with a plethora of information about bladder cancer for patients, survivors, and caregivers. An important feature is an active Forum for sharing experiences and asking questions.
Bladder Cancer Advocacy Network (BCAN)
The first national advocacy organization dedicated to improving public awareness of bladder cancer, and increasing research directed towards the diagnosis, treatment and cure of the disease. Founded in May 2005, BCAN is a cooperative effort among bladder cancer survivors, their families, caregivers, and the medical community. One of their goals is that no one should ever have to feel alone when dealing with bladder cancer. 301.215.9099 or 888.901.BCAN (2226)
Urology Care Foundation
The Urology Care Foundation is the world's leading nonprofit urological health foundation, and the official foundation of the American Urological Association. Partnering with physicians, researchers, healthcare professionals, patients, caregivers, families and the public, the Foundation supports and improves urologic clinical care by funding research, developing patient education and pursuing philanthropic support.
Brain Tumor
American Brain Tumor Association
A non-profit organization dedicated to eliminating brain tumors by funding and encouraging research. Provides educational materials and information to patients, their families, and medical professionals. 800.886.ABTA (2282)
National Brain Tumor Society
A non-profit organization that provides leadership within the brain tumor community and strives to improve the quality of life for those affected by brain tumors. NBTS provides educational materials and information to patients, their families, and medical professionals. 617.924.9997
Breast Cancer
After Breast Cancer Diagnosis (ABCD)
ABCD provides free, personalized information and one-to-one support to people affected by breast cancer – patients, families and friends. ABCD complements the work of healthcare providers by providing the following breast cancer support services: One-to-One mentoring breast cancer support service, a Breast Cancer Helpline and Resource List, and MORE: Mentor Outreach and Education program. Breast Cancer Helpline: 800.977.4121
Breast Cancer Alliance
Founded in 1996, Breast Cancer Alliance has become one of the most prominent breast cancer organizations in the U.S. Its mission is to improve survival rates and quality of life through better prevention, early detection, treatment and cure. To promote those goals, the Greenwich, Connecticut-based organization provides seed money, scientific venture capital, for leading-edge breast cancer research programs that have not yet qualified for federal grants. It also funds post-graduate fellowships in breast surgery and allocates approximately 20% of its funding annually to support access to breast health care for underserved women. www.breastcanceralliance.org
Breast Cancer Research Foundation (BCRF)
An independent 501(c)(3) not-for-profit organization whose mission is to achieve prevention and a cure for breast cancer by providing critical funding for innovative clinical and genetic research at leading medical centers worldwide, and increasing public awareness about good breast health. 646.497.2600 or 866.FIND-A-CURE(866.346.3228)
Breastcancer.org
A non-profit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer. They help women and their loved ones make sense of the complex medical and personal information about breast cancer, so they can make the best decisions for their lives.
Brem Foundation
The Brem Foundation maximizes women's chances of finding early, curable breast cancer through education, access, and advocacy. www.bremfoundation.org
DiepCjourney Foundation
DiepCjourney Foundation is a non-profit 501(c)3 organization providing education and resources to empower women and men to make an informed decision about options for breast reconstruction after a mastectomy. Resources provided by the Foundation include educating patients about the process of breast reconstruction from exploring options, planning surgery, and support throughout the healing process. We are a global community connecting patients to highly skilled, board certified plastic surgeons via online support and personalized counsel. We provide an educational YouTube channel with a variety of topics and interviews with plastic surgeons, patients, physical therapist, decorative tattoo artists and financial advisement for breast reconstruction.
Facing Our Risk of Cancer Empowered (FORCE)
A national nonprofit providing support, education and awareness to help those facing hereditary breast, ovarian and related cancers—such as uterine, prostate and pancreatic—know their healthcare options and make informed decisions. The organization is the de facto leader in guiding critical research and policy issues that impact the hereditary cancer community. 866.288.RISK.
Inflammatory Breast Cancer Research Foundation
A web-based organization dedicated to researching the cause of Inflammatory Breast Cancer (IBC), an advanced and accelerated form of breast cancer usually not detected by mammograms or ultrasounds. They provide e-mail discussion lists, an e-newsletter, volunteers who answer questions submitted to the website, articles, research information, videos, presentations, and inspirational stories on IBC.
Living Beyond Breast Cancer (LBBC)
Founded in 1991, Living Beyond Breast Cancer is a Charity Navigator 4-star rated nonprofit organization whose mission is to connect people to trusted information and a community of support. LBBC delivers free programs and resources to those diagnosed with breast cancer and their caregivers online, in print, by phone and in person. 855.807.6386. Breast Cancer Helpline: 888.753.LBBC (5222)
Metastatic Breast Cancer Network (MBCN)
The Metastatic Breast Cancer Network (MBCN) is a national, volunteer, non-profit, patient-led advocacy organization solely dedicated to the unique concerns of women and men living with metastatic breast cancer. MBCN seeks to educate patients, provide information about the disease at its website (mbcn.org) and empower patients and caregivers to use their story and voice to advocate for focused research to lengthen lives. 888 500-0370
National Breast Cancer Coalition
A grassroots advocacy organization consisting of more than 500 organizations and over 60,000 individuals from across the United States, dedicated to fighting breast cancer. Informs, trains, and directs patients and supporters in knowledgeable and effective advocacy efforts. 800.622.2838 or 202.296.7477
Sharsheret
Sharsheret supports young Jewish women and families facing breast cancer at every stage—before, during, and after diagnosis. We help women and families connect to our community in the way that feels most comfortable, taking into consideration their stage of life, diagnosis, or treatment, as well as their connection to Judaism. We also provide educational resources, offer specialized support to those facing ovarian cancer or at high risk of developing cancer, and create programs for women and families to improve their quality of life. We understand that young Jewish women have unique concerns when it comes to breast and ovarian cancer, and we are the only organization that specializes in serving them. Learn more about our services and programs at www.sharsheret.org.
Sisters Network, Inc.
A non-profit African-American breast cancer survivors’ organization. It promotes the importance of breast health through personal empowerment, support, breast education programs, resources, information, and research through its strong affiliate chapter base. 713.781.0255 or 866.781.1808
Susan G. Komen®
Susan G. Komen is the world’s largest breast cancer organization, funding more breast cancer research than any other nonprofit while providing real-time help to those facing the disease. Since its founding in 1982, Komen has funded more than $889 million in research and provided $1.95 billion in funding to screening, education, treatment and psychosocial support programs serving millions of people in more than 30 countries worldwide. Komen was founded by Nancy G. Brinker, who promised her sister, Susan G. Komen, that she would end the disease that claimed Suzy’s life. Visit komen.org or call 1-877 GO KOMEN (1-877 465-6636). Connect with us on social at ww5.komen.org/social.
Unite for HER
Our mission is to enrich the health and well-being of those diagnosed with breast and ovarian cancers – for life – by funding and delivering integrative therapies. OUR VISION is for every person with breast and ovarian cancers to feel the support of a loving community, and will have access to comprehensive education, services, and tools that enrich their health and well-being. uniteforher.org
Young Survival Coalition (YSC)
The only international, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. The YSC also serves as a point of contact for young women living with breast cancer. 646.257.3000 or 877. 972.1011
Carcinoid Cancer/Neuroendocrine Tumors
Carcinoid Cancer Foundation, Inc.
The mission of this foundation is to conduct, encourage and support research and to educate the general public and health care professionals regarding carcinoid and related neuroendocrine tumors. 888.722.3132
Chronic Lymphocytic Leukemia
CLL Society Inc. (CLLS)
The CLL Society is a patient–centric, physician–curated nonprofit organization focused on patient education, support and research dedicated to addressing the unmet needs of the CLL (chronic lymphocytic leukemia) community.
Colon Cancers
Colorectal Cancer Alliance
A non-profit organization of colon and rectal cancer survivors, their families, and the medical community. Dedicated to championing prevention, funding cutting-edge research and providing the highest quality patient support services. Toll free Helpline: 877.422.2030
Fight Colorectal Cancer
Fight Colorectal Cancer (Fight CRC) is a leading national colorectal cancer nonprofit. Through patient education, advocacy, research and awareness, the group demands a cure for the second-leading killer in the United States and envisions victory over colorectal cancer. Fight CRC provides patients with up-to-date, reliable information on how to fight colon and rectal cancer and trains research advocates who get involved in the research process. As the leading colorectal cancer advocacy group, Fight CRC serves as a resource for patients, grassroots advocates, policy makers, medical professionals and health care providers. Learn more at http://www.FightColorectalCancer.org or Facebook.com/FightCRC.
Love Your Buns
Love Your Buns is committed to educating and empowering patients, caregivers, and family with the information they need to make important colorectal cancer therapy decisions, and providing survivorship support after treatment to improve their quality of life. We are honored to endorse these extensive resources. loveyourbuns.org
Esophageal Cancer
Esophageal Cancer Action Network (ECAN)
The Esophageal Cancer Action Network works toward the day when nobody has to die of Esophageal Cancer. ECAN's mission is to save lives by increasing awareness about the link between reflux disease and cancer, promoting early detection, advocating for medical innovation to prevent, detect, treat and cure Esophageal Cancer, and connecting patients and families with compassionate support. A national non-profit, ECAN's Board includes top physicians, business leaders, patients and families who have been affected by Esophageal Cancer. Among its successes is advocacy resulting in the inclusion of EC in NCI's genome mapping project. Find out more at www.ecan.org
Esophageal Cancer Awareness Association (ECAA)
ECAA is a 501(c)(3) all-volunteer non-profit organization with four mission goals: to raise public and professional awareness of esophageal cancer; to educate the public regarding the risks and symptoms of EC; to contribute to research into detection, treatment, and cure; and to provide personal support to patients, caregivers, and loved ones. 1.800.601.0613
Esophageal Cancer Education Foundation
ECEF’s mission is to bring awareness and educate the public and medical community about Esophageal Cancer and to walk the journey with patients who have this disease and to support research projects dealing with Esophageal Cancer. ECEF has developed an array of services that can assist the patient and caregiver through the esophageal cancer journey. 732.385.7461
Gynecologic Cancers
Endometrial Cancer Action Network for African-Americans (ECANA)
We are a group of women who have come together to create support, community, and empowerment for any African-American woman affected by endometrial cancer. We are patients, doctors, survivors, community advocates, and professional leaders all committed to one purpose - improving the lives of Black women affected by this disease by building community, sharing accessible education, and setting a new standard of research for endometrial cancer.
Facing Our Risk of Cancer Empowered (FORCE)
A national nonprofit providing support, education and awareness to help those facing hereditary breast, ovarian and related cancers—such as uterine, prostate and pancreatic—know their healthcare options and make informed decisions. The organization is the de facto leader in guiding critical research and policy issues that impact the hereditary cancer community. 866.288.RISK
Foundation for Women's Cancer
The Foundation for Women's Cancer raises public awareness of ways to prevent, detect and optimally treat gynecologic cancers; provides education about gynecologic cancers and the importance of seeking care first from a gynecologic oncologist if a gynecologic cancer is suspected or diagnosed; and supports promising, innovative gynecologic cancer research.
National Cervical Cancer Coalition
An advocacy group dedicated to educating the public about cervical cancer prevention and outreach, new screening and treatment options, cervical cancer screening and follow-up programs, HPV, the limitations of the Pap smear AND its overwhelming success as a screening tool for clinicians. 800.685.5531
National Ovarian Cancer Coalition
For more than 25 years, the National Ovarian Cancer Coalition® has been committed to raising awareness of ovarian cancer in communities across the country and to providing education, support and hope for women with ovarian cancer and for their families. For more information or to find a support chapter near you, please visit www.ovarian.org, call 888.OVARIAN, or connect with us on social media.
Ovarian Cancer National Alliance
As an organization that advocates to ensure that every patient with ovarian cancer has the same access to the standard of care, the Ovarian Cancer National Alliance is proud to support this resource for patients and their families that helps them navigate treatment choices. 202.331.1332 or Toll Free: 866.399.6262
Patient Access Network (PAN) Foundation
(866.316.7263)PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic, and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000 patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.
Sharsheret
Sharsheret supports young Jewish women and families facing breast cancer at every stage—before, during, and after diagnosis. We help women and families connect to our community in the way that feels most comfortable, taking into consideration their stage of life, diagnosis, or treatment, as well as their connection to Judaism. We also provide educational resources, offer specialized support to those facing ovarian cancer or at high risk of developing cancer, and create programs for women and families to improve their quality of life. We understand that young Jewish women have unique concerns when it comes to breast and ovarian cancer, and we are the only organization that specializes in serving them. Learn more about our services and programs at www.sharsheret.org.
Society of Gynecologic Oncology
The Society of Gynecologic Oncology (SGO) is the premier medical specialty society for health care professionals trained in the comprehensive management of gynecologic cancers. SGO promotes excellence in the care of women at risk for or affected by gynecologic cancer through advocacy, education, research and inter-disciplinary collaboration.
Unite for HER
Our mission is to enrich the health and well-being of those diagnosed with breast and ovarian cancers – for life – by funding and delivering integrative therapies. OUR VISION is for every person with breast and ovarian cancers to feel the support of a loving community, and will have access to comprehensive education, services, and tools that enrich their health and well-being. uniteforher.org
Head and Neck Cancer
Head and Neck Cancer Alliance
HNCA’s mission is to advance prevention, detection, treatment and rehabilitation of oral, head and neck cancer through public awareness, research, advocacy and survivorship. HNCA’s programs include peer-to-peer mentorship, online support community, educational information, Awareness Week, survivorship resources, an Ambassador program, and more.Visit headandneck.org or call 866.792.HNCA (4622) for more information
Head and Neck Cancer Fund
The HNC Fund facilitates comprehensive financial support for the well-being of one Head and Neck Cancer patient a year. hncfund.org
Oral Cancer Foundation
A non-profit advocacy organization that seeks to increase public and professional awareness of oral cancers. They promote lifestyle changes, early detection initiatives, education, improved treatment modalities, and provide a survivor/patient forum for the support of those patients and their families currently fighting the disease. 949.723.4400 oralcancerfoundation.org
Support for People with Oral and Head and Neck Cancer (SPOHNC)
A non-profit organization involved in the development of programs of support. As such it can have an enormous positive impact on meeting the psychosocial needs of patients as well as preserving, restoring and promoting physical and emotional health. SPOHNC is dedicated to raising awareness and meeting the needs of oral and head and neck cancer patients through its resources and publications. Visit SPOHNC at spohnc.org to become empowered with the essential programs and resources. Together We Heal!
The THANC Foundation
The THANC (Thyroid, Head and Neck Cancer) Foundation was founded in 2003 and is committed to supporting research and education in the early detection and treatment of thyroid and head and neck cancer, to advancing new therapies, and to alleviating the suffering and functional impairment of patients who undergo treatment. The THANC guide (thancguide.org) provides valuable information to patients and caregivers through every phase of the cancer journey. 212.844.6832
Kidney Cancer
Kidney Cancer Association (KCA)
KCA is a national non-profit membership organization made up of patients, family members, physicians, researchers, and other health professionals which offers a broad range of services, including advocacy on behalf of patients, support of both public and private research, information, and education. 800.850.9132
Urology Care Foundation
The Urology Care Foundation is the world's leading nonprofit urological health foundation, and the official foundation of the American Urological Association. Partnering with physicians, researchers, healthcare professionals, patients, caregivers, families and the public, the Foundation supports and improves urologic clinical care by funding research, developing patient education and pursuing philanthropic support.
Leukemia and Lymphoma
Aplastic Anemia and MDS International Foundation (AAMDSIF)
The Aplastic Anemia and MDS International Foundation supports, connects and educates patients, caregivers and health professionals on bone marrow failure diseases worldwide. It promotes and invests in collaborative clinical research to accelerate the discovery of better treatments and cures for aplastic anemia, MDS, PNH and related bone marrow failure diseases. Patient Information: 301.279.7202 or toll free 800.747.2820.
International Waldenstrom's Macroglobulinemia Foundation
The International Waldenstrom's Macroglobulinemia Foundation (IWMF) is a patient-founded and volunteer-led nonprofit organization that is dedicated to a simple but compelling vision: Support everyone affected by Waldenstrom's macroglobulinemia (WM) while advancing the search for a cure. To accomplish this vision, the IWMF offers Information from our website, www.iwmf.com, and our publications written in a patient-friendly way to promote understanding of our rare disease: Education at our annual Educational Forum to help patients and caregivers learn about our disease from WM researchers and clinicians; On-going updates about WM and the IWMF sent through our quarterly Torch newsletter and our NEWS releases; Peer support from others who've been where you are; Information for medical professionals who may have limited experience with our rare disease; and Research directed to better treatments while we search for a cure. Visit www.iwmf.com for more information.
The Leukemia & Lymphoma Society (LLS)
LSS assists blood cancer patients in navigating the best route from diagnosis through treatment, clinical trials and survivorship. 800.955.4572 / infocenter@LLS.org.
Leukemia Research Foundation
The Leukemia Research Foundation is dedicated to conquering all blood cancers by funding research into their causes and cures, and enriching the quality of life of those touched by these diseases. 847-424-0600 or 888-558-5385
Lymphoma Research Foundation
LRF creates, promotes, and supports lymphoma research and provides comprehensive educational and supportive programs for lymphoma patients and their families. 800.500.9976
MPN Cancer Connection
MPN Cancer Connection provides patient education, self-advocacy resources and support services for people with MPNs.
MPN Education Foundation
The MPN Education Foundation is the only all-volunteer, charitable organization that has been devoted to education of myeloproliferative neoplasm patients for 20 years. Access our archives, and join 3,000 fellow patients with the MPN-NET link on this page: mpninfo.org
MPN Research Foundation
The mission of the MPN Research Foundation is to stimulate original research in pursuit of new treatments -- and eventually a cure -- for the blood cancers polycythemia vera, essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms (MPN). Through a combination of research funding, advocacy and education, we bring together patients, researchers and clinicians around the common goal of realizing new treatment options and ultimately, a cure for MPNs. In 2017 MPNRF launched myMPN, a registry for people living with PV, ET and MF. This is a tool that allows patients to record information about their diagnosis, symptoms, demographics, disease change and more in real time and allow that information be used for research purposes. We are committed to the MPNs for the long haul.
Patient Access Network (PAN) Foundation
(866.316.7263)PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic, and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000 patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.
Liver Cancer
Blue Faery: The Adrienne Wilson Liver Cancer Association
Blue Faery's mission is to prevent, treat and cure primary liver cancer, specifically Hepatocellular Carcinoma (HCC), through research, education and advocacy. Founder Andrea Wilson started Blue Faery after her younger sister Adrienne (whom Andrea raised from the age of eight) died from HCC when she was 15 years old. Adrienne was only ill 147 days. For more information, go to bluefaery.org.
Global Liver Institute
A patient-driven nonprofit organization based in Washington, DC, dedicated to improving the lives of individuals, families, and communities impacted by liver diseases by promoting innovation, modelling collaboration, and scaling optimal approaches to eradicating liver diseases. GLI works to improve the effectiveness of liver cancer organizations and advocates around the world through Advanced Advocacy Academy (A3), advises on liver cancer clinical and health systems research, and ensures that the voices and interests of liver cancer patients are included in policy. globalliver.org
American Liver Foundation
(ALF)'s mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease. ALF makes a measurable difference in the fight against liver disease by providing research awards for medical research, education programs for medical professionals, and education programs and information, support services, and advocacy for patients and their families. The American Liver Foundation has 16 Divisions across the United States, serving individuals from all 50 states. 800.GO.LIVER (800.465.4837) liverfoundation.org
The Bili Project Foundation
Mission statement - Reduce the INCIDENCE and IMPROVE THE OUTCOMES of Hepatobiliary cancers by funding research to identify early detection methods and curative treatments for cancers of the bile duct, liver and gallbladder. thebiliproject.org
Lung Cancer
ALK Positive
ALK Positive is the largest online support group for patients, caregivers, family and friends of those diagnosed with ALK-positive lung cancer; representing over 40 countries. Our commitment is to provide hope and help those diagnosed obtain information, support and empathy. We believe that facing this disease as a community improves patient outcomes. Most importantly, we are determined to be active participants in helping medical science improve treatment options, advance research and raise awareness for ALK-positive lung cancer. Visit http://www.alkpositive.org for more information.
The American Lung Association (ALA)
The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through research, education and advocacy. The Lung Association is committed to defeating lung cancer and supporting those affected by it. Through our strategic cause initiative, LUNG FORCE, we stand together to increase lung cancer awareness, promote research to beat this terrible disease, and advocate for critical funding and fight for the lives of those affected by lung cancer. Your voice and support can help us make a difference. Lung.org/lungforce
Bonnie J. Addario Lung Cancer Foundation
The Bonnie J. Addario Lung Cancer Foundation (ALCF) is the largest global patient-founded, patient-focused, and patient-driven non-profit devoted exclusively to eradicating Lung Cancer. Through funding innovative research, patient education, and awareness the Foundation's goal is to turn lung cancer into a chronically managed disease by 2023. The Foundation works with a diverse group of physicians, organizations, industry partners, individuals, patients, survivors, and their families to identify solutions and make timely and meaningful changes. The ALCF was established on March 1, 2006 as a 501c(3) non-profit organization and has raised nearly $30 million for lung cancer research and related programs. lungcancerfoundation.org
Caring Ambassadors
Caring Ambassadors Program mission is to help improve the lives of those affected by lung cancer through advocacy, information, and support. Our primary goal is to help individuals with lung cancer to become ambassadors for their own health. For more information go to www.LungCancerCAP.org or contact Cindy Langhorme at 503-632-9032 Ext 1.
Clifton F. Mountain Foundation for Education and Research in Lung Cancer
The Clifton F. Mountain Foundation for Education and Research in Lung Cancer was created approximately 30 years ago by Clifton F. Mountain, MD, who developed the International System for the Staging of Lung Cancer while at M.D. Anderson Cancer Center in Houston, Texas. The Foundation’s primary function has been to educate physicians about application of the Staging System to lung cancer patients, and to emphasize that early detection of lung cancer is key to the best outcomes possible. The Foundation has created and distributed (worldwide) handbooks for physicians’ pockets, as a practical aid to proper staging. The Foundation has a current interest in educating primary care providers to keep lung cancer in their differential diagnoses. As President, Merel Mountain Nissenberg participates as the Advocate for the M.D. Anderson Lung Cancer SPORE; serves on the Lung Cancer Collaborative Group of the Early Detection Network of NCI; and is a participant in LungCAN.
Dusty Joy Foundation
With patients' best interest at heart, NCCN defines the standard of care for patients and physicians through proven scientific methods and expectations for new discoveries leading to improved patient outcomes. As a lung cancer advocacy nonprofit, our organization wholeheartedly supports NCCN Guidelines for Patients. LiveLung.org
Free ME from Lung Cancer
Free ME from Lung Cancer provides early lung cancer screening for uninsured patients, help single family low income home owners get access to radon air abatement systems and fund research.
Lung Cancer Alliance
Lung Cancer Alliance is the leading nonprofit organization solely dedicated to saving lives and advancing research by empowering those living with and at risk for lung cancer. We provide live, professional support, referral and information services free of charge for patients and their loved ones to improve outcomes; conduct national awareness campaigns to reduce stigma, and educate about the disease, risk and life-saving early detection; advocate for multiple millions in federal research funding to increase treatment options leading to cures; and improve access to care for all those impacted.800.298.2436 (U.S. only); 202.463.2080
Lung Cancer Circle of Hope
Lung Cancer Circle of Hope (LCCH) is an educational nonprofit committed to providing comprehensive, state of the art information about lung cancer. With early detection and increased therapeutic options, it is our goal to reduce the current statistics associated with this cancer. lungcancercircleofhope.org. POB 7092, Rochelle Park, NJ 07662
Lung Cancer Initiative of NC
As the state's leading non-profit organization supporting lung cancer research and education, Lung Cancer Initiative of North Carolina specializes in connecting patients, survivors and loved ones with the medical and research community. Our mission is to save lives and provide support to those affected by lung cancer through research, awareness, education and access programs across North Carolina. lungcancerinitiativenc.org
Lung Cancer Online
A website, maintained by the Lung Cancer Alliance, devoted to education and support of lung cancer patients and their families.
Lung Cancer Research Foundation
The Lung Cancer Research Foundation is the pre-eminent national nonprofit focused on funding innovative, high-reward research with the potential to extend survival and improve quality of life for people with lung cancer. The organization's mission is to improve lung cancer outcomes by funding research for the prevention, diagnosis, treatment and cure of lung cancer.
To date, the Lung Cancer Research Foundation has provided 342 grants, totaling nearly $34 million to institutions around the world for critical lung cancer research. In addition to funding lung cancer research, the organization focuses on lung cancer awareness and education programs. The Foundation will also host over 50 public events nationwide through the Free to Breathe Event Series.
LUNGevity Foundation
LUNGevity provides an active community for patients and survivors—and those who help them live longer and better lives. Comprehensive resources include a medically vetted and patient-centric website, a toll-free HELPLine for support, the International Lung Cancer Survivorship Conference, and an easy-to-use Clinical Trial Finder, among other tools. All of these programs are to achieve our vision—a world where no one dies of lung cancer.
Melanoma/Skin Cancer
AIM at Melanoma
AIM at Melanoma is the largest international melanoma foundation globally engaged and locally invested in advancing the battle against melanoma through innovative research, legislative reform, education, and patient and caregiver support. AIM's website provides many resources which include: a "Nurse on Call" hotline, a discussion on each FDA approved drug, breaking news, and a clinical trials matching service. Nurse on Call Service: 877.AIM.2MEL (877.246.2635)
American Academy of Dermatology
A professional organization representative of all dermatologic associations. With a membership of more than 13,700, it represents virtually all practicing dermatologists in the United States. Includes resource pages for various skin diseases including melanoma. 847.330.0230
Melanoma International Foundation (MIF)
MIF develops personalized strategies with patients so they may live longer, better lives. Their Vision is a future where top-notch melanoma treatment is accessible to all patients globally. Toll-free Helpline: 866-463-6663; Global: 610-942-3434. Moderated forum: www.melanomaforum.org
Melanoma Research Alliance
The mission of the Melanoma Research Alliance is to end suffering and death due to melanoma by collaborating with all stakeholders to accelerate powerful research, advance cures for all patients, and prevent more melanomas.
Melanoma Research Foundation (MRF)
MRF supports medical research for finding effective treatments and eventually a cure for melanoma. It educates patients and physicians about the prevention, diagnosis and treatment of melanoma and acts as an advocate for the melanoma community to raise the awareness of this disease and the need for a cure. Patient Helpline: 877.MRF.6460 (877.673.6460); 800.673.1290
Merkel Cell Carcinoma Seattle Support Group
Located in Seattle, WA, this flexible, open discussion group is for anyone touched by MCC (patients, spouses, family and friends) from the Seattle area and out of state. This is an informal opportunity to meet others coping with MCC, share stories and information, answer questions and provide support. We have first-hand knowledge and experience to share about treatments, clinical research trials and coping with MCC.
Patient Access Network (PAN) Foundation
(866.316.7263)
PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic,
and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000
patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.
Save Your Skin Foundation (SYSF)
Save Your Skin Foundation is a national patient-led not-for-profit group dedicated to fighting against non-melanoma skin cancers, melanoma and ocular melanoma through nationwide education, advocacy, and awareness initiatives. Save Your Skin Foundation is committed to playing an active role in reducing the incidence of skin cancer in Canada, and ensuring equal, timely, and affordable access to best care and compassionate support for all Canadians living with skin cancers, wherever they are in their journey.
Skin Cancer Education & Research Foundation
The goal of the Skin Cancer Education and Research Foundation is to educate and support people concerned about or diagnosed with skin cancer and those who care for them through education, community-building, advocacy, and research to achieve the best care and outcomes possible.
Skin Cancer Foundation
The mission of The Skin Cancer Foundation is to reduce the incidence of skin cancer through the promotion of prevention, early detection, and effective treatment. 800.SKIN.490 (800.754.6490) or 212.725.5176
Mesothelioma
Mesothelioma Applied Research Foundation
The Mesothelioma Applied Research Foundation is the national nonprofit organization dedicated to finding a cure and eradicating mesothelioma as a life-ending disease by:
- Funding the highest quality and most promising mesothelioma research projects from around the world through our rigorous peer-reviewed process;
- Helping mesothelioma patients connect with national mesothelioma experts and obtain the most up-to-date information on treatment options;
- Advocating in Washington D.C. for government mesothelioma research funding to stop this national tragedy.
To date, the Foundation has funded over $9.4 million in mesothelioma research. To contact, visit www.curemeso.org or call (877) End-Meso, (877) 363-6376.
Myelodysplastic Syndromes
Aplastic Anemia and MDS International Foundation (AAMDSIF)
The Aplastic Anemia and MDS International Foundation supports, connects and educates patients, caregivers and health professionals on bone marrow failure diseases worldwide. It promotes and invests in collaborative clinical research to accelerate the discovery of better treatments and cures for aplastic anemia, MDS, PNH and related bone marrow failure diseases. Patient Information: 301.279.7202 or toll free 800.747.2820.
The MDS Foundation
The MDS Foundation, Inc. (MDSF) is an international organization devoted to the support and education of patients and healthcare providers in the fields of MDS and related myeloid neoplasms in order to accelerate progress leading to the control and cure of these diseases. MDSF was established in 1994 by world-renowned researchers. By building an international community of physicians, researchers, and patients, we will make potentially curative therapies available for all patients with MDS.
Myeloma
Multiple Myeloma Research Foundation (MMRF)
The Multiple Myeloma Research Foundation (MMRF) drives discoveries for new treatments, accelerates groundbreaking clinical trials and fuels the most robust data-driven initiatives in cancer research. Our goal is to find a cure for each and every patient diagnosed with multiple myeloma. www.themmrf.org
Myeloproliferative Neoplasms
The Leukemia & Lymphoma Society
LSS assists blood cancer patients in navigating the best route from diagnosis through treatment, clinical trials and survivorship. 800.955.4572 / infocenter@LLS.org.
MPN Cancer Connection
MPN Cancer Connection (MPN-CC) is a 501(c)(3) non-profit corporation. MPN-CC recognizes MPN patients are in fact "cancer patients" and should have full access to programs, benefits and resources available in your area. We believe that patient advocacy is more than a support mechanism, it is an important part of pushing forward new medicines and ultimately a cure. MPN-CC provides an extensive Resource page to help patients meet financial challenges with assistance on co-pays, medication assistance, airfare, federal benefits and reliable MPN websites to research their illness. Ultimately, we are here to help patients and guide them to the appropriate resources.
MPN Education Foundation
The MPN Education Foundation is the only all-volunteer, charitable organization that has been devoted to education of myeloproliferative neoplasm patients for 20 years. Access our archives, and join 3,000 fellow patients with the MPN-NET link on this page: mpninfo.org
MPN Research Foundation
The mission of the MPN Research Foundation is to stimulate original research in pursuit of new treatments -- and eventually a cure -- for the blood cancers polycythemia vera, essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms (MPN). Through a combination of research funding, advocacy and education, we bring together patients, researchers and clinicians around the common goal of realizing new treatment options and ultimately, a cure for MPNs. In 2017 MPNRF launched myMPN, a registry for people living with PV, ET and MF. This is a tool that allows patients to record information about their diagnosis, symptoms, demographics, disease change and more in real time and allow that information be used for research purposes. We are committed to the MPNs for the long haul.
Neuroendocrine Tumors
Neuroendocrine Cancer Awareness Network (NCAN)
The Neuroendocrine Cancer Awareness Network (NCAN) is a non-profit organization dedicated to raising awareness of Neuroendocrine Cancer, providing support for caregivers and people with NETs, and funding for NET cancer research. Since 2003, it has been our mission, or as we like to say, our passion, to educate and support the NET community as a whole.
Our passion pays off! Thanks to the community of NET patients and caregivers that we serve, NCAN has once again been awarded top rated nonprofit organization status by greatnonprofits.org. It's an award bestowed upon us by the community, and we're proud to say that we've been honored with this award every year since 2011. This status helps bring even more credibility to our organization, which in turn helps donors and volunteers feel more confident in their choice to support us.
In addition to the NET hotline and the thousands of information packets that have been sent to patients and caregivers, the NCAN organization has produced over 60 conferences around the country.
866.850.9555; info@netcancerawareness.org.
Neuroendocrine Tumor Research Foundation (NETRF)
Neuroendocrine Tumor Research Foundation (NETRF) is the leading private funder of research to discover cures and more effective treatments for neuroendocrine cancer and offers many resources to help patients and families facing neuroendocrine cancer:
- Regional patient and caregiver educational conferences
- NET doctor database
- Regional NET support group listings
- Info on different types of NETs
- Online library of videos explaining NET treatment options
- NET research updates
- Self-care and survivorship tips
NETRF is committed to improving the lives of patients and families affected by this uncommon and often overlooked disease.
617.946.1780
NorCal CarciNET Community
Our mission is to help those with neuroendocrine tumors and carcinoid to share challenges and experiences, learn about prognosis and treatments, find information, and improve communications between the medical community, patients and caregivers. We host monthly support meetings and have an extensive collection of educational videos on our site.
The Carcinoid Cancer Foundation, Inc.
The Carcinoid Cancer Foundation is the oldest nonprofit carcinoid/and related neuroendocrine tumor organization in the United States, founded in 1968. The mission of our foundation is to increase awareness and educate the general public and healthcare professionals regarding carcinoid and related neuroendocrine tumors (NETs), to support NET patients and their families, and to serve as patient advocates. We will have achieved our mission when everyone, worldwide, is aware of neuroendocrine cancer; until then, our work is not done.
888.722.3132
The Healing NET Foundation
The Healing NET Foundation mission is to optimize care for those with neuroendocrine cancer. Optimal care happens when the physician and patient work together using the best information available, when a multidisciplinary medical team coordinates care, and when experts imagine a better future of care. Physicians and health care providers need education in this complex and varied cancer and access to the latest diagnostic and treatment options; patients and their caregivers need information that helps them find the best care and advocate effectively for themselves and their loved ones. Co-founded in 2013 by a physician and a patient, Healing NET is a 501(c)(3) established to raise awareness, provide resources, and bring people together to solve problems.
615.369.6463
Ovarian Cancers
Facing Our Risk of Cancer Empowered (FORCE)
A national nonprofit providing support, education and awareness to help those facing hereditary breast, ovarian and related cancers—such as uterine, prostate and pancreatic—know their healthcare options and make informed decisions. The organization is the de facto leader in guiding critical research and policy issues that impact the hereditary cancer community. 866.288.RISK
Foundation for Women's Cancer
The Foundation for Women's Cancer raises public awareness of ways to prevent, detect and optimally treat gynecologic cancers; provides education about gynecologic cancers and the importance of seeking care first from a gynecologic oncologist if a gynecologic cancer is suspected or diagnosed; and supports promising, innovative gynecologic cancer research.
National Ovarian Cancer Coalition
For more than 25 years, the National Ovarian Cancer Coalition® has been committed to raising awareness of ovarian cancer in communities across the country and to providing education, support and hope for women with ovarian cancer and for their families. For more information or to find a support chapter near you, please visit www.ovarian.org, call 888.OVARIAN, or connect with us on social media.
NormaLeah Ovarian Cancer Initiative
Women with ovarian cancer have very special needs. As the nation’s largest volunteer-led organization providing patient education and support, NormaLeah Ovarian Cancer Initiative relies heavily on the NCCN Guidelines for Patients®: Ovarian Cancer. This guide should be used by all women who have been told “you have ovarian cancer”. It is a resource that empowers women to partner with their healthcare providers and helps patients advocate for proper care for better health outcomes. normaleah.org
Ovarcome
Every hour, over 28 women get diagnosed with ovarian cancer worldwide. This deadliest gynecologic cancer has no reliable screening yet. The NCCN Guidelines for women with ovarian cancer is a strong resource, for patients as well as families
and caregivers. Talking about ovarian cancer, giving this disease a much needed voice by raising global awareness, and providing our Ovarcomers with financial & psycho-social assistance, are integral to our mission. We thank NCCN
for providing valuable guidance and bringing resourceful information to the global ovarian cancer community. ovarcome.org
Ovarian Cancer Research Fund Alliance (OCRFA)
Ovarian Cancer Research Fund Alliance (OCRFA) is the largest global organization dedicated to advancing ovarian cancer research while supporting women and their families. As the voice for ovarian cancer, OCRFA funds private research, advocates for increased federal research and awareness dollars and furthers policies that give women access to the services they need, as well as supports women and their families before, during and after a diagnosis.
Patient Access Network (PAN) Foundation
(866.316.7263)
PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic,
and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000
patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.
Sharsheret
Sharsheret supports young Jewish women and families facing breast cancer at every stage—before, during, and after diagnosis. We help women and families connect to our community in the way that feels most comfortable, taking into consideration their stage of life, diagnosis, or treatment, as well as their connection to Judaism. We also provide educational resources, offer specialized support to those facing ovarian cancer or at high risk of developing cancer, and create programs for women and families to improve their quality of life. We understand that young Jewish women have unique concerns when it comes to breast and ovarian cancer, and we are the only organization that specializes in serving them. Learn more about our services and programs at www.sharsheret.org.
Society of Gynecologic Oncology
The Society of Gynecologic Oncology (SGO) is the premier medical specialty society for health care professionals trained in the comprehensive management of gynecologic cancers. SGO promotes excellence in the care of women at risk for or affected by gynecologic cancer through advocacy, education, research and inter-disciplinary collaboration.
Pancreatic Cancer
Cure Pancreatic Cancer: The Lustgarten Foundation
The mission of The Lustgarten Foundation is to advance the scientific and medical research related to the diagnosis, treatment, cure and prevention of pancreatic cancer. Toll Free: 866.789.1000 or 516.803.2304
Hirshberg Foundation for Pancreatic Cancer Research
The Hirshberg Foundation for Pancreatic Cancer Research is focused on finding a cure for pancreatic cancer, and empowering the patients and families whose lives are touched by this disease. Founded in 1997, the foundation funds groundbreaking scientific research, provides patient education and support, and sustains hope that this cancer will be eradicated once and for all. pancreatic.org
Pancreatica.org
The purpose of this site is to serve as a worldwide gathering point on the internet for the latest news in regards to clinical trials and other responsible medical care in the treatment of pancreatic cancer. Additionally, their aim is to present impartial knowledge about pancreatic cancer where interested parties can sort through a large amount of information efficiently in order to give a sense of the range of existing treatment options, to aid patient/doctor partnerships, and thus to help optimize personal treatment strategies. Speak with a Counselor: 800.525.3777; Speak with a Survivor: 800.433.0464Pancreatic Cancer Action Network (PanCAN)
The Pancreatic Cancer Action Network (PanCAN) works to focus national attention on the need to find the cure for pancreatic cancer. PanCAN provides public and professional education that embraces the urgent need for more research, effective treatments, prevention programs, and early detection methods. PanCAN is the first national patient-based advocacy organization specifically focused on pancreatic cancer. Toll Free: 877.272.6226 or 310.725.0025Prostate Cancer
California Prostate Cancer Coalition
CPCC provides educational meetings and materials and support group leadership services throughout the state.
Malecare Cancer Support
Malecare is America's leading prostate cancer support and information network. Online and in-person groups help thousands of Americans fight prostate cancer, every day. Download the Cancergraph app (iTunes &Android) to track your symptoms and stay in touch with your doctor.
National Alliance of State Prostate Cancer Coalitions (NASPCC)
NASPCC is an umbrella non-profit serving prostate cancer patients and families across the country. We publish PROSTATEPEDIA Magazine and the weekly PROSTATEPEDIA DIGEST; put on eucational, free Webinars; publish Laminates on topics in prostate cancer; and hold an Annual Meeting.
PCaAware
The National Prostate Cancer Awareness Foundation Inc. (PCaAWARE) is the only national non-profit corporation whose single mission is to educate men and the women in their lives on the critical need for men to be pro-active when it comes to the need for an annual prostate cancer screening. At its core, the Foundation is a speaker's bureau. Our presenters are prostate cancer survivors and medical professionals who are personally involved with the disease. To that end we offer professional level speakers for community and corporate events, workshops, and employer wellness events. 860-651-9611
Prostate Cancer Foundation
A non-profit public charity dedicated to finding cures and controls for prostate cancer and the world's largest private source of prostate cancer research funding. 800.757.CURE (2873)
Prostate Cancer International
Prostate Cancer International works to transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.
Prostate Conditions Education Council
PCEC saves lives through awareness and the education of men, the women in their lives as well as the medical community about cutting edge prostate cancer biomarkers and genomic testing, treatment options for all stages of the disease, and current information on treatment overlay and sequencing based on the input of the world leaders in the field. PCEC also coordinates national free men’s health checks including a multitude of blood tests for prostate cancer and other diseases. www.ProstateConditions.org 1-866-4PROST8 (1-866-477-6788)
The Prostate Health Education Network, Inc.
PHEN is a non-profit 501(c)(3) organization founded in 2003 to eliminate the African American prostate cancer disparity. In the United States, Black men have the highest prostate cancer incidence and mortality rates. PHEN's mission also includes advocacy efforts to increase the overall support and resources to find a cure for the disease for the benefit of all men. Key activities include Survivors Networks, annual Father’s Day rally and a Virtual Walk to Raise Prostate Cancer Awareness. 617.481.4020
Urology Care Foundation
The Urology Care Foundation is the world's leading nonprofit urological health foundation, and the official foundation of the American Urological Association. Partnering with physicians, researchers, healthcare professionals, patients, caregivers, families and the public, the Foundation supports and improves urologic clinical care by funding research, developing patient education and pursuing philanthropic support.
US-TOO! International, Inc.
An independent network of support group chapters for men with prostate cancer and their families. Offers fellowship, peer counseling, education about treatment options, discussion of medical alternatives without bias and increases public awareness of prostate disease. 800.80.USTOO (800.808.7866)
Veterans Prostate Cancer Awareness
Providing educational resources and raising awareness among the Veteran Population is the mission of Veterans Prostate Cancer Awareness (VPCa). The NCCN Guidelines for Patients is the premier resource for men in all risk categories and stages of prostate cancer treatment to use as a reference VPCa is honored to endorse and use this important tool to help educate Veterans and all men about prostate cancer. As a "High Risk" population all Veterans need to have resources to rely on to guide them through the prostate cancer journey. Understanding the new standards and recommendations for early annual screening beginning at age 40 through the multitude of treatment options available can be confusing. The NCCN Guidelines for Patients is the premier standard for guiding patients through their cancer journey and we strongly recommend the guide for all patients and providers.
ZERO – The End of Prostate Cancer
ZERO is a national nonprofit organization with the mission to end prostate cancer. We lead the fight to end the disease by advancing research, encouraging action, and providing education and support to men and their families. Our premier programs include the ZERO Prostate Cancer Run/Walk, the largest men's health event series in America. We are a 501(c)(3) charity recognized with four stars by Charity Navigator; a Better Business Bureau member; and 98 cents of every dollar donated goes to research and programs. 202.463.9455 or Toll Free: 888.245.9455
Rectal Cancer
Fight Colorectal Cancer
Fight Colorectal Cancer (Fight CRC) is a leading national colorectal cancer nonprofit. Through patient education, advocacy, research and awareness, the group demands a cure for the second-leading killer in the United States and envisions victory over colorectal cancer. Fight CRC provides patients with up-to-date, reliable information on how to fight colon and rectal cancer and trains research advocates who get involved in the research process. As the leading colorectal cancer advocacy group, Fight CRC serves as a resource for patients, grassroots advocates, policy makers, medical professionals and health care providers. Learn more at http://www.FightColorectalCancer.org or Facebook.com/FightCRC.
Sarcomas/GIST
GIST Support International (GSI)
An all-volunteer, non-profit organization that reaches out to GIST patients and their families and friends to provide education and support. GSI promotes and encourages ongoing research in the quest for a cure for Gastrointestinal Stromal Tumor (GIST). 215.340.9374 gistsupport.org
Friends of TJ Foundation
Rhabdomyosarcoma Research
The Friends of T.J. Foundation was founded to increase sarcoma research, improve treatment, and aid in the goal of finding a cure. friendsoftj.org
Leiomyosarcoma Support & Direct Research Foundation
Leiomyosarcoma
Our mission is to empower patients with information and support, fund groundbreaking LMS research, and provide a bridge between patients and researchers to collaborate on finding a cure. 866.912.2730 lmsdr.org
National LeioMyoSarcoma Foundation
Leiomyosarcoma
Our mission is to advance research to accelerate treatment options and offer supportive resource assistance to patients and caregivers throughout the diagnosis and treatment journey. 303.808.3437 or 303.783.0924 nlmsf.org
Northwest Sarcoma Foundation
All sarcomas and sarcoma research
Our Mission: To provide hope, education, and support to sarcoma patients and their families in the Pacific Northwest while investing in research to improve cure rates for sarcomas. 206.257.7215 nwsarcoma.org
QuadW Foundation (What Would Willie Want)
Sarcoma research and osteosarcoma
The QuadW Foundation provides financial support to people and organizations pursuing innovative ideas and opportunities in the areas of higher education, sarcoma research, personally transforming mission experiences and general philanthropy. Our accomplishments will reflect the light-hearted but whole-hearted spirit that Willie embodied. quadw.org
Sara’s Cure
Clear Cell Sarcoma
The mission of Sara’s Cure is to advocate for patients and fund Clear Cell Sarcoma research and drug development to fast track a cure for Clear Cell Sarcoma. We give these young warriors fighting this rare cancer hope and a voice. sarascure.org
SARC - Sarcoma Alliance for Research through Collaboration
Sarcoma research
A nonprofit organization dedicated to the development and support of research for the prevention, treatment, and cure of sarcomas – a cancer of the bone and connective tissue of the body. 734.930.7600 sarctrials.org
Sarcoma Alliance
All sarcomas
An advocacy organization that provides support, education, and guidance for patients/family members with sarcoma. Also provides patient materials, web links, support group locations, and other resources. 415.381.7236 sarcomaalliance.org
Sarcoma Foundation of America
All sarcomas
This foundation serves as an advocate for increased research to find new and better therapies to treat sarcoma patients. It provides information and support to sarcoma patients and their families. 301.253.8687 curesarcoma.org
Summer's Way Foundation
Rhabdomyosarcoma
The Summer's Way Foundation aims to further Summer Hammond’s legacy through advancing childhood cancer and Rhabdo research, recognizing through scholarships, graduating high school students in the community who have faced adversity, and connecting families dealing with Rhabdomyosarcoma and childhood cancer through webinars and support groups. summersway.org
The Alan B. Slifka Foundation
All sarcomas
Founded in 1965, the Alan B. Slifka Foundation is a private family foundation dedicated to the pursuit of inclusion, diversity, peace and healing. The Foundation seeks to combat cancer, especially childhood cancer, through the support of innovative biomedical research. Among the Foundation’s top priorities is funding research into less toxic, more effective and potentially curative therapies for a variety of cancers, but especially for connective tissue cancers, known as sarcomas, that disproportionately impact children and young adults. The Alan B. Slifka Foundation is particularly interested in supporting bench-to-bedside research that results in targeted therapies, and also research that enhances our understanding of the metastatic process. slifkafoundation.org
The EHE Foundation
Epithelioid hemangioendothelioma
The EHE Foundation’s mission is to seek treatments and a cure for Epithelioid Hemangioendothelioma (EHE) by increasing awareness, pursuing scientific research, advocating for and supporting EHE patients, and bridging information between researchers, providers and patients. 906.280.6432 fightehe.org
The Life Raft Group (LRG)
All sarcomas
A leader in GIST research and patient advocacy, The Life Raft Group (LRG) isa recognized source of information for patients and caregivers and the medical community through our online content, publications, webinars, educational materials, regional meetings and personal consultations. The mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST (Gastrointestinal Stromal Tumor) through patient-powered research, education and empowerment and global advocacy efforts. 973.837.9092 liferaftgroup.org
The Paula Takacs Foundation for Sarcoma Research
Funds clinical trials and research for all sarcoma types
The mission of the Paula Takacs Foundation for Sarcoma Research is to raise funds that will directly benefit the fight to eradicate sarcomas. By supporting local, innovative research with a relentless commitment to excellence, we open a pathway for scientists and other research professionals to develop and offer cutting-edge treatment options to more sarcoma sufferers. Thus, helping to expand global hope for cures. 704.516.5113 paulatakacsfoundation.org
Stomach Cancer (Gastric Cancer)
Debbie's Dream Foundation
Debbie's Dream Foundation: Curing Stomach Cancer (DDF) is a 501(c)(3) non-profit organization dedicated to raising awareness about stomach cancer, advancing funding for research, and providing education and support internationally to patients, families, and caregivers. DDF seeks as its ultimate goal to make the cure for stomach cancer a reality. DDF provides information about stomach cancer including risk factors, symptoms, screening, early detection, diagnosis, staging, choosing a treatment facility, treatment options, molecular testing, clinical trials, and more through educational symposia, webinars and on our comprehensive, self-service website. Our website is translatable into more than 60 languages. DDF offers grants for basic, translational, and clinical research in stomach cancer to scientists and clinicians at various career levels. To date, DDF has funded grants to young researchers and early career professionals totaling $1,000,000. www.DebbiesDream.org
Hope for Stomach Cancer
Hope For Stomach Cancer is a 501(c)(3) nonprofit organization that provides support, resources, and awareness to those affected by stomach cancer. Hope creates and facilitates programs through collaboration with other organizations that enable those affected by stomach cancer to take actionable steps to live the best possible life through each phase of the disease. We focus on serving the stomach cancer community, starting with the patient and their granular immediate needs. https://stocan.org/
No Stomach For Cancer
No Stomach For Cancer is a 501(c)(3) nonprofit organization whose mission is to support research and unite the caring power of people worldwide affected by stomach cancer. NSFC advances awareness and education about stomach cancer, including Hereditary Diffuse Gastric Cancer (HDGC), provides a support network for affected families, and funds important research for screening, early detection, treatment, and prevention of stomach cancer. Headquartered in Madison Wisconsin, and serving individuals across the globe, No Stomach For Cancer is a worldwide thought leader in stomach cancer awareness and education. For more information about No Stomach For Cancer, or to support their global mission, please visit www.NoStomachForCancer.org.
Thyroid Cancer
American Thyroid Association
The ATA is the leading organization devoted to thyroid biology and to the prevention and treatment of thyroid disease through excellence in research, clinical care, education, and public health.
ThyCa: Thyroid Cancer Survivors' Association, Inc.
ThyCa: Thyroid Cancer Survivors' Association, Inc., an international nonprofit organization founded in 1995 and advised by thyroid cancer specialists, educates and supports patients and families through its web site, support groups, person-to-person support, free newsletter and downloadable handbooks and low-iodine cookbook, videos with experts, and materials in English, Chinese, French, Greek, Italian, Japanese, Russian, and Spanish. ThyCa sponsors webinars, seminars, workshops, and the annual 3-day International Thyroid Cancer Survivors' Conference, as well as Thyroid Cancer Awareness Month, year-round awareness programs for early detection, and thyroid cancer research funds and research grants. www.thyca.org
Waldenström's Macroglobulinemia
International Waldenstrom's Macroglobulinemia Foundation
The International Waldenstrom's Macroglobulinemia Foundation (IWMF) is a patient-founded and volunteer-led nonprofit organization that is dedicated to a simple but compelling vision: Support everyone affected by Waldenstrom's macroglobulinemia (WM) while advancing the search for a cure. To accomplish this vision, the IWMF offersInformation from our website, www.iwmf.com, and our publications written in a patient-friendly way to promote understanding of our rare disease: Education at our annual Educational Forum to help patients and caregivers learn about our disease from WM researchers and clinicians; On-going updates about WM and the IWMF sent through our quarterly Torch newsletter and our NEWS releases; Peer support from others who've been where you are; Information for medical professionals who may have limited experience with our rare disease; and Research directed to better treatments while we search for a cure. Visit www.iwmf.com for more information.
Cancer and Work
Cancer and Careers
Cancer and Careers, founded in 2001, is a national nonprofit that empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events. The organization reaches more than 325,000 individuals per year online, in print and in person. Its free services include a comprehensive website and library of publications in English and Spanish; legal and insurance information; career coaching; resume review; professional development micro-grants; and national events and workshops for people with cancer and their healthcare providers, coworkers and employers.
Distress Management and Psychosocial Support
American Psychosocial Oncology Society (APOS)
APOS is the only multidisciplinary organization in the United States dedicated to researching and treating the psychosocial aspects of cancer. For more information go to www.apos-society.org.
Association of Oncology Social Work (AOSW)
AOSW is a non-profit organization dedicated to the enhancement of psychosocial services to people with cancer and their families. AOSW was created in 1984 by social workers interested in oncology and by existing national cancer organizations. AOSW has over 1000 current members who embrace the AOSW Mission "to advance excellence in the psychosocial care of persons with cancer, their families, and caregivers through networking, education, advocacy, research and resource development." (215) 599-6093
Good Days
Good Days is a national, independent 501(c)(3) non-profit charitable organization that provides financial assistance to patients so that they do not have to choose between getting the treatment the need and affording the necessities of everyday living.
Fertility and Pregnancy Information
Fertile Hope
This LIVESTRONG program provides free reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility at www.fertilehope.org. Help with fertility-related questions and information about the Sharing Hope financial assistance program are also available by calling toll-free 855.220.7777.
Hope for Two the Pregnant with Cancer Network
This is a national non-profit organization for women diagnosed with cancer during pregnancy. Their mission is to connect women who are pregnant with cancer with other women who have been pregnant with the same type of cancer. These women lend support, offer hope and share their experiences with one another through phone and e-mail conversation. 800.743.4471
MyOncofertility.org
This website helps patients to learn more about the potential effect of cancer (and other serious diseases) and treatments on their fertility, as well as the options for preserving fertility and resources for discussing these issues with their doctor. 866-708-FERT (3378)
Financial Assistance
Breathing Room Foundation
Breathing Room Foundation is dedicated to providing care and support to local families affected by cancer. We recognize that a cancer diagnosis affects every aspect of a family's life; emotional, physical, spiritual and financial. Breathing Room Foundation strives to provide a family with whatever it is that will allow them a bit of "breathing room" from their daily struggle against cancer. It is our hope that this will allow them to concentrate all of their efforts towards regaining their physical health.
Family Reach
Family Reach is a national non-profit providing financial assistance, education and outreach for families facing a cancer diagnosis. For more information, connect with your social worker or visit .
Good Days
Good Days is a national, independent 501(c)(3) non-profit charitable organization that provides financial assistance to patients so that they do not have to choose between getting the treatment the need and affording the necessities of everyday living.
General Prescription Assistance
Chronic Disease Fund
Chronic Disease Fund® is an independent 501(c)(3) non-profit charitable organization that helps patients with chronic disease, cancer and other life-altering conditions obtain the life-saving medications they need. (877) 968-7233
Family Reach
Family Reach is a national non-profit providing financial assistance, education and outreach for families facing a cancer diagnosis. For more information, connect with your social worker or visit www.familyreach.org.
NCCN Virtual Reimbursement Resource Room
The oncology reimbursement landscape continues to present ever-evolving challenges for clinicians and others that work with patients with cancer. As a response to these ongoing challenges, help is available through the NCCN Virtual Reimbursement Resource Room.
NeedyMeds
This non-profit organization provides help to patients who cannot afford medicine or health care costs. Its website enables you to search by generic or brand name drug names, program name, or drug company name. NeedyMeds also provides access to numerous cancer-based assistance programs, some of which may provide financial assistance. Helpline: 800.503.6897
Patient Advocate Foundation (PAF) Co-Pay Relief (CPR)
PAF CPR provides direct financial assistance to qualified patients, assisting them with prescription drug co-payments their insurance requires relative to their diagnosis. CPR call counselors work directly with the patient as well as with the provider of care to obtain necessary medical, insurance and income information to advance the application in an expeditious manner. 866.512.3861
Medicine Assistance Tool
The Medicine Assistance Tool brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free. Among the organizations collaborating on this program are the American Academy of Family Physicians, the American Autoimmune Related Diseases Association, the Lupus Foundation of America, the NAACP, the National Alliance for Hispanic Health and the National Medical Association. 888.4PPA.NOW 888.477.2669
Rx Assist
This pharmaceutical access information center was created by Volunteers in Health Care (VIH), a national resource center for safety net organizations. VIH operates out of the Brown University Center for Primary Care and Prevention at Memorial Hospital of Rhode Island.
International/Cultural Support Group
American Cancer Society (ACS) Asian and Pacific Language Materials
American Cancer Society site that provides resources and cancer information in several Asian languages including Chinese, Korean, and Vietnamese. 800.227.2345
CanHope
A non-profit cancer counseling and support service provider located in Singapore. It consists of an experienced, knowledgeable and caring support team with access to comprehensive information on a wide range of topics in education and guidelines in cancer treatment. The CanHOPE team journeys with patients to provide support and personalized care, working closely with the medical and allied health professionals, to help patients and caregivers to make effective and informed decisions in their treatment. +65 6738 9333; enquiry@canhope.org
Canadian Cancer Society
A national, community-based organization of volunteers whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer. 888.939.3333 or 416.961.7223
International Cancer Advocacy Network (ICAN)
ICAN assists patients with cutting-edge information services, patient empowerment, and health information technology tools, as well as research regarding molecular profiling, clinical trials, and compassionate use. 602.618.0183; programservices@askican.org
Intercultural Cancer Council (ICC)
Promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories. 713.798.4617
International Union Against Cancer (UICC)
UICC is an international non-profit, nonsectarian, nongovernmental association of more than 290 member organizations in 85 countries. Their mission is to advance scientific and medical knowledge in research, diagnosis, treatment, and prevention of cancer throughout the world, especially professional and public education. +41 22 809 18 11 UICC international cancer organizations by country: http://www.uicc.org/membership
Make-A-Wish Foundation International
A not-for-profit organization established to grant wishes to children with life-threatening illnesses around the world. The Make-A-Wish Foundation can now be found in 30 countries and territories around the world. 602.230.9900
Sharsheret
Sharsheret supports young Jewish women and families facing breast cancer at every stage—before, during, and after diagnosis. We help women and families connect to our community in the way that feels most comfortable, taking into consideration their stage of life, diagnosis, or treatment, as well as their connection to Judaism. We also provide educational resources, offer specialized support to those facing ovarian cancer or at high risk of developing cancer, and create programs for women and families to improve their quality of life. We understand that young Jewish women have unique concerns when it comes to breast and ovarian cancer, and we are the only organization that specializes in serving them. Learn more about our services and programs at www.sharsheret.org.
Vital Options International
A non-profit cancer communications, support, and advocacy organization with a mission to facilitate a global cancer dialogue. It produces a weekly cancer talk radio show called The Group Room®, which allows callers to engage directly with noted oncology professionals from the US and Europe, as well as with advocates and other patients. Program information can be found on the Vital Options' websites which provides easy access for visitors to listen to archived shows, locate national and international cancer resources and organizations, information on clinical trials, cancer news, a message board, as well as special content for young adults with cancer (English, French, German) 818.508.5657
World Health Organization
A specialized agency of the United Nations with 191 Member States, WHO promotes technical cooperation for health among nations, carries out programs to control and eradicate disease, and strives to improve the quality of human life. + 41 22 791 21 11
Test, Imaging, and Treatment-Related Patient Information
Chemocare.com
This website is part of the Scott Hamilton Care Initiative and is designed to provide the latest information about chemotherapy to patients and their families, caregivers and friends. We are here to help by supplementing what you may already have learned from your healthcare professional.
RadiologyInfo.org
RadiologyInfo™ is the public information website developed and funded by theAmerican College of Radiology (ACR) and the Radiological Society of North America (RSNA). It was established to inform and educate the public about radiologic procedures and the role of radiologists in healthcare, and to improve communications between physicians and their patients. It informs patients how various x-ray, CT, MRI, ultrasound, radiation therapy and other procedures are performed. It also addresses what patients may experience and how to prepare for the exams.
Lab Tests Online
Lab Tests Online has been designed to help patients and/or family caregivers, to better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases.
MyBiopsy.org
Patient-oriented website developed by the College of American Pathologists (CAP) which features information on more than 40 of the most common cancers and cancer-related conditions including those affecting the breast, lungs, colon, prostate, and skin. It includes answers to questions about what the disease is, what treatment options are available, questions you should ask your doctors, a definition of key terms, and pictures of normal tissue as well as one that is diseased.
RT Answers
The American Society for Radiation Oncology (ASTRO), created this Web site to explain to patients, their families and the public how doctors, called radiation oncologists, use radiation therapy to treat cancer safely and effectively.
Travel and Lodging Assistance
Air Charity Network
A non-profit grassroots organization with a volunteer corps of more than 7,500 private pilots divided into six regions covering all 50 states and the District of Columbia. They transport patients and their families in private planes, free of charge, to hospitals for medical treatment. (United States Only) 877.621.7177
Angel Flight East (AFE)
Angel Flight East (AFE) is dedicated to providing free air transportation to children and adults in need of medical treatment far from home. Volunteer pilots use their own aircraft and pay for all expenses of the flight. Located in Blue Bell, PA we cover a 14 state territory from Virginia to Ohio to Maine and for destinations beyond that, we link up with other volunteer pilot organizations. 215.358.1900
Corporate Angel Network
Provides free air transportation for cancer patients traveling to and from recognized cancer treatment centers in the United States without regard to their financial resources. 914.328.1313; TollFree Patient Line: 866.328.1313
Good Days
Good Days is a national, independent 501(c)(3) non-profit charitable organization that provides financial assistance to patients so that they do not have to choose between getting the treatment the need and affording the necessities of everyday living.
Joe's House
Joe’s House is a non-profit organization that serves both the hospital staff and cancer patients that travel for their healthcare needs. Founded in 2003, Joe’s House assists in finding appropriate lodging in unfamiliar cities by providing a list of accommodations that cater to patients with cancer, their families, and caregivers. 877.JOESHOU (877.563.7468)
Ronald McDonald House Charities
The mission of Ronald McDonald House Charities (RMHC) is to create, find and support programs that directly improve the health and well-being of children. They provide families with stability and resources that assist them with staying near and supporting a hospitalized child, they also help families stay together in another city while a child is undergoing treatment, or even getting basic medical and dental care while in a vulnerable community.
Age-Related Cancer Support
Childhood, Adolescent, and Young Adult
American Childhood Cancer Organization (ACCC):
ACCO, founded in 1970 by concerned parents of children with cancer to assist families and survivors of childhood cancer, has a network of parent support groups in the United States and every continent. Toll Free Phone: 855.858.2226; Local Phone: 301.962.3520
Center for School, College, and Career Resource (CSCCR)
Center for School, College, and Career Resource provides students and working professionals with resources to help in their higher education and career goals. Our mission is to engage and inform students while providing them with the information and tools they need to make all their educational decisions.
School Resources for Individuals with Cancer
Scholarships for Individuals with Disabilities
Managing Chronic Health Conditions in School
Children's Cause Cancer
A 501(c)3 non-profit organization that works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors. 202.336.8374
Cure Search for Children’s Cancer
An online resource for patients, their families and support systems. The website provides up-to-date information about the various types of children's cancer along with research trials, definitions and descriptions of tests, procedures and treatments and information to help families manage the emotional aspects of caring for a child with cancer. United States and Canada: 800.458.6223
Kids v Cancer (KVC)
Kids v Cancer is a national nonprofit pediatric cancer advocacy organization founded in 2009 with a mission to change the landscape of pediatric cancer research. Kids v Cancer develops policies to incentivize pediatric cancer research so that drugs are developed expressly for children. Kids v Cancer's Compassionate Use Navigator is a free resource and a personal assistance service for physicians and families for navigating the process of obtaining not-yet-approved drugs on a compassionate use basis. The Autopsy Tissue Donation program helps find the cure for brain cancer by connecting families with researchers who study tumors and develop therapies to treat them.
Make-a-Wish Foundation
A non-profit organization dedicated to granting the wishes of children with life-threatening medical conditions. 800.722.9474
National Children’s Cancer Society (NCCS)
The mission of NCCS is to improve the quality of life for children with cancer and to reduce the risk of cancer by promoting children's health through financial and in-kind assistance, advocacy, support services, and education. 800.5.FAMILY (800.532.6459)
Stupid Cancer®
A 501(c)3 nonprofit organization, is the leader in young adult cancer advocacy, research, and support. We offer a lifeline to the young adult cancer community by helping those in need feel normalized and connected to their peers. We end isolation and educate our community about the age-appropriate resources they didn't know they needed, and help them navigate cancer with dignity and on their terms. Our mission is to empower, support, and improve health outcomes for the young adult cancer community.
Caregiving and Survivorship
Family Reach
Family Reach is a national non-profit providing financial assistance, education and outreach for families facing a cancer diagnosis. For more information, connect with your social worker or visit www.familyreach.org.
Triage Cancer
Triage Cancer is a national, nonprofit organization providing information and resources on the full spectrum of cancer survivorship issues to patients, survivors, caregivers, advocates, and healthcare professionals, through a national Speakers Bureau, educational events, and online tools. Triage Cancer also offers an educational blog at www.TriageCancer.org/blog.