NCCN Guidelines for Patients
Adolescents and Young Adults with Cancer, Version 1.2017
Moving beyond treatment
What happens after treatment?
Follow-up is important because treatment-induced
damage can cause health problems that last long
after treatment is over. Survivorship may include
Difficulties with memory or concentration
Neuropathy (pain/numbness in hands and
Lymphedema (swelling in arms or legs)
Menopause symptoms (hot flashes, sleep
difficulties, mood swings, or vaginal dryness)
In addition, many cancer treatments have been
linked to late effects that may not become obvious
until years after you’ve finished treatment. This can
Cancer leaves its mark in other ways, as well. You
may find that you have worries or doubts about the
future. You may also have concerns about school,
work, and your relationships. Dealing with these
effects will take time, patience, and plenty of support.
So instead of a cancer treatment team, you will now
need a cancer survivorship team.
To prepare, you’ll want to make sure you have all
your medical information as well as access to doctors,
therapists, and other professionals who can be part
of your survivorship team. To begin, make sure you
have complete records of your overall medical history.
This will include:
family medical history
vaccinations and immunizations
past injuries or surgeries
details on the treatment and results.
Information on any
ongoing health problems
you have other than cancer, including dental
A complete list of all
currently taking, including over-the-counter
drugs. The list should specify drug names,
doses, and the name of the prescribing doctor.
Notes about any
side effects or reactions
you have had to medication or medical
and side effects.
A list of
allergies and sensitivities
Step two is getting a summary of everything that was
done during your cancer treatment, including:
A record of diagnostic tests and their results.
The specifics of your diagnosis, including the
type and location of the cancer, stage, grade,
hormonal status, and markers.
History of your cancer treatments and hospital
stays including dates, cancer drugs given,
doses used, treatment response, and any
reactions or side effects.
Records of any other health care services
you received such as physical therapy,
psychosocial counseling, and nutritional
Names and contact information for all health
professionals involved in your treatment.