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4

NCCN Guidelines for Patients

®

Adolescents and Young Adults with Cancer, Version 1.2017

How to use this book

Who should read this book?

This book is designed for AYAs

(a

dolescent and

y

oung

a

dults) dealing with cancer. It may also

be useful for caregivers, family, and friends.

Reading this book at home may help you absorb

what your doctors have said and prepare for

treatment. As you read, you may find it helpful to

create a list of questions to ask your doctor.

Where should I start

reading?

This depends on what you need to know! Each

topic is described at the start of Parts 1 through

9. Page numbers are listed so you can flip right

to information you need. Your treatment team

can also point out the sections that apply to you.

Does the whole book apply

to me?

According to the National Cancer Institute, an

adolescent or young adult is anyone between

the ages of 15 and 39. That’s a pretty big range,

so not all of the information in this book is for

you. For example, if you’re still in school you

might not need information on how to deal with

cancer in the workplace.

Feel free to skip over sections that don’t apply

to you. And always, keep in mind that this

book does not replace the knowledge and

suggestions of your doctors. The first and most

important rule of dealing with cancer is to talk

honestly with your treatment team. They are

there to help.

Making sense of medical

terms

In this book, many medical words are included.

These are words that you will likely hear from

your treatment team. Most of these words may

be new to you, and it may be a lot to learn.

Don’t be discouraged as you read. Keep reading

and review the information. Don’t be shy to ask

your treatment team to explain a word or phrase

that you do not understand.

Words that you may not know are defined in the

text or in the

Dictionary

. Words in the

Dictionary

are underlined when first used on a page.

Acronyms are also defined when first used

and in the

Glossary

. Acronyms are short words

formed from the first letters of several words.

One example is DNA for

d

eoxyribo

n

ucleic

a

cid.