Advocacy and Support Groups

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Patient advocacy groups help patients, their families, and their caregivers navigate the cancer landscape. These groups work to ensure patients receive appropriate and timely care, education, and financial assistance, when needed. Below, please find links to advocacy organizations, organized by their mission.

Please use the dropdown menu below to filter your results.

General Cancer Information/Support

Alliance of Dedicated Cancer Centers (ADCC)

ADCC is comprised of 11 nationally recognized comprehensive or clinical cancer centers. The ADCC member cancer centers play a pivotal role in the National Cancer Program, which was enacted by Congress in 1971 to improve the detection, prevention, diagnosis, and treatment of cancer. The ADCC hospitals are singularly dedicated to deepening the understanding of the causes and cures for cancer; developing new treatments for cancer; and disseminating this knowledge to the provider community at large. The Centers' state-of-the-art therapies and research activities offer the greatest possibility for the successful treatment of cancer patients. Much of the recent progress in understanding cancer's biology and effective treatment is directly attributable to the work of the Centers.

American Association for Cancer Research (AACR)

The AACR is the oldest and largest scientific organization in the world focused on every aspect of high-quality, innovative cancer research. The mission of the AACR is to prevent and cure cancer through research, education, communication, and collaboration. 215.440.9300 or toll free 866.423.3965

American Cancer Society (ACS)

An extensive network of information resources and organizations fighting cancer by providing information, education, support and research funding. 800.ACS.2345 | 800.227.2345

Association of Cancer Online Resources (ACOR)

An internet-based public charity dedicated to improve the quality of care provided to patients with cancer and the quality of life of patients, survivors and their caregivers. 212.226.5525

Association of Community Cancer Centers (ACCC)

ACCC helps oncology professionals adapt to the complex challenges of program management, reimbursement restraints, hospital consolidation and mergers, and legislation and regulations that threaten to compromise the delivery of quality cancer care. ACCC works closely with members of Congress, government agencies, and other cancer care advocacy organizations to help assure patient access to quality cancer care. 301.984.9496 Association of Oncology Social Work (AOSW)

AOSW is a non-profit organization dedicated to the enhancement of psychosocial services to people with cancer and their families. AOSW was created in 1984 by social workers interested in oncology and by existing national cancer organizations. AOSW has over 1000 current members who embrace the AOSW Mission “to advance excellence in the psychosocial care of persons with cancer, their families, and caregivers through networking, education, advocacy, research and resource development.” 215.599.6093

Bone and Cancer Foundation

A resource for patients and health professionals concerned with the care and treatment of cancer involving bone. They provide information for cancer patients and family members on the causes and treatment of cancer involving bone. Toll free, 888.862.0999

Breathing Room Foundation

Breathing Room Foundation is dedicated to providing care and support to local families affected by cancer. We recognize that a cancer diagnosis affects every aspect of a family’s life; emotional, physical, spiritual and financial. Breathing Room Foundation strives to provide a family with whatever it is that will allow them a bit of "breathing room" from their daily struggle against cancer. It is our hope that this will allow them to concentrate all of their efforts towards regaining their physical health. 215.277.1006

Cancer and Careers

Cancer and Careers, founded in 2001, is a national nonprofit that empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events. The organization reaches more than 325,000 individuals per year online, in print and in person. Its free services include a comprehensive website and library of publications in English and Spanish; legal and insurance information; career coaching; resume review; professional development micro-grants; and national events and workshops for people with cancer and their healthcare providers, coworkers and employers.

CancerCare

Founded in 1944, CancerCare is the leading national organization providing free, professional support services and information to help people manage the emotional, practical, and financial challenges of cancer.  Our comprehensive services include resource navigation, counseling, and support groups over the phone, online and in-person, educational workshops, publications, and financial and co-payment assistance. All CancerCare services are provided by master's-prepared oncology social workers and world-leading cancer experts.  To learn more, visit www.cancercare.org/services or call 800-813-HOPE (4673).

Cancer Hope Network

Provides free, confidential, one-on-one support to people with cancer and their families. The program is available to all cancer patients and their loved ones from anywhere in the United States at no cost. 800.552.4366

Cancer Insurance Checklist

The Cancer Insurance Checklist is designed to help you when shopping for insurance on your state's Health Insurance Marketplace/Exchange if you have cancer, a history of cancer, or are at risk for cancer.

Cancer Insurance Checklist: Guía de Cobertura Médica para Personas con Cáncer

Si padece cáncer, tiene antecedentes de cáncer o se encuentra en riesgo de padecer cáncer, la Guía de cobertura médica para personas con cáncer puede asistirle con la compra de un seguro en el mercado de seguros médicos de su estado.

 

The Cancer Project

The Cancer Project is a non-profit organization advancing cancer prevention and survival through nutrition education and research. 202.686.2210

Cancer Support Community

Uniting The Wellness Community and Gilda's Club Worldwide, the Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer. 888.793.9355

CURE

Cancer Updates, Research & Education is a unique quarterly magazine bridging the knowledge gap between cancer patients and caregivers. CURE demystifies the science and medicine of cancer and gives readers links to important resources on the web and in the medical community. CURE provides readers the tools they need to take action, such as participating in clinical trials of new drugs that could mean the difference between life and death. 214.367.3500; Toll Free: 800.210.CURE | 800.210.2873

Family Reach

Family Reach is a national non-profit providing financial assistance, education and outreach for families facing a cancer diagnosis. For more information, connect with your social worker or visit familyreach.org.

Good Days

Good Days is a national, independent 501(c)(3) non-profit charitable organization that provides financial assistance to patients so that they do not have to choose between getting the treatment the need and affording the necessities of everyday living.

International Cancer Advocacy Network (ICAN)

ICAN assists patients with cutting-edge information services, patient empowerment, and health information technology tools, as well as research regarding molecular profiling, clinical trials, and compassionate use. 602.618.0183; programservices@askican.org

Lolly's Locks

Lolly's Locks connects high-quality wigs with cancer patients who are suffering hair loss as an effect of chemotherapy, and who are unable to afford them.

National Blood Clot Alliance

NBCA is a patient-led, voluntary health advocacy organization dedicated to advancing the prevention, early diagnosis and successful treatment of life-threatening blood clots such as deep vein thrombosis and pulmonary embolism. NBCA accomplishes its mission through programs that build public awareness, educate patients and healthcare providers.  NBCA works to see a future in which the number of people suffering and dying from blood clots in the United States is reduced significantly.

National Cancer Institute (NCI)

Conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer. It also includes information on rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. 800.4.CANCER | 800.422.6237

National Center for Complementary and Alternative Medicine

One of the 27 institutes and centers that make up the National Institutes of Health (NIH). It is dedicated to exploring complementary and alternative healing practices in the context of rigorous science, training complementary and alternative medicine (CAM) researchers, and disseminating authoritative information to the public and professionals. United States: 888.644.6226.

National Coalition for Cancer Survivorship

The National Coalition for Cancer Survivorship represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis. Our publications and programs equip cancer survivors with essential tools for self-advocacy, fostering effective communication with healthcare providers, and empower patient advocates in championing policies and legislation that enhance cancer care for all.

National Hospice and Palliative Care Organization (NHPCO)

NHPCO is the largest non-profit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end-of-life care and expanding access to hospice care with the goal of profoundly enhancing the quality of life for people dying in America and their loved ones. (Spanish/English) Helpline: 800.658.8898

National Lymphedema Network (NLN)

An internationally recognized non-profit organization providing education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. The NLN also supports research into the causes of and possible alternative treatments for lymphedema. Hotline: 800.541.3259

National Organization for Rare Diseases (NORD)

A non-profit voluntary health organization dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Toll Free: 800.999.NORD 800.999.6673

National Society of Genetic Counselors

An organization which promotes the genetic counseling profession as a recognized and integral part of health care delivery, education, research and public policy. Genetic Counselors can be searched by State, City, Counselor's Name, Institution or Areas of Practice or Specialization. Cancer genetic counselors are involved with individuals who have cancer or a family history of cancer. 312.321.6834 or nsgc@nsgc.org

North American Thrombosis Forum (NATF)

The North American Thrombosis Forum (NATF) is a nonprofit organization dedicated to improving the lives of those affected by blood clots and related diseases. Through our comprehensive resources and innovative programming, we strive to educate patients and healthcare providers about thrombosis and its complications.

Oncology Nursing Society

The Oncology Nursing Society (ONS) is a professional organization of over 35,000 registered nurses and other healthcare providers dedicated to excellence in patient care, education, research, and administration in oncology nursing. 1.866.257.4667 or 412.859.6100

Ovarcome

We raise global awareness, fund research, and provide financial, psycho-social and informational support to our Ovarcomers (ovarian cancer patients and survivors). Ovarcome is inspired by the simple philosophy of support, love, and celebration of life. Let’s keep Ovarcoming! 

Patient Advocate Foundation

The Patient Advocate Foundation is a national non-profit organization that serves as an active liaison between patients and their insurers, employers and/or creditors to resolve insurance, job discrimination, and/or debt crisis matters related to their diagnosis. It seeks to safeguard patients through effective mediation, assuring access to care, maintenance of employment, and preservation of financial stability. 800.532.5274

Patient Access Network (PAN) Foundation

PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic, and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000 patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.

Prevent Cancer Foundation

A national, non-profit health foundation whose mission is the prevention and early detection of cancer through scientific research, education and community outreach. The Foundation focuses its energies and resources on those cancers—including lung, breast, prostate, colorectal, cervical, skin, oral and testicular—that can be prevented through lifestyle changes or detection and treatment in their early stages. 800.227.2732

Triage Cancer

Triage Cancer® is a national, nonprofit organization that provides free education on legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. The Legal & Financial Navigation Program offers one-on-one help with issues such as work, health and disability insurance, finances, and estate planning. CancerFinances.org is an online toolkit to help people manage finances after a cancer diagnosis.

Blood and Marrow Transplant

Be The Match

We can help you and your loved ones get answers about the transplant or cell therapy process, connect with others who've been through it, cope with uncertainty, access financial grants, and find clinical trials. All our programs and resources are free.

BMT InfoNet

BMT InfoNet provides information and support services to patients before, during and after a stem cell, bone marrow or cord blood transplant. Our patient handbooks explain in detailed, but easy-to-understand language, what's involved in going through a stem cell transplant. Our annual symposium enables transplant recipients to connect with one another and learn how to manage the joys and challenges of survivorship.

National Bone Marrow Transplant Link (nbmtLINK)

The mission of the National Bone Marrow Transplant Link (nbmtLINK) is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services. 1.800.546.5268

National Marrow Donor Program

A non-profit organization which facilitates unrelated donor stem cell transplants for patients of all racial and socioeconomic backgrounds with life-threatening blood diseases who do not have matching donors in their families. Provides advice, support, and access to resources and information throughout the search process, coordinates research studies, and provides one-on-one advocacy for patients and medical professionals. Donors and other inquiries: 800.MARROW.2 800.627.7692; Patients and families: 888.999.6743; International: 612.627.8140

Anal Cancer

Anal Cancer Foundation (ACF)

The Anal Cancer Foundation (ACF) is an internationally-acclaimed leader dedicated to ending anal cancer and improving the lives of those affected by it. ACF achieves this mission through robust advocacy, education, research, and patient services.ACF’s Peer-To-Peer Program matches patients and caregivers with trained volunteers for empathetic, practical guidance. ACF also provides patients with expert-reviewed information on treatment, side-effect mitigation, and recovery. Devoted to finding a cure for this disease, ACF funded the first new drug for anal cancer in 40+ years and the International Anal Neoplasia Society. For help during any stage of your journey, please visit www.analcancerfoundation.org or contact connect@analcancerfoundation.org.

The HPV Cancers Alliance (HPVCA)

The HPVCA seeks to educate the medical societies and the general public, as well as eliminate the stigma surrounding the human papillomavirus (HPV) and its associated cancers.  The HPVCA hosts town hall events bridging the gap between lawmakers and their constituents to discuss and campaign for vital legislation pertaining to HPV, such as the Prevent HPV Cancers Act. The HPVCA partners with organizations sharing their same goal in order to eliminate those barriers and allow everyone the equal, fighting chance to care for their health.

United Ostomy Associations of America, Inc. (UOAA)

United Ostomy Associations of America, Inc. (UOAA) promotes quality of life for people with ostomies and continent diversions through information, support, advocacy, and collaboration. UOAA has 280+ Affiliated Support Groups in the United States which are organized for the benefit of people who have or will have intestinal or urinary diversions, and their caregivers. Bladder cancer patients facing surgery are not alone. Please visit https://www.ostomy.org/ for support resources, self-advocacy tools, patient stories, special events, and free educational resources, such as our Living with a Urostomy Guide and more.

Bladder Cancer

American Bladder Cancer Society

The American Bladder Cancer Society provides a web site with a plethora of information about bladder cancer for patients, survivors, and caregivers. An important feature is an active Forum for sharing experiences and asking questions.

American Society of Clinical Oncology (ASCO)

The American Society of Clinical Oncology's patient information website, Cancer.Net (www.cancer.net), provides timely, oncologist-approved information to help patients and families make informed health care decisions. All content is subject to a formal peer-review process by the Cancer.Net Editorial Board, composed of nearly 200 medical, surgical, radiation, and pediatric oncologists, physician assistants, oncology nurses, social workers, and patient advocates. Visitors to the site will find information on 125+ cancer types, downloadable educational resources, age-specific resources, blog posts, videos, podcasts, coping and survivorship resources, and information in Spanish. Also available is Cancer.Net Mobile, an award-winning free mobile app for iPhone and Android.

Bladder Cancer Advocacy Network (BCAN)

Since 2005, BCAN is the premier national patient advocacy organization dedicated to advancing bladder cancer research and supporting and educating those impacted by the disease.

Cancer.net

The American Society of Clinical Oncology's patient information website, Cancer.Net (www.cancer.net), provides timely, oncologist-approved information to help patients and families make informed health care decisions. All content is subject to a formal peer-review process by the Cancer.Net Editorial Board, composed of nearly 200 medical, surgical, radiation, and pediatric oncologists, physician assistants, oncology nurses, social workers, and patient advocates. Visitors to the site will find information on 125+ cancer types, downloadable educational resources, age-specific resources, blog posts, videos, podcasts, coping and survivorship resources, and information in Spanish. Also available is Cancer.Net Mobile, an award-winning free mobile app for iPhone and Android.

Global Resource for Advancing Cancer Education (GRACE)

GRACE provides expert-mediated information on current and emerging cancer management options in order to empower patients, caregivers, and health professionals to become direct partners in cancer care.

United Ostomy Associations of America, Inc. (UOAA)

United Ostomy Associations of America, Inc. (UOAA) promotes quality of life for people with ostomies and continent diversions through information, support, advocacy, and collaboration. UOAA has 280+ Affiliated Support Groups in the United States which are organized for the benefit of people who have or will have intestinal or urinary diversions, and their caregivers. Bladder cancer patients facing surgery are not alone. Please visit https://www.ostomy.org/ for support resources, self-advocacy tools, patient stories, special events, and free educational resources, such as our Living with a Urostomy Guide and more.

Urology Care Foundation

The Urology Care Foundation offers free, evidence-based patient education materials on urologic health to patients, healthcare providers, and the general public. We support the improvement of urological care by funding research, developing patient education, advancing humanitarian initiatives, and pursuing philanthropic support.

Bone Cancer

MIB Agents Osteosarcoma

Our patient-facing programs include "Osteosarcoma: From Our Families to Yours," a book on OS translated into Spanish and Mandarin, Bereaved Parents Support, Bereaved Sibling Support, Peer-to-peer support, Gamer Partnering, Prayer Agents (all spiritual practices welcome), end-of-life mission, Clinical Trial search with Layman's terms, testing & research directory, Annual OS Conference for all constituents of osteosarcoma, OsteoBites weekly webinar & podcast with the leaders in OS, osTEAo AYA Podcast.

National Leiomyosarcoma Foundation (NLMSF)

The NLMSF represents a patient-centric advocacy resource for the Leiomyosarcoma Community, offering monthly education through patient information sessions and biweekly newsletters, support, and advocacy to empower patients and families/caregivers – throughout the diagnosis and treatment journey. Additionally, our mission is to advance research to accelerate treatment options. The Foundation founded the International LMS Research Roundtable, hosting 140+ researchers from around the world each year to focus on unmet needs in LMS-specific treatment and research - through workgroups and research initiatives in Clinical Trials/ Gynecological LMS/Tumor Tissue Cell Lines/Multi-Omics/Imaging strategies and Radiomics.

Northwest Sarcoma Foundation

All sarcomas and sarcoma research
We provide hope, education and support to anyone affected by Sarcoma in the Pacific Northwest while investing in Sarcoma research to improve cure rates.  

The Osteosarcoma Institute

The mission of the Osteosarcoma Institute is to dramatically increase treatment options and survival rates in osteosarcoma patients through identifying and funding the most promising and breakthrough osteosarcoma clinical trials and science. In addition to reviewing and funding science, the organization serves patients and families directly through OSI Connect, a one-of-a-kind resource dedicated to supporting those impacted by osteosarcoma. This free resource connects patients, families, and caregivers with knowledgeable osteosarcoma expert physicians to answer questions about all aspects of the disease. OSI Connect physicians can discuss available treatments, possible side effects, and provide helpful advice for getting the most out of your visits with your treating physician.

SARC

SARC works closely with the greater sarcoma advocacy community, which includes many groups spanning a broad spectrum of sarcomas as well as subtype-specific groups. Together, we are working to build awareness about sarcoma, resources available to help patients and their families, and opportunities to support sarcoma research and clinical trial participation.

Sarcoma Coalition

Collaborative Patient Advocacy throughout the Sarcoma Community to enhance patient care and treatment outcomes and support families and caregivers as well as bridge collaborative support with the Sarcoma Research Community.

Brain Tumor

American Brain Tumor Association

The mission of the American Brain Tumor Association is to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis. We do this through education and support of brain tumor patients and their families, collaborations with allied groups and organizations, and the funding of brain tumor research.

National Brain Tumor Society

A non-profit organization that provides leadership within the brain tumor community and strives to improve the quality of life for those affected by brain tumors. NBTS provides educational materials and information to patients, their families, and medical professionals. 617.924.9997

 

Breast Cancer

After Breast Cancer Diagnosis (ABCD)

ABCD provides free, personalized information and one-to-one support to people affected by breast cancer – patients, families and friends. ABCD complements the work of healthcare providers by providing the following breast cancer support services: One-to-One mentoring breast cancer support service, a Breast Cancer Helpline and Resource List, and MORE: Mentor Outreach and Education program. Breast Cancer Helpline: 800.977.4121

Breast Cancer Alliance

Breast Cancer Alliance (BCA) is one of the most prominent and highly ranked breast cancer charities in the country.  Its mission is to improve survival rates and quality of life for those impacted by breast cancer by investing in innovative research, the training of future breast surgeons and eliminating barriers of access to critical care for underserved patients.

Breast Cancer Research Foundation (BCRF)

An independent 501(c)(3) not-for-profit organization whose mission is to achieve prevention and a cure for breast cancer by providing critical funding for innovative clinical and genetic research at leading medical centers worldwide, and increasing public awareness about good breast health. 646.497.2600 or 866.FIND.A.CURE | 866.346.3228

Breastcancer.org

Breastcancer.org provides reliable, easy-to-understand, and actionable information and support services at no cost to people looking to make the best decisions for their lives. Learn more at www.breastcancer.org and join our community forums to connect with others. 

Brem Foundation

The Brem Foundation maximizes women's chances of finding early, curable breast cancer through education, access, and advocacy.

DiepCjourney Foundation

DiepCjourney Foundation is a non-profit 501(c)3 organization providing education and resources to empower women and men to make an informed decision about options for breast reconstruction after a mastectomy. Resources provided by the Foundation include educating patients about the process of breast reconstruction from exploring options, planning surgery, and support throughout the healing process. We are a global community connecting patients to highly skilled, board certified plastic surgeons via online support and personalized counsel. We provide an educational YouTube channel with a variety of topics and interviews with plastic surgeons, patients, physical therapist, decorative tattoo artists and financial advisement for breast reconstruction.

Facing Our Risk of Cancer Empowered (FORCE)

FORCE improves the lives of the millions of individuals and families facing hereditary breast, ovarian, pancreatic, prostate, colorectal and endometrial cancers. Our community includes people with a personal or family history of cancer, Lynch syndrome, a BRCA1, BRCA2, ATM, PALB2, CHEK2, PTEN or other inherited gene mutation linked to cancer.  We accomplish this through our education, support, advocacy and research efforts.

GPAC Global Patient Advocacy Coalition

GPAC unites patient advocates globally; connecting patients, practitioners, medical societies and regulatory agencies.  GPAC is working to ensure that every patient is given the proper safety information to make an informed and educated decision about their medical procedures.

Inflammatory Breast Cancer Research Foundation

Comprehensive resource for people seeking inflammatory breast cancer information. We provide one on one support/guidance for those with worrisome symptoms or those already diagnosed. Collaborate with the research community to facilitate research through funding and advocate involvement in research projects.

Living Beyond Breast Cancer (LBBC)

Founded in 1991, Living Beyond Breast Cancer is a Charity Navigator 4-star rated nonprofit organization whose mission is to connect people to trusted information and a community of support. LBBC delivers free programs and resources to those diagnosed with breast cancer and their caregivers online, in print, by phone and in person. 855.807.6386. Breast Cancer Helpline: 888.753.LBBC | 888.753.5222

Lobular Breast Cancer Alliance Inc.

The Lobular Breast Cancer Alliance Inc. is the only nonprofit organization in the US focusing specifically on raising awareness and educating about invasive lobular carcinoma (ILC). Our mission is to make all who are touched by ILC aware of its unique characteristics and the critical need for more ILC research; to be the go-to source for information on ILC studies, clinical trials, and educational tools; to foster partnerships among patients, scientists, clinicians, and breast cancer organizations to increase dialogue about ILC and research advocacy; and to fund vital ILC research. Learn more at www.lobularbreastcancer.org.

Metastatic Breast Cancer Network (MBCN)

The Metastatic Breast Cancer Network (MBCN) is a national, volunteer, non-profit, patient-led advocacy organization solely dedicated to the unique concerns of women and men living with metastatic breast cancer. MBCN seeks to educate patients, provide information about the disease at its website (mbcn.org) and empower patients and caregivers to use their story and voice to advocate for focused research to lengthen lives. 888.500.0370

National Breast Cancer Coalition

A grassroots advocacy organization consisting of more than 500 organizations and over 60,000 individuals from across the United States, dedicated to fighting breast cancer. Informs, trains, and directs patients and supporters in knowledgeable and effective advocacy efforts. 800.622.2838 or 202.296.7477

Sharsheret

Sharsheret supports young Jewish women and families facing breast cancer at every stage—before, during, and after diagnosis. We help women and families connect to our community in the way that feels most comfortable, taking into consideration their stage of life, diagnosis, or treatment, as well as their connection to Judaism. We also provide educational resources, offer specialized support to those facing ovarian cancer or at high risk of developing cancer, and create programs for women and families to improve their quality of life. We understand that young Jewish women have unique concerns when it comes to breast and ovarian cancer, and we are the only organization that specializes in serving them. Learn more about our services and programs at www.sharsheret.org.

Sisters Network, Inc.

A non-profit African-American breast cancer survivors’ organization. It promotes the importance of breast health through personal empowerment, support, breast education programs, resources, information, and research through its strong affiliate chapter base. 713.781.0255 or 866.781.1808

Susan G. Komen®

Susan G. Komen is the world’s largest breast cancer organization, funding more breast cancer research than any other nonprofit while providing real-time help to those facing the disease. Since its founding in 1982, Komen has funded more than $889 million in research and provided $1.95 billion in funding to screening, education, treatment and psychosocial support programs serving millions of people in more than 30 countries worldwide. Komen was founded by Nancy G. Brinker, who promised her sister, Susan G. Komen, that she would end the disease that claimed Suzy’s life. Visit komen.org or call 1-877 GO KOMEN (1-877 465-6636). Connect with us on social at  ww5.komen.org/social

Unite for HER

Our mission is to enrich the health and well-being of those diagnosed with breast and ovarian cancers – for life – by funding and delivering integrative therapies. OUR VISION is for every person with breast and ovarian cancers to  feel the support of a loving community, and will have access to comprehensive education, services, and tools that enrich their health and well-being. 

Young Survival Coalition (YSC)

The only international, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. The YSC also serves as a point of contact for young women living with breast cancer. 646.257.3000 or 877. 972.1011

Carcinoid Cancer/Neuroendocrine Tumors

Carcinoid Cancer Foundation, Inc.

The mission of this foundation is to conduct, encourage and support research and to educate the general public and health care professionals regarding carcinoid and related neuroendocrine tumors. 888.722.3132

Chronic Lymphocytic Leukemia

CLL Society

CLL Society is an inclusive, patient-centric, physician-curated nonprofit organization that addresses the unmet needs of the chronic lymphocytic leukemia and small lymphocytic lymphoma (CLL/SLL) community through patient education, advocacy, support, and research.

Colon Cancers

Colorectal Cancer Alliance

The Colorectal Cancer Alliance empowers a nation of passionate and determined allies to prevent, treat, and overcome colorectal cancer in their lives and communities. Founded in 1999 and headquartered in Washington, D.C., the Alliance advocates for prevention, magnifies support, and accelerates research. We are the largest national nonprofit dedicated to colorectal cancer, and we exist to end this disease in our lifetime.

Fight Colorectal Cancer

Fight Colorectal Cancer (Fight CRC) is a leading patient-empowerment and advocacy organization providing balanced and objective information on colon and rectal cancer research, treatment, and policy. Serving as relentless champions of hope, focused on funding promising, high-impact research endeavors while equipping advocates to influence legislation and policy for the collective good. Learn more at FightCRC.org and follow on social media @FightCRC!

Love Your Buns

Love Your Buns is committed to educating and empowering patients, caregivers, and family with the information they need to make important colorectal cancer therapy decisions, and providing survivorship support after treatment to improve their quality of life.  We are honored to endorse these extensive resources.

Paltown Development Foundation

Empowering patients and caregivers by creating disease-specific communities to address information needs and social isolation through training, technology, and developing purpose-driven community leadership. COLONTOWN is our flagship program, an online community for colorectal cancer patients and caregivers, anow serving more than 9,000 members. Run entirely by patients and caregivers.

United Ostomy Associations of America, Inc. (UOAA)

United Ostomy Associations of America, Inc. (UOAA) promotes quality of life for people with ostomies and continent diversions through information, support, advocacy, and collaboration. UOAA has 280+ Affiliated Support Groups in the United States which are organized for the benefit of people who have or will have intestinal or urinary diversions, and their caregivers. Bladder cancer patients facing surgery are not alone. Please visit https://www.ostomy.org/ for support resources, self-advocacy tools, patient stories, special events, and free educational resources, such as our Living with a Urostomy Guide and more.

Esophageal Cancer

ECAN Esophageal Cancer Action Network, Inc.

ECAN's mission is to save lives: by raising awareness about the link between reflux and cancer, by promoting early detection, by increasing funding for medical research, by making sure patients have the most reliable and up-to-date information, andby providing compassionate support to patients and caregivers.

Esophageal Cancer Awareness Association (ECAA) dba EC Aware

ECAA is a 501(c)(3) all-volunteer non-profit organization with four mission goals: to raise public and professional awareness of esophageal cancer; to educate the public regarding the risks and symptoms of EC; to contribute to research into detection, treatment, and cure; and to provide personal support to patients, caregivers, and loved ones. 1.800.601.0613

Esophageal Cancer Education Foundation

ECEF’s mission is to bring awareness and educate the public and medical community about Esophageal Cancer and to walk the journey with patients who have this disease and to support research projects dealing with Esophageal Cancer. ECEF has developed an array of services that can assist the patient and caregiver through the esophageal cancer journey. 732.385.7461

Gallbladder and Bile Duct Cancers

The Cholangiocarcinoma Foundation

The Cholangiocarcinoma Foundation is a global organization with the mission of finding a cure for bile duct cancer and improving the quality of life for patients. CCF pursues innovative methodologies, technologies, and partnerships to drive education, support programs, research, and funding strategies. curecca.org

Gynecologic Cancers

Cervivor, Inc.

Cervivor is a global community of patient advocates who inspire and empower those affected by cervical cancer by educating and motivating them to use their voices for creating awareness to end stigma, influence decision and change, and end cervical cancer. Cervivor is here to provide hope, support, and an advocacy platform for all individuals impacted by cervical cancer - no matter where they live.

Endometrial Cancer Action Network for African-Americans (ECANA)

We are a group of women who have come together to create support, community, and empowerment for any African-American woman affected by endometrial cancer. We are patients, doctors, survivors, community advocates, and professional leaders all committed to one purpose - improving the lives of Black women affected by this disease by building community, sharing accessible education, and setting a new standard of research for endometrial cancer.

Facing Our Risk of Cancer Empowered (FORCE)

FORCE improves the lives of the millions of individuals and families facing hereditary breast, ovarian, pancreatic, prostate, colorectal and endometrial cancers. Our community includes people with a personal or family history of cancer, Lynch syndrome, a BRCA1, BRCA2, ATM, PALB2, CHEK2, PTEN or other inherited gene mutation linked to cancer.  We accomplish this through our education, support, advocacy and research efforts.

Foundation for Women's Cancer

The Foundation for Women's Cancer raises public awareness of ways to prevent, detect and optimally treat gynecologic cancers; provides education about gynecologic cancers and the importance of seeking care first from a gynecologic oncologist if a gynecologic cancer is suspected or diagnosed; and supports promising, innovative gynecologic cancer research.

National Cervical Cancer Coalition

An advocacy group dedicated to educating the public about cervical cancer prevention and outreach, new screening and treatment options, cervical cancer screening and follow-up programs, HPV, the limitations of the Pap smear AND its overwhelming success as a screening tool for clinicians. 800.685.5531

National Ovarian Cancer Coalition

For more than 25 years, the National Ovarian Cancer Coalition® has been committed to raising awareness of ovarian cancer in communities across the country and to providing education, support and hope for women with ovarian cancer and for their families. For more information or to find a support chapter near you, please visit www.ovarian.org, call 888.OVARIAN | 888.682.7426, or connect with us on social media.

Ovarian Cancer Research Alliance (OCRA)

Ovarian Cancer Research Alliance is committed to curing ovarian cancer, advocating for patients, and supporting survivors. OCRA is the largest ovarian cancer charity with over $110 million invested in research. Committed to the gynecologic cancer community, OCRA offers a range of advocacy, support and educational initiatives ensuring the those impacted by a gynecologic cancer are heard and cared for. Our national conference, webinars, and website offer the most up to date information on diagnosis, treatment and living with ovarian and gynecologic cancers. Our support programs include our Patient Support line, peer mentor program, Staying Connected support series and online community. OCRA builds community through advocacy, research, collaboration, and support.

Patient Access Network (PAN) Foundation

PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic, and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000 patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.

Sharsheret

Sharsheret supports young Jewish women and families facing breast cancer at every stage—before, during, and after diagnosis. We help women and families connect to our community in the way that feels most comfortable, taking into consideration their stage of life, diagnosis, or treatment, as well as their connection to Judaism. We also provide educational resources, offer specialized support to those facing ovarian cancer or at high risk of developing cancer, and create programs for women and families to improve their quality of life. We understand that young Jewish women have unique concerns when it comes to breast and ovarian cancer, and we are the only organization that specializes in serving them. Learn more about our services and programs at www.sharsheret.org.

Society of Gynecologic Oncology

The Society of Gynecologic Oncology (SGO) is the premier medical specialty society for health care professionals trained in the comprehensive management of gynecologic cancers. SGO promotes excellence in the care of women at risk for or affected by gynecologic cancer through advocacy, education, research and inter-disciplinary collaboration.

Unite for HER

Our mission is to enrich the health and well-being of those diagnosed with breast and ovarian cancers – for life – by funding and delivering integrative therapies.

Head and Neck Cancer

Global Resource for Advancing Cancer Education (GRACE)

GRACE provides expert-mediated information on current and emerging cancer management options in order to empower patients, caregivers, and health professionals to become direct partners in cancer care.

Head and Neck Cancer Alliance

The Head and Neck Cancer Alliance is a patient advocacy nonprofit organization working to advance prevention, detection, treatment, and rehabilitation of oral, head and neck cancer through public awareness, research, advocacy, and survivorship.

Head and Neck Cancer Fund

The HNC Fund facilitates comprehensive financial support for the well-being of one Head and Neck Cancer patient a year.

The HPV Cancers Alliance (HPVCA)

The HPVCA seeks to educate the medical societies and the general public, as well as eliminate the stigma surrounding the human papillomavirus (HPV) and its associated cancers.  The HPVCA hosts town hall events bridging the gap between lawmakers and their constituents to discuss and campaign for vital legislation pertaining to HPV, such as the Prevent HPV Cancers Act. The HPVCA partners with organizations sharing their same goal in order to eliminate those barriers and allow everyone the equal, fighting chance to care for their health.

Oral Cancer Foundation

OCF provides online and phone support to patients and survivors. It sponsors research in the head and neck world, advocates in government agencies for issues impacting patients, and provides a website rich with information about this cancer. 

Support for People with Oral and Head and Neck Cancer (SPOHNC)

A non-profit organization involved in the development of programs of support. As such it can have an enormous positive impact on meeting the psychosocial needs of patients as well as preserving, restoring and promoting physical and emotional health. SPOHNC is dedicated to raising awareness and meeting the needs of oral and head and neck cancer patients through its resources and publications. Visit SPOHNC at spohnc.org to become empowered with the essential programs and resources. Together We Heal!

THANC (Thyroid, Head and Neck Cancer) Foundation

The THANC (Thyroid, Head and Neck Cancer) Foundation supports research and education in the early detection and treatment of thyroid, head and neck cancer; advances new therapeutic approaches and works to alleviate the suffering and functional impairment of patients who undergo treatment. This mission is accomplished through the THANC Guide (https://www.thancguide.org) - an online resource for patients and caregivers as well as TIRO (Thyroid International Recommendations Online (https://tiro.expert).

Kidney Cancer

International Kidney Cancer Coalition (IKCC)

The International Kidney Cancer Coalition (IKCC) is an independent international network of 49 patient-focused Affiliate Organisations that focus on kidney cancer. Based in Amsterdam, The Netherlands, the organisation was born from a strong desire among multiple national kidney cancer patient groups to network, collaborate and share knowledge and experiences to ultimately magnify the voices of kidney cancer patients globally.

Kidney Cancer Association (KCA)

The Kidney Cancer Association was founded in 1990 by a small group of patients and doctors and has grown into an international non-profit organization. The KCA seeks to be a source of education and resources for patients, caregivers, and anyone impacted by kidney cancer; promotes scientific advances through research symposiums and a robust grant program; and participates in legislative advocacy. Visit kidneycancer.org to find a growing list of available resources.

KidneyCAN

KidneyCAN is a nonprofit patient advocacy organization with the mission of accelerating cures for kidney cancer. KidneyCAN provides patient support and education, engages in legislative advocacy for research funding, and propels collaboration amongst researchers.

Urology Care Foundation

The Urology Care Foundation is the world's leading nonprofit urological health foundation, and the official foundation of the American Urological Association. Partnering with physicians, researchers, healthcare professionals, patients, caregivers, families and the public, the Foundation supports and improves urologic clinical care by funding research, developing patient education and pursuing philanthropic support.

Leukemia and Lymphoma

Aplastic Anemia and MDS International Foundation (AAMDSIF)

The Aplastic Anemia and MDS International Foundation supports, connects and educates patients, caregivers and health professionals on bone marrow failure diseases worldwide. It promotes and invests in collaborative clinical research to accelerate the discovery of better treatments and cures for aplastic anemia, MDS, PNH and related bone marrow failure diseases. Patient Information: 301.279.7202 or toll free 800.747.2820.

Be the Match

We're here to help you and your loved ones from diagnosis through survivorship. Our navigators can help you learn about blood or marrow transplant (BMT), cope with uncertainty, access financial grants, find clinical trials, and connect with people who've been through BMT. All our programs and resources are free.

International Waldenstrom's Macroglobulinemia Foundation

The International Waldenstrom's Macroglobulinemia Foundation (IWMF) is a patient-founded and volunteer-led nonprofit organization that is dedicated to a simple but compelling vision: Support everyone affected by Waldenstrom's macroglobulinemia (WM) while advancing the search for a cure. To accomplish this vision, the IWMF offers Information from our website, www.iwmf.com, and our publications written in a patient-friendly way to promote understanding of our rare disease: Education at our annual Educational Forum to help patients and caregivers learn about our disease from WM researchers and clinicians; On-going updates about WM and the IWMF sent through our quarterly Torch newsletter and our NEWS releases; Peer support from others who've been where you are; Information for medical professionals who may have limited experience with our rare disease; and Research directed to better treatments while we search for a cure. Visit www.iwmf.com for more information.

The Leukemia & Lymphoma Society (LLS)

The Leukemia & Lymphoma Society (LLS) is dedicated to developing better outcomes for blood cancer patients and their families through research, education, support and advocacy and is happy to have this comprehensive resource available to patients. www.LLS.org/Patient-Support.

Lymphoma Research Foundation

LRF creates, promotes, and supports lymphoma research and provides comprehensive educational and supportive programs for lymphoma patients and their families. 800.500.9976

MPN Cancer Connection

MPN Cancer Connection provides patient education, self-advocacy resources and support services for people with MPNs.

MPN Education Foundation

The MPN Education Foundation is the only all-volunteer, charitable organization that has been devoted to education of myeloproliferative neoplasm patients for 20 years. Access our archives, and join 3,000 fellow patients with the MPN-NET link on this page: mpninfo.org

MPN Research Foundation

MPN Research Foundation is dedicated to funding and advancing original research in pursuit of new treatments—and eventually a cure—for essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF), blood cancers that are known collectively as myeloproliferative neoplasms (MPN). Founded in 1999, MPNRF was the first organization in the MPN space and is the only one focused on advancing research. From its unique position at the intersection among three key stakeholders—patients, researchers/clinicians, and the biopharma/biotech industry—MPNRF facilitates a collaborative approach to research that elevates the patient voice in research and drug development, brings disease experts together, and accelerates the industry’s understanding of an extremely complex group of diseases.

Patient Access Network (PAN) Foundation

PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic, and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000 patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.

Liver Cancer

American Liver Foundation

(ALF)'s mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease. ALF makes a measurable difference in the fight against liver disease by providing research awards for medical research, education programs for medical professionals, and education programs and information, support services, and advocacy for patients and their families. The American Liver Foundation has 16 Divisions across the United States, serving individuals from all 50 states. 800.GO.LIVER | 800.465.4837

The Bili Project Foundation

Mission statement - Reduce the INCIDENCE and IMPROVE THE OUTCOMES of Hepatobiliary cancers by funding research to identify early detection methods and curative treatments for cancers of the bile duct, liver and gallbladder.

Blue Faery: The Adrienne Wilson Liver Cancer Association

Blue Faery's mission is to prevent, treat and cure primary liver cancer, specifically Hepatocellular Carcinoma (HCC), through research, education and advocacy. Founder Andrea Wilson started Blue Faery after her younger sister Adrienne (whom Andrea raised from the age of eight) died from HCC when she was 15 years old. Adrienne was only ill 147 days. For more information, go to bluefaery.org.

Global Liver Institute

Global Liver Institute saves lives by empowering patient advocates to collaborate with policymakers, clinicians, and industry to drive the liver health field forward. Our mission is to improve the lives of individuals and families impacted by liver disease through promoting innovation, encouraging collaboration, and scaling optimal approaches to help eradicate liver diseases.

Lung Cancer

ALK Positive

ALK Positive is the largest online support group for patients, caregivers, family and friends of those diagnosed with ALK-positive lung cancer; representing over 40 countries. Our commitment is to provide hope and help those diagnosed obtain information, support and empathy. We believe that facing this disease as a community improves patient outcomes. Most importantly, we are determined to be active participants in helping medical science improve treatment options, advance research and raise awareness for ALK-positive lung cancer. Visit http://www.alkpositive.org for more information.

American Lung Association

The American Lung Association provides comprehensive Lung Cancer patient education and awareness programs in screening, biomarker testing, targeted therapy, and many supplemental pieces. We also gather and disseminate patient stories, as well as provide online support communities, and peer-to-peer mentoring.

Bonnie J. Addario Lung Cancer Foundation

The Bonnie J. Addario Lung Cancer Foundation (ALCF) is the largest global patient-founded, patient-focused, and patient-driven non-profit devoted exclusively to eradicating Lung Cancer. Through funding innovative research, patient education, and awareness the Foundation's goal is to turn lung cancer into a chronically managed disease by 2023. The Foundation works with a diverse group of physicians, organizations, industry partners, individuals, patients, survivors, and their families to identify solutions and make timely and meaningful changes. The ALCF was established on March 1, 2006 as a 501c(3) non-profit organization and has raised nearly $30 million for lung cancer research and related programs.

Caring Ambassadors

The Caring Ambassadors Lung Cancer Program empowers patients and providers with access to free educational materials, and resources. Lung Cancer Choices, 6th Edition is a decision-aid and comprehensive resource book providing information about lung cancer for patients and their loved ones.

Clifton F. Mountain Foundation for Education and Research in Lung Cancer

The Clifton F. Mountain Foundation for Education and Research in Lung Cancer was created approximately 30 years ago by Clifton F. Mountain, MD, who developed the International System for the Staging of Lung Cancer while at M.D. Anderson Cancer Center in Houston, Texas. The Foundation’s primary function has been to educate physicians about application of the Staging System to lung cancer patients, and to emphasize that early detection of lung cancer is key to the best outcomes possible. The Foundation has created and distributed (worldwide) handbooks for physicians’ pockets, as a practical aid to proper staging. The Foundation has a current interest in educating primary care providers to keep lung cancer in their differential diagnoses. As President, Merel Mountain Nissenberg participates as the Advocate for the M.D. Anderson Lung Cancer SPORE; serves on the Lung Cancer Collaborative Group of the Early Detection Network of NCI; and is a participant in LungCAN. 

Free ME from Lung Cancer

Free ME from Lung Cancer provides early lung cancer screening for uninsured patients, help single family low income home owners get access to radon air abatement systems and fund research.

Global Resource for Advancing Cancer Education (GRACE)

GRACE provides expert-mediated information on current and emerging cancer management options in order to empower patients, caregivers, and health professionals to become direct partners in cancer care.

LiveLung (Dusty Joy Foundation)

Our organization serves lung cancer patients by providing resourceful patient bags to dozens of cancer centers where nurse navigators distribute them in newly diagnosed lung cancer patients. We also have a network of educational and empowering patient groups who meet both virtual and in person.

Lung Cancer Action Network (LungCAN)

The Lung Cancer Action Network (LungCAN) is an association of patient advocacy groups serving people with or at risk for lung cancer. LungCAN member collaborate on various initiatives to advance our greater shared goals.

Lung Cancer Alliance

Lung Cancer Alliance is the leading nonprofit organization solely dedicated to saving lives and advancing research by empowering those living with and at risk for lung cancer. We provide live, professional support, referral and information services free of charge for patients and their loved ones to improve outcomes; conduct national awareness campaigns to reduce stigma, and educate about the disease, risk and life-saving early detection; advocate for multiple millions in federal research funding to increase treatment options leading to cures; and improve access to care for all those impacted. 800.298.2436 (U.S. only); 202.463.2080

Lung Cancer Circle of Hope

Lung Cancer Circle of Hope (LCCH) is an educational nonprofit committed to providing comprehensive, state of the art information about lung cancer. With early detection and increased therapeutic options, it is our goal to reduce the current statistics associated with this cancer. POB 7092, Rochelle Park, NJ 07662

Lung Cancer Initiative of NC

As the state's leading non-profit organization supporting lung cancer research and education, Lung Cancer Initiative of North Carolina specializes in connecting patients, survivors and loved ones with the medical and research community. Our mission is to save lives and provide support to those affected by lung cancer through research, awareness, education and access programs across North Carolina.

Lung Cancer Online

A website, maintained by the Lung Cancer Alliance, devoted to education and support of lung cancer patients and their families.

Lung Cancer Research Foundation

The mission of the Lung Cancer Research Foundation (LCRF) is to improve lung cancer outcomes by funding research for the prevention, diagnosis, treatment and cure of lung cancer. LCRF provides free educational materials that are available for print and digital order, and a Lung Cancer Support Line that is equipped with extensive and up-to-date resource guides to help you navigate the various uncertainties that come with living with lung cancer. Additionally, LCRF hosts webinars and in-person programs to bring the lung cancer community together to discuss topics important to them. All these resources can be found on our website at: LCRF.org/resources.

LUNGevity Foundation

LUNGevity provides an active community for patients and survivors—and those who help them live longer and better lives. Comprehensive resources include a medically vetted and patient-centric website, a toll-free HELPLine for support, the International Lung Cancer Survivorship Conference, and an easy-to-use Clinical Trial Finder, among other tools. All of these programs are to achieve our vision—a world where no one dies of lung cancer.

Melanoma/Skin Cancer

AIM at Melanoma

AIM at Melanoma Foundation strives to provide patients and their families— both the newly diagnosed as well as those looking to gain a greater understanding of their disease—with a full suite of tools to guide them along their treatment journey. Our website provides reliable, relevant, and current information about all aspects of melanoma. 

American Academy of Dermatology

A professional organization representative of all dermatologic associations. With a membership of more than 13,700, it represents virtually all practicing dermatologists in the United States. Includes resource pages for various skin diseases including melanoma. 847.330.0230

Melanoma International Foundation (MIF)

MIF develops personalized strategies with patients so they may live longer, better lives. Their Vision is a future where top-notch melanoma treatment is accessible to all patients globally. Toll-free Helpline: 866-463-6663; Global: 610-942-3434.

Melanoma Network of Canada

The Melanoma Network of Canada (MNC) was founded in 2009, to respond to the needs of melanoma and skin cancer patients in Canada. MNC is a National organization dedicated to coordinating education and prevention efforts, raising awareness, providing a strong voice for advocacy, and support services and programs for melanoma and non-melanoma skin cancer patients and caregivers. MNC works tirelessly to develop and implement programs, and offer services to meet the needs of melanoma and skin cancer patients and their caregivers from initial diagnosis, through treatment and recovery, and in case of recurrence.

Melanoma Research Alliance

The mission of the Melanoma Research Alliance is to end suffering and death due to melanoma by collaborating with all stakeholders to accelerate powerful research, advance cures for all patients, and prevent more melanomas.

Melanoma Research Foundation

The Melanoma Research Foundation (MRF) is the largest independent organization devoted to melanoma. Committed to the support of medical research in finding effective treatments and eventually a cure for melanoma, the MRF also educates patients and physicians about prevention, diagnosis, and the treatment of melanoma. The MRF is an active advocate for the melanoma community, helping to raise awareness of this disease and the need for a cure. The MRF’s website is the premier source for melanoma information seekers.

Merkel Cell Carcinoma Seattle Support Group

Located in Seattle, WA, this flexible, open discussion group is for anyone touched by MCC (patients, spouses, family and friends) from the Seattle area and out of state. This is an informal opportunity to meet others coping with MCC, share stories and information, answer questions and provide support. We have first-hand knowledge and experience to share about treatments, clinical research trials and coping with MCC.

Patient Access Network (PAN) Foundation

PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic, and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000 patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.

Save Your Skin Foundation (SYSF)

Save Your Skin Foundation (SYSF) is a patient-led organization dedicated to the fight against non-melanoma skin cancers, melanoma, and ocular melanoma through education, advocacy, and awareness initiatives across Canada. SYSF provides a community of oncology patient and caregiver support throughout the entire continuum of care, from prevention and diagnosis to survivorship.

Skin Cancer Education & Research Foundation

The goal of the Skin Cancer Education and Research Foundation is to educate and support people concerned about or diagnosed with skin cancer and those who care for them through education, community-building, advocacy, and research to achieve the best care and outcomes possible.

Skin Cancer Foundation

The Skin Cancer Foundation is an education organization offering information about skin cancer, its prevention by means of sun protection, the need for early detection and prompt, effective treatment.

Mesothelioma

Mesothelioma Applied Research Foundation

The Mesothelioma Applied Research Foundation is the national nonprofit organization dedicated to finding a cure and eradicating mesothelioma as a life-ending disease by:

  • Funding the highest quality and most promising mesothelioma research projects from around the world through our rigorous peer-reviewed process;
  • Helping mesothelioma patients connect with national mesothelioma experts and obtain the most up-to-date information on treatment options;
  • Advocating in Washington D.C. for government mesothelioma research funding to stop this national tragedy.

To date, the Foundation has funded over $9.4 million in mesothelioma research. To contact, visit www.curemeso.org or call 877.End.Meso | 877.363.6376.

Myelodysplastic Syndromes

Aplastic Anemia and MDS International Foundation (AAMDSIF)

The Aplastic Anemia and MDS International Foundation supports, connects and educates patients, caregivers and health professionals on bone marrow failure diseases worldwide. It promotes and invests in collaborative clinical research to accelerate the discovery of better treatments and cures for aplastic anemia, MDS, PNH and related bone marrow failure diseases. Patient Information: 301.279.7202 or toll free 800.747.2820.

The MDS Foundation

The MDS Foundation, Inc. (MDSF) is an international organization devoted to the support and education of patients and healthcare providers in the fields of MDS and related myeloid neoplasms in order to accelerate progress leading to the control and cure of these diseases. MDSF was established in 1994 by world-renowned researchers. By building an international community of physicians, researchers, and patients, we will make potentially curative therapies available for all patients with MDS.

Myeloma

Global Resource for Advancing Cancer Education (GRACE)

GRACE provides expert-mediated information on current and emerging cancer management options in order to empower patients, caregivers, and health professionals to become direct partners in cancer care. www.cancergrace.org

Multiple Myeloma Research Foundation (MMRF)

The Multiple Myeloma Research Foundation (MMRF) drives discoveries for new treatments, accelerates groundbreaking clinical trials and fuels the most robust data-driven initiatives in cancer research. Our goal is to find a cure for each and every patient diagnosed with multiple myeloma.

 

Myeloproliferative Neoplasms

The Leukemia & Lymphoma Society

LSS assists blood cancer patients in navigating the best route from diagnosis through treatment, clinical trials and survivorship. 800.955.4572;  infocenter@LLS.org.

MPN Cancer Connection

MPN Cancer Connection (MPN-CC) is a 501(c)(3) non-profit corporation. MPN-CC recognizes MPN patients are in fact "cancer patients" and should have full access to programs, benefits and resources available in your area. We believe that patient advocacy is more than a support mechanism, it is an important part of pushing forward new medicines and ultimately a cure. MPN-CC provides an extensive Resource page to help patients meet financial challenges with assistance on co-pays, medication assistance, airfare, federal benefits and reliable MPN websites to research their illness. Ultimately, we are here to help patients and guide them to the appropriate resources.

MPN Education Foundation

The MPN Education Foundation is the only all-volunteer, charitable organization that has been devoted to education of myeloproliferative neoplasm patients for 20 years. Access our archives, and join 3,000 fellow patients with the MPN-NET link on this page: mpninfo.org

MPN Research Foundation

The mission of the MPN Research Foundation is to stimulate original research in pursuit of new treatments -- and eventually a cure -- for the blood cancers polycythemia vera, essential thrombocythemia and myelofibrosis, known collectively as myeloproliferative neoplasms (MPN). Through a combination of research funding, advocacy and education, we bring together patients, researchers and clinicians around the common goal of realizing new treatment options and ultimately, a cure for MPNs. In 2017 MPNRF launched myMPN, a registry for people living with PV, ET and MF. This is a tool that allows patients to record information about their diagnosis, symptoms, demographics, disease change and more in real time and allow that information be used for research purposes. We are committed to the MPNs for the long haul.

Neuroendocrine Tumors

Neuroendocrine Cancer Awareness Network (NCAN)

The Neuroendocrine Cancer Awareness Network (NCAN) is a non-profit organization dedicated to raising awareness of Neuroendocrine Cancer, providing support for caregivers and people with NETs, and funding for NET cancer research. Since 2003, it has been our mission, or as we like to say, our passion, to educate and support the NET community as a whole.

Our passion pays off! Thanks to the community of NET patients and caregivers that we serve, NCAN has once again been awarded top rated nonprofit organization status by greatnonprofits.org. It's an award bestowed upon us by the community, and we're proud to say that we've been honored with this award every year since 2011. This status helps bring even more credibility to our organization, which in turn helps donors and volunteers feel more confident in their choice to support us.

In addition to the NET hotline and the thousands of information packets that have been sent to patients and caregivers, the NCAN organization has produced over 60 conferences around the country.

866.850.9555; info@netcancerawareness.org.

Neuroendocrine Tumor Research Foundation (NETRF)

Neuroendocrine Tumor Research Foundation (NETRF) is the leading private funder of research to discover cures and more effective treatments for neuroendocrine cancer and offers many resources to help patients and families facing neuroendocrine cancer:

  • Regional patient and caregiver educational conferences
  • NET doctor database
  • Regional NET support group listings
  • Info on different types of NETs
  • Online library of videos explaining NET treatment options
  • NET research updates
  • Self-care and survivorship tips

 

NETRF is committed to improving the lives of patients and families affected by this uncommon and often overlooked disease. 617.946.1780

NorCal CarciNET Community

Our mission is to help those with neuroendocrine tumors and carcinoid to share challenges and experiences, learn about prognosis and treatments, find information, and improve communications between the medical community, patients and caregivers. We host monthly support meetings and have an extensive collection of educational videos on our site. contactus@norcalcarcinet.org

The Carcinoid Cancer Foundation, Inc.

The Carcinoid Cancer Foundation provides a variety of digital resources for neuroendocrine tumor patients and their families, telephone and email support, and serves as advocates for the NET community. Digital resources include our website with information about doctors specializing in NET treatment, treatment options, and support groups; videos; an e-newsletter; and social media platforms, including Facebook and YouTube, on which we share programs such as Luncheon with the Experts, educational videos, and patient stories of hope. 888.722.3132

The Healing NET Foundation

The Healing NET Foundation mission is to optimize care for those with neuroendocrine cancer. Optimal care happens when the physician and patient work together using the best information available, when a multidisciplinary medical team coordinates care, and when experts imagine a better future of care. Physicians and health care providers need education in this complex and varied cancer and access to the latest diagnostic and treatment options; patients and their caregivers need information that helps them find the best care and advocate effectively for themselves and their loved ones. Co-founded in 2013 by a physician and a patient, Healing NET is a 501(c)(3) established to raise awareness, provide resources, and bring people together to solve problems. 615.369.6463

Ovarian Cancers

Facing Our Risk of Cancer Empowered (FORCE)

A national nonprofit providing support, education and awareness to help those facing hereditary breast, ovarian and related cancers—such as uterine, prostate and pancreatic—know their healthcare options and make informed decisions. The organization is the de facto leader in guiding critical research and policy issues that impact the hereditary cancer community. 866.288.RISK | 866.288.7475

Foundation for Women's Cancer

The Foundation for Women's Cancer raises public awareness of ways to prevent, detect and optimally treat gynecologic cancers; provides education about gynecologic cancers and the importance of seeking care first from a gynecologic oncologist if a gynecologic cancer is suspected or diagnosed; and supports promising, innovative gynecologic cancer research.

Mucinous Ovarian Cancer Coalition (MOCC)

MOCC provides support to women with mucinous ovarian cancer, as well as funding to researchers around the world.  Our resource-rich website has a learning center where women can find GYN oncologists who offer second opinions, and guides and articles on the disease.

National Ovarian Cancer Coalition

For more than 25 years, the National Ovarian Cancer Coalition® has been committed to raising awareness of ovarian cancer in communities across the country and to providing education, support and hope for women with ovarian cancer and for their families. For more information or to find a support chapter near you, please visit www.ovarian.org, call 888.OVARIAN | 888.682.7426, or connect with us on social media.

NormaLeah Ovarian Cancer Initiative

Women with ovarian cancer have very special needs. As the nation’s largest volunteer-led organization providing patient education and support, NormaLeah Ovarian Cancer Initiative relies heavily on the NCCN Guidelines for Patients®: Ovarian Cancer. This guide should be used by all women who have been told “you have ovarian cancer”. It is a resource that empowers women to partner with their healthcare providers and helps patients advocate for proper care for better health outcomes.

Ovarcome

We raise global awareness, fund research, and provide financial, psycho-social and informational support to our Ovarcomers (ovarian cancer patients and survivors). Ovarcome is inspired by the simple philosophy of support, love, and celebration of life. Let’s keep Ovarcoming!

Ovarian Cancer Research Alliance (OCRA)

Ovarian Cancer Research Alliance is committed to curing ovarian cancer, advocating for patients, and supporting survivors. OCRA is the largest ovarian cancer charity with over $110 million invested in research. Committed to the gynecologic cancer community, OCRA offers a range of advocacy, support and educational initiatives ensuring the those impacted by a gynecologic cancer are heard and cared for. Our national conference, webinars, and website offer the most up to date information on diagnosis, treatment and living with ovarian and gynecologic cancers. Our support programs include our Patient Support line, peer mentor program, Staying Connected support series and online community. OCRA builds community through advocacy, research, collaboration, and support.

Patient Access Network (PAN) Foundation

PAN is an independent non-profit organization that provides assistance to underinsured patients for their out-of-pocket expenses for life-saving medications. PAN supports patients through nearly 60 oncology, chronic, and rare disease funds that cover conditions such as multiple myeloma, metastatic breast cancer, and lung cancer (non-small cell). Since 2004, PAN has provided nearly $400 million in assistance for out-of-pocket expenses through more than 200,000 patient grants. Patients and their advocates can apply for assistance by calling 866.316.7263 or start the application process online at www.PANFoundation.org.

Sharsheret

Sharsheret supports young Jewish women and families facing breast cancer at every stage—before, during, and after diagnosis. We help women and families connect to our community in the way that feels most comfortable, taking into consideration their stage of life, diagnosis, or treatment, as well as their connection to Judaism. We also provide educational resources, offer specialized support to those facing ovarian cancer or at high risk of developing cancer, and create programs for women and families to improve their quality of life. We understand that young Jewish women have unique concerns when it comes to breast and ovarian cancer, and we are the only organization that specializes in serving them. Learn more about our services and programs at www.sharsheret.org.

Society of Gynecologic Oncology

The Society of Gynecologic Oncology (SGO) is the premier medical specialty society for health care professionals trained in the comprehensive management of gynecologic cancers. SGO promotes excellence in the care of women at risk for or affected by gynecologic cancer through advocacy, education, research and inter-disciplinary collaboration.

Pancreatic Cancer

Hirshberg Foundation for Pancreatic Cancer Research

The Hirshberg Foundation for Pancreatic Cancer Research is focused on finding a cure for pancreatic cancer, and empowering the patients and families whose lives are touched by this disease. Founded in 1997, the foundation funds groundbreaking scientific research, provides patient education and support, and sustains hope that this cancer will be eradicated once and for all.

Lustgarten Foundation

The Lustgarten Foundation drives bold, innovative research to transform pancreatic cancer into a curable disease.  To date, we have funded more than $250 million in research grants and have been a leading force in every major advancement in pancreatic cancer research.

Pancreatica.org

The purpose of this site is to serve as a worldwide gathering point on the internet for the latest news in regards to clinical trials and other responsible medical care in the treatment of pancreatic cancer. Additionally, their aim is to present impartial knowledge about pancreatic cancer where interested parties can sort through a large amount of information efficiently in order to give a sense of the range of existing treatment options, to aid patient/doctor partnerships, and thus to help optimize personal treatment strategies. Speak with a Counselor: 800.525.3777; Speak with a Survivor: 800.433.0464

Pancreatic Cancer Action Network (PanCAN)

The Pancreatic Cancer Action Network (PanCAN) works to focus national attention on the need to find the cure for pancreatic cancer. PanCAN provides public and professional education that embraces the urgent need for more research, effective treatments, prevention programs, and early detection methods. PanCAN is the first national patient-based advocacy organization specifically focused on pancreatic cancer. Toll Free: 877.272.6226 or 310.725.0025

Prostate Cancer

California Prostate Cancer Coalition

CPCC networks all of the prostate cancer support groups in the State of California, provides Support Group Leaders’ Workshops; and holds an annual CPCC/UCSF Patient Conference on Prostate Cancer.

Malecare

The world’s largest and most active prostate cancer support group network. Available online.  Education provided free at Cancer Academy https://canceracademy.org.

National Alliance of State Prostate Cancer Coalitions (NASPCC)

NASPCC provides educational resources such as PROSTATEPEDIA (Magazine and weekly DIGEST); the Annual Meeting; Laminates; and Webinars, to improve shared decision-making in prostate cancer.

PCaAware

The National Prostate Cancer Awareness Foundation Inc. (PCaAWARE) is the only national non-profit corporation whose single mission is to educate men and the women in their lives on the critical need for men to be pro-active when it comes to the need for an annual prostate cancer screening. At its core, the Foundation is a speaker's bureau. Our presenters are prostate cancer survivors and medical professionals who are personally involved with the disease. To that end we offer professional level speakers for community and corporate events, workshops, and employer wellness events. 860.651.9611

Prostate Cancer Foundation

A non-profit public charity dedicated to finding cures and controls for prostate cancer and the world's largest private source of prostate cancer research funding. 800.757.CURE |800.757.2873

Prostate Cancer International

Prostate Cancer International works to transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.

Prostate Conditions Education Council

As the leading innovative organization, saving and improving the lives of men and their loved ones, we set the pace in early detection, research, education and awareness for prostate cancer and all prostate conditions.

The Prostate Health Education Network, Inc.

PHEN is a non-profit 501(c)(3) organization founded in 2003 to eliminate the African American prostate cancer disparity. In the United States, Black men have the highest prostate cancer incidence and mortality rates. PHEN's mission also includes advocacy efforts to increase the overall support and resources to find a cure for the disease for the benefit of all men. Key activities include Survivors Networks, annual Father’s Day rally and a Virtual Walk to Raise Prostate Cancer Awareness. 617.481.4020

Urology Care Foundation

The Urology Care Foundation is the world's leading nonprofit urological health foundation, and the official foundation of the American Urological Association. Partnering with physicians, researchers, healthcare professionals, patients, caregivers, families and the public, the Foundation supports and improves urologic clinical care by funding research, developing patient education and pursuing philanthropic support.

US-TOO! International, Inc.

An independent network of support group chapters for men with prostate cancer and their families. Offers fellowship, peer counseling, education about treatment options, discussion of medical alternatives without bias and increases public awareness of prostate disease. 800.80.USTOO | 800.808.7866

Veterans Prostate Cancer Awareness

VPCa provides educational resources and raises awareness of prostate cancer in the Veterans and Active Duty military populations.  Our educational resources include information on navigating the resources available at the VHA system as well as through the Community Care Network outside of the VHA.  We also provide support group functions specifically educating Veterans and their caregivers about “Life on ADT” and how to mitigate the side effects.

ZERO Prostate Cancer

ZERO is the leading national nonprofit with the mission to end prostate cancer and help all who are impacted.  ZERO advances research, provides support, and creates solutions to achieve health equity to meet the most critical needs of our community.

Rectal Cancer

Fight Colorectal Cancer

Fight Colorectal Cancer (Fight CRC) is a leading patient-empowerment and advocacy organization providing balanced and objective information on colon and rectal cancer research, treatment, and policy. Serving as relentless champions of hope, focused on funding promising, high-impact research endeavors while equipping advocates to influence legislation and policy for the collective good. Learn more at FightCRC.org and follow on social media @FightCRC!

The HPV Cancers Alliance (HPVCA)

The HPVCA seeks to educate the medical societies and the general public, as well as eliminate the stigma surrounding the human papillomavirus (HPV) and its associated cancers.  The HPVCA hosts town hall events bridging the gap between lawmakers and their constituents to discuss and campaign for vital legislation pertaining to HPV, such as the Prevent HPV Cancers Act. The HPVCA partners with organizations sharing their same goal in order to eliminate those barriers and allow everyone the equal, fighting chance to care for their health.

Paltown Development Foundation

Empowering patients and caregivers by creating disease-specific communities to address information needs and social isolation through training, technology, and developing purpose-driven community leadership. COLONTOWN is our flagship program, an online community for colorectal cancer patients and caregivers, anow serving more than 9,000 members. Run entirely by patients and caregivers.

Sarcomas/GIST

The Alan B. Slifka Foundation

All sarcomas
Founded in 1965, the Alan B. Slifka Foundation is a private family foundation dedicated to the pursuit of inclusion, diversity, peace and healing. The Foundation seeks to combat cancer, especially childhood cancer, through the support of innovative biomedical research. Among the Foundation’s top priorities is funding research into less toxic, more effective and potentially curative therapies for a variety of cancers, but especially for connective tissue cancers, known as sarcomas, that disproportionately impact children and young adults. The Alan B. Slifka Foundation is particularly interested in supporting bench-to-bedside research that results in targeted therapies, and also research that enhances our understanding of the metastatic process.

Clear Cell Sarcoma Foundation

Clear Cell Sarcoma
The goal of the Clear Cell Sarcoma Foundation is to advocate for patients and to fund Clear Cell Sarcoma research and drug development to fast track a cure for Clear Cell Sarcoma.  We give these young warriors fighting this rare cancer hope and a voice.

Desmoid Tumor Research Foundation (DTRF)

The mission of the Desmoid Tumor Research Foundation (DTRF) is to aggressively fund research to accelerate the development of improved therapies, and, ultimately, find a cure for desmoid tumors. We collaborate with dedicated researchers and clinicians worldwide to improve the lives of patients through education, awareness and support.

The EHE Foundation

Epithelioid hemangioendothelioma
The EHE Foundation’s mission is to seek treatments and a cure for Epithelioid Hemangioendothelioma (EHE) by increasing awareness, pursuing scientific research, advocating for and supporting EHE patients, and bridging information between researchers, providers and patients. 906.280.6432

Friends of TJ Foundation

Rhabdomyosarcoma Research
The Friends of T.J. Foundation was founded to increase sarcoma research, improve treatment, and aid in the goal of finding a cure.

GIST Support International

GIST Support International supports, connects and educates patients and their caregivers on Gastrointestinal Stromal Tumor.  We promote and invest in collaborative clinical research to accelerate the discovery of new treatments for the many forms of GIST.  Patient Contact Number: 1-215-340-9374

Leiomyosarcoma Support & Direct Research Foundation

Leiomyosarcoma
LMSDR provides information and support to patients and funds promising LMS research.

The Life Raft Group (LRG)

All sarcomas
A leader in GIST research and patient advocacy, The Life Raft Group (LRG) isa recognized source of information for patients and caregivers and the medical community through our online content, publications, webinars, educational materials, regional meetings and personal consultations. The mission of the Life Raft Group is to enhance survival and quality of life for people living with GIST (Gastrointestinal Stromal Tumor) through patient-powered research, education and empowerment and global advocacy efforts. 973.837.9092

National Leiomyosarcoma Foundation (NLMSF)

Leiomyosarcoma

The NLMSF represents a patient-centric advocacy resource for the Leiomyosarcoma Community, offering monthly education through patient information sessions and biweekly newsletters, support, and advocacy to empower patients and families/caregivers – throughout the diagnosis and treatment journey.  Additionally, our mission is to advance research to accelerate treatment options.

The Foundation founded the International LMS Research Roundtable, hosting 140+ researchers from around the world each year to focus on unmet needs in LMS-specific treatment and research - through workgroups and research initiatives in Clinical Trials/ Gynecological LMS/Tumor Tissue Cell Lines/Multi-Omics/Imaging strategies and Radiomics.

Northwest Sarcoma Foundation

All sarcomas and sarcoma research
We provide hope, education and support to anyone affected by Sarcoma in the Pacific Northwest while investing in Sarcoma research to improve cure rates.  

The Paula Takacs Foundation for Sarcoma Research

Funds clinical trials and research for all sarcoma types
The Paula Takacs Foundation funds local, innovative sarcoma research of all types, helping patients gain access to new treatments and accelerating progress in discovering cures. The Foundation’s very supportive and active sarcoma community also works to amplify awareness to help save more lives. 

SARC - Sarcoma Alliance for Research through Collaboration

Sarcoma research
SARC works closely with the greater sarcoma advocacy community, which includes many groups spanning a broad spectrum of sarcomas as well as subtype-specific groups. Together, we are working to build awareness about sarcoma, resources available to help patients and their families, and opportunities to support sarcoma research and clinical trial participation.  

Sarcoma Alliance

All sarcomas
An advocacy organization that provides support, education, and guidance for patients/family members with sarcoma. Also provides patient materials, web links, support group locations, and other resources. 415.381.7236 

Sarcoma Coalition

Collaborative Patient Advocacy throughout the Sarcoma Community to enhance patient care and treatment outcomes and support families and caregivers as well as bridge collaborative support with the Sarcoma Research Community. 

Sarcoma Foundation of America

All sarcomas
SFA provides support for patients and families affected by sarcoma through clinical trial resources and matching services, as well as education and awareness building efforts.

Summer's Way Foundation

Rhabdomyosarcoma
The Summer's Way Foundation aims to further Summer Hammond’s legacy through advancing childhood cancer and Rhabdo research, recognizing through scholarships, graduating high school students in the community who have faced adversity, and connecting families dealing with Rhabdomyosarcoma and childhood cancer through webinars and support groups.

Stomach Cancer (Gastric Cancer)

Debbie's Dream Foundation: Curing Stomach Cancer

Debbie's Dream Foundation: Curing Stomach Cancer is a 501(c)(3) non-profit organization dedicated to raising awareness about stomach cancer, advancing funding for research, and providing education and support internationally to patients, families, and caregivers. DDF seeks as its ultimate goal to make the cure for stomach cancer a reality.  Our Vision is that stomach cancer will no longer be fatal.  If not curable, it will be a manageable disease.

Hope for Stomach Cancer

Hope For Stomach Cancer is a 501(c)(3) nonprofit organization that provides support, resources, and awareness to those affected by stomach cancer. Hope creates and facilitates programs through collaboration with other organizations that enable those affected by stomach cancer to take actionable steps to live the best possible life through each phase of the disease. We focus on serving the stomach cancer community, starting with the patient and their granular immediate needs. Our new StomachCancerBiomarkers.org is an educational resource that helps stomach cancer patients understand the biomarkers that might aid them and their doctors to make better decisions in healthcare. Using this information, stomach cancer patients can wade through the new terminologies, treatments, and changes a cancer diagnosis will bring to their lives. 

No Stomach For Cancer

No Stomach For Cancer is a 501(c)(3) nonprofit organization whose mission is to support research and unite the caring power of people worldwide affected by stomach cancer. NSFC advances awareness and education about stomach cancer, including Hereditary Diffuse Gastric Cancer (HDGC), provides a support network for affected families, and funds important research for screening, early detection, treatment, and prevention of stomach cancer. Headquartered in Madison Wisconsin, and serving individuals across the globe, No Stomach For Cancer is a worldwide thought leader in stomach cancer awareness and education. For more information about No Stomach For Cancer, or to support their global mission, please visit www.NoStomachForCancer.org.

Thyroid Cancer

American Thyroid Association

The ATA is the leading organization devoted to thyroid biology and to the prevention and treatment of thyroid disease through excellence in research, clinical care, education, and public health.

Head and Neck Cancer Alliance

The Head and Neck Cancer Alliance is a patient advocacy nonprofit organization working to advance prevention, detection, treatment and rehabilitation of oral, head and neck cancer through public awareness, research, advocacy and survivorship.

THANC (Thyroid, Head and Neck Cancer) Foundation

The THANC (Thyroid, Head and Neck Cancer) Foundation supports research and education in the early detection and treatment of thyroid, head and neck cancer; advances new therapeutic approaches and works to alleviate the suffering and functional impairment of patients who undergo treatment. This mission is accomplished through the THANC Guide (https://www.thancguide.org) - an online resource for patients and caregivers as well as TIRO (Thyroid International Recommendations Online ( https://tiro.expert).

ThyCa: Thyroid Cancer Survivors' Association, Inc.

ThyCa (www.thyca.org) is an international nonprofit organization founded in 1995 and advised by thyroid cancer specialists, educates and supports patients and families worldwide through its comprehensive web site, in-person and online support groups for all types of thyroid cancer, one-to-one support matched by diagnosis, free patients’ handbooks, free newsletters, free downloadable Low-Iodine Cookbook, seminars, workshops, and conferences. ThyCa provides free materials for patients, caregivers, and physicians and sponsors Thyroid Cancer Awareness Month as well as year-round awareness campaigns, plus thyroid cancer research fundraising and research grants awarded every year starting in 2003.

Waldenström's Macroglobulinemia

International Waldenstrom's Macroglobulinemia Foundation

The International Waldenstrom's Macroglobulinemia Foundation (IWMF) is a patient-founded and volunteer-led nonprofit organization that is dedicated to a simple but compelling vision: Support everyone affected by Waldenstrom's macroglobulinemia (WM) while advancing the search for a cure. To accomplish this vision, the IWMF offersInformation from our website, www.iwmf.com, and our publications written in a patient-friendly way to promote understanding of our rare disease: Education at our annual Educational Forum to help patients and caregivers learn about our disease from WM researchers and clinicians; On-going updates about WM and the IWMF sent through our quarterly Torch newsletter and our NEWS releases; Peer support from others who've been where you are; Information for medical professionals who may have limited experience with our rare disease; and Research directed to better treatments while we search for a cure. Visit www.iwmf.com for more information.

Cancer and Work

Cancer and Careers

Cancer and Careers, founded in 2001, is a national nonprofit that empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events. The organization reaches more than 325,000 individuals per year online, in print and in person. Its free services include a comprehensive website and library of publications in English and Spanish; legal and insurance information; career coaching; resume review; professional development micro-grants; and national events and workshops for people with cancer and their healthcare providers, coworkers and employers.

Clinical Trials

The Leukemia and Lymphoma Society Clinical Trial Support Center (CTSC)

Finding a clinical trial can be overwhelming. Patients are often left to search on their own, leaving them with more questions than answers. Fortunately, The Leukemia & Lymphoma Society provides a free service to take this burden of patients and families. Work one-on-one with an LLS Clinical Trial Nurse Navigator who will personally assist you throughout the entire clinical trial process.

Massive Bio

Massive Bio empowers cancer patients to find their best treatment options, providing convenient access and enrollment services for oncology clinical trials worldwide, powered by advanced artificial intelligence. Founded on the belief that all people should have equal access to leading-edge therapies, Massive Bio combines its best-in-class AI platform with expertise in genomics, engineering, and data analytics to remove the many barriers to cancer patient enrollment and participation in clinical trials. Headquartered in New York City, Massive Bio is a privately held company that operates in 12 countries.

Leal Health

Leal Health uses an artificial intelligence (AI)-powered digital health decision support platform to empower cancer patients to find advanced treatment options. Get matched with clinical trials that fit your exact cancer diagnosis in minutes. 100% FREE.

Distress Management and Psychosocial Support

American Psychosocial Oncology Society (APOS)

APOS is the only multidisciplinary organization in the United States dedicated to researching and treating the psychosocial aspects of cancer. For more information go to www.apos-society.org.

Association of Oncology Social Work (AOSW)

AOSW is a non-profit organization dedicated to the enhancement of psychosocial services to people with cancer and their families. AOSW was created in 1984 by social workers interested in oncology and by existing national cancer organizations. AOSW has over 1000 current members who embrace the AOSW Mission "to advance excellence in the psychosocial care of persons with cancer, their families, and caregivers through networking, education, advocacy, research and resource development." (215) 599-6093

Good Days

Good Days is a national, independent 501(c)(3) non-profit charitable organization that provides financial assistance to patients so that they do not have to choose between getting the treatment the need and affording the necessities of everyday living.

Ovarcome

OvarCare is Ovarcome’s financial, psycho-social, and informational support program for ovarian cancer patients and OVARCOMERS in active treatment.

Fertility and Pregnancy Information

Fertile Hope

This LIVESTRONG program provides free reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility at www.fertilehope.org. Help with fertility-related questions and information about the Sharing Hope financial assistance program are also available by calling toll-free 855.220.7777.

Hope for Two the Pregnant with Cancer Network

This is a national non-profit organization for women diagnosed with cancer during pregnancy. Their mission is to connect women who are pregnant with cancer with other women who have been pregnant with the same type of cancer. These women lend support, offer hope and share their experiences with one another through phone and e-mail conversation. 800.743.4471

MyOncofertility.org

This website helps patients to learn more about the potential effect of cancer (and other serious diseases) and treatments on their fertility, as well as the options for preserving fertility and resources for discussing these issues with their doctor. 866.708.FERT | 866.708.3378

Financial Assistance

Family Reach

Family Reach is a national non-profit providing financial assistance, education and outreach for families facing a cancer diagnosis. For more information, connect with your social worker or visit familyreach.org.

Good Days

Good Days is a national, independent 501(c)(3) non-profit charitable organization that provides financial assistance to patients so that they do not have to choose between getting the treatment the need and affording the necessities of everyday living.

Ovarcome

OvarCare is Ovarcome’s financial, psycho-social, and informational support program for ovarian cancer patients and OVARCOMERS in active treatment.

General Prescription Assistance

Chronic Disease Fund

Chronic Disease Fund® is an independent 501(c)(3) non-profit charitable organization that helps patients with chronic disease, cancer and other life-altering conditions obtain the life-saving medications they need. 877.968.7233

Family Reach

Family Reach is a national non-profit providing financial assistance, education and outreach for families facing a cancer diagnosis. For more information, connect with your social worker or visit www.familyreach.org .

Medicine Assistance Tool 

The Medicine Assistance Tool brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free. Among the organizations collaborating on this program are the American Academy of Family Physicians, the American Autoimmune Related Diseases Association, the Lupus Foundation of America, the NAACP, the National Alliance for Hispanic Health and the National Medical Association. 888.4PPA.NOW  888.477.2669

NCCN Virtual Reimbursement Resource Room

The oncology reimbursement landscape continues to present ever-evolving challenges for clinicians and others that work with patients with cancer. As a response to these ongoing challenges, help is available through the NCCN Virtual Reimbursement Resource Room.

NeedyMeds

This non-profit organization provides help to patients who cannot afford medicine or health care costs. Its website enables you to search by generic or brand name drug names, program name, or drug company name. NeedyMeds also provides access to numerous cancer-based assistance programs, some of which may provide financial assistance. Helpline: 800.503.6897

Patient Advocate Foundation (PAF) Co-Pay Relief (CPR)

PAF CPR provides direct financial assistance to qualified patients, assisting them with prescription drug co-payments their insurance requires relative to their diagnosis. CPR call counselors work directly with the patient as well as with the provider of care to obtain necessary medical, insurance and income information to advance the application in an expeditious manner. 866.512.3861

Rx Assist

This pharmaceutical access information center was created by Volunteers in Health Care (VIH), a national resource center for safety net organizations. VIH operates out of the Brown University Center for Primary Care and Prevention at Memorial Hospital of Rhode Island.

International/Cultural Support Group

American Cancer Society (ACS) Asian and Pacific Language Materials

American Cancer Society site that provides resources and cancer information in several Asian languages including Chinese, Korean, and Vietnamese.800.227.2345

CanHope

A non-profit cancer counseling and support service provider located in Singapore. It consists of an experienced, knowledgeable and caring support team with access to comprehensive information on a wide range of topics in education and guidelines in cancer treatment. The CanHOPE team journeys with patients to provide support and personalized care, working closely with the medical and allied health professionals, to help patients and caregivers to make effective and informed decisions in their treatment. +65 6738.9333;enquiry@canhope.org

Canadian Cancer Society

A national, community-based organization of volunteers whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer. 888.939.3333 or 416.961.7223

International Cancer Advocacy Network (ICAN)

ICAN assists patients with cutting-edge information services, patient empowerment, and health information technology tools, as well as research regarding molecular profiling, clinical trials, and compassionate use. 602.618.0183 ; programservices@askican.org

Intercultural Cancer Council (ICC)

Promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories. 713.798.4617

International Union Against Cancer (UICC)

UICC is an international non-profit, nonsectarian, nongovernmental association of more than 290 member organizations in 85 countries. Their mission is to advance scientific and medical knowledge in research, diagnosis, treatment, and prevention of cancer throughout the world, especially professional and public education. +41 22.809.18.11 UICC international cancer organizations by country: http://www.uicc.org/membership

Make-A-Wish Foundation International

A not-for-profit organization established to grant wishes to children with life-threatening illnesses around the world. The Make-A-Wish Foundation can now be found in 30 countries and territories around the world. 602.230.9900

Sharsheret

Sharsheret supports young Jewish women and families facing breast cancer at every stage—before, during, and after diagnosis. We help women and families connect to our community in the way that feels most comfortable, taking into consideration their stage of life, diagnosis, or treatment, as well as their connection to Judaism. We also provide educational resources, offer specialized support to those facing ovarian cancer or at high risk of developing cancer, and create programs for women and families to improve their quality of life. We understand that young Jewish women have unique concerns when it comes to breast and ovarian cancer, and we are the only organization that specializes in serving them. Learn more about our services and programs at www.sharsheret.org.

Vital Options International

A non-profit cancer communications, support, and advocacy organization with a mission to facilitate a global cancer dialogue. It produces a weekly cancer talk radio show called The Group Room®, which allows callers to engage directly with noted oncology professionals from the US and Europe, as well as with advocates and other patients. Program information can be found on the Vital Options' websites which provides easy access for visitors to listen to archived shows, locate national and international cancer resources and organizations, information on clinical trials, cancer news, a message board, as well as special content for young adults with cancer (English, French, German) 818.508.5657

World Health Organization

A specialized agency of the United Nations with 191 Member States, WHO promotes technical cooperation for health among nations, carries out programs to control and eradicate disease, and strives to improve the quality of human life. + 41 22.791.21.11

Test, Imaging, and Treatment-Related Patient Information

Chemocare.com

This website is part of the Scott Hamilton Care Initiative and is designed to provide the latest information about chemotherapy to patients and their families, caregivers and friends. We are here to help by supplementing what you may already have learned from your healthcare professional.

Lab Tests Online

Lab Tests Online has been designed to help patients and/or family caregivers, to better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases.

MyBiopsy.org

Patient-oriented website developed by the College of American Pathologists (CAP) which features information on more than 40 of the most common cancers and cancer-related conditions including those affecting the breast, lungs, colon, prostate, and skin. It includes answers to questions about what the disease is, what treatment options are available, questions you should ask your doctors, a definition of key terms, and pictures of normal tissue as well as one that is diseased.

RadiologyInfo.org

RadiologyInfo™ is the public information website developed and funded by the American College of Radiology (ACR) and the  Radiological Society of North America (RSNA). It was established to inform and educate the public about radiologic procedures and the role of radiologists in healthcare, and to improve communications between physicians and their patients. It informs patients how various x-ray, CT, MRI, ultrasound, radiation therapy and other procedures are performed. It also addresses what patients may experience and how to prepare for the exams.

Travel and Lodging Assistance

Air Charity Network

A non-profit grassroots organization with a volunteer corps of more than 7,500 private pilots divided into six regions covering all 50 states and the District of Columbia. They transport patients and their families in private planes, free of charge, to hospitals for medical treatment. (United States Only) 877.621.7177

Angel Flight East (AFE)

Angel Flight East (AFE) is dedicated to providing free air transportation to children and adults in need of medical treatment far from home. Volunteer pilots use their own aircraft and pay for all expenses of the flight. Located in Blue Bell, PA we cover a 14 state territory from Virginia to Ohio to Maine and for destinations beyond that, we link up with other volunteer pilot organizations. 215.358.1900

Corporate Angel Network

Provides free air transportation for cancer patients traveling to and from recognized cancer treatment centers in the United States without regard to their financial resources. 914.328.1313; TollFree Patient Line: 866.328.1313

Good Days

Good Days is a national, independent 501(c)(3) non-profit charitable organization that provides financial assistance to patients so that they do not have to choose between getting the treatment the need and affording the necessities of everyday living.

Joe's House

Joe’s House is a non-profit organization that serves both the hospital staff and cancer patients that travel for their healthcare needs. Founded in 2003, Joe’s House assists in finding appropriate lodging in unfamiliar cities by providing a list of accommodations that cater to patients with cancer, their families, and caregivers. 877.JOESHOU | 877.563.7468

Age-Related Cancer Support

Childhood, Adolescent, and Young Adult

American Childhood Cancer Organization (ACCC):

ACCO, founded in 1970 by concerned parents of children with cancer to assist families and survivors of childhood cancer, has a network of parent support groups in the United States and every continent. Toll Free Phone: 855.858.2226 ; Local Phone: 301.962.3520

Children's Cause Cancer

A 501(c)3 non-profit organization that works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors.202.336.8374

Cure Search for Children’s Cancer

An online resource for patients, their families and support systems. The website provides up-to-date information about the various types of children's cancer along with research trials, definitions and descriptions of tests, procedures and treatments and information to help families manage the emotional aspects of caring for a child with cancer. United States and Canada: 800.458.6223

Elephants and Tea

Elephants and Tea is a nonprofit media company with the mission to help adolescent and young adult (AYA) patients, survivors, and caregivers know they are not alone in their fight with cancer. The elephant in the room is cancer. Tea is the relief conversation provides. We have the only magazine written for and by the AYA cancer community, telling their story in their own words. In addition to our quarterly magazine, we release new weekly content on our website as well as offer unique programming for our community of AYA cancer patients, survivors, caregivers, loved ones, healthcare professionals, and nonprofit professionals. Our goal is to help the AYA cancer community experience relief through self-expression, inspire others during their cancer journey, and connect them with supportive organizations.

First Descents

First Descents provides life-changing outdoor adventures for young adults (ages 18 - 39) impacted by cancer and other serious health conditions. Explore FD’s free, outdoor adventure programs by visiting firstdescents.org/programs.

Kids v Cancer (KVC)

Kids v Cancer is a national nonprofit pediatric cancer advocacy organization founded in 2009 with a mission to change the landscape of pediatric cancer research. Kids v Cancer develops policies to incentivize pediatric cancer research so that drugs are developed expressly for children. Kids v Cancer's Compassionate Use Navigator is a free resource and a personal assistance service for physicians and families for navigating the process of obtaining not-yet-approved drugs on a compassionate use basis. The Autopsy Tissue Donation program helps find the cure for brain cancer by connecting families with researchers who study tumors and develop therapies to treat them.

Make-a-Wish Foundation

A non-profit organization dedicated to granting the wishes of children with life-threatening medical conditions. 800.722.9474

Pediatric Cancer Foundation of the Lehigh Valley

We create a community of support for local pediatric cancer families (within 50 miles of Allentown, PA) through social, emotional, and financial assistance (gas, grocery, hospital cafeteria, holiday gift cards; a scholarship program; summer camp; kids' programs; parent programs; support groups; and more). 

Stupid Cancer

Stupid Cancer is a national nonprofit whose mission is to help empower everyone affected by adolescent and young adult (AYA) cancer by ending isolation and building community. Stupid Cancer is here to be the rallying point and leader in building the AYA cancer community and making cancer suck less. 

Caregiving and Survivorship

Cancer Hope Network

Cancer Hope Network provides free and confidential 1:1 peer support for cancer patients, survivors and the people who love them. Nearly 500 survivor and caregiver volunteer mentors provide support from (pre)diagnosis, through treatment and into survivorship and beyond. All volunteer and client matches are overseen and supported from beginning to end by a team of healthcare and social work professionals.

Family Reach

Family Reach is a national non-profit providing financial assistance, education and outreach for families facing a cancer diagnosis. For more information, connect with your social worker or visit www.familyreach.org.

Triage Cancer

Triage Cancer is a national, nonprofit organization providing information and resources on the full spectrum of cancer survivorship issues to patients, survivors, caregivers, advocates, and healthcare professionals, through a national Speakers Bureau, educational events, and online tools. Triage Cancer also offers an educational blog at www.TriageCancer.org/blog .