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67

NCCN Guidelines for Patients

®

Adolescents and Young Adults with Cancer, Version 1.2017

8

Moving beyond treatment

What happens after treatment?

Follow-up is important because treatment-induced

damage can cause health problems that last long

after treatment is over. Survivorship may include

things like:

††

Pain

††

Dry mouth

††

Difficulty swallowing

††

Difficulties with memory or concentration

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Neuropathy (pain/numbness in hands and

feet)

††

Lymphedema (swelling in arms or legs)

††

Menopause symptoms (hot flashes, sleep

difficulties, mood swings, or vaginal dryness)

In addition, many cancer treatments have been

linked to late effects that may not become obvious

until years after you’ve finished treatment. This can

include:

††

Secondary cancers

††

Heart problems

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Lung problems

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Hearing problems

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Cataracts

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Stroke

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Kidney problems

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Osteoporosis

Cancer leaves its mark in other ways, as well. You

may find that you have worries or doubts about the

future. You may also have concerns about school,

work, and your relationships. Dealing with these

effects will take time, patience, and plenty of support.

So instead of a cancer treatment team, you will now

need a cancer survivorship team.

To prepare, you’ll want to make sure you have all

your medical information as well as access to doctors,

therapists, and other professionals who can be part

of your survivorship team. To begin, make sure you

have complete records of your overall medical history.

This will include:

††

Your

family medical history

.

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All

vaccinations and immunizations

you

have had.

††

Any

past injuries or surgeries

—including

details on the treatment and results.

††

Information on any

ongoing health problems

you have other than cancer, including dental

issues.

††

A complete list of all

medications

you are

currently taking, including over-the-counter

drugs. The list should specify drug names,

doses, and the name of the prescribing doctor.

††

Notes about any

side effects or reactions

you have had to medication or medical

treatments.

††

History of

pain problems

including treatments

and results.

††

Information about

specific cancer

treatments

and side effects.

††

A list of

allergies and sensitivities

.

Step two is getting a summary of everything that was

done during your cancer treatment, including:

††

A record of diagnostic tests and their results.

††

The specifics of your diagnosis, including the

type and location of the cancer, stage, grade,

hormonal status, and markers.

††

History of your cancer treatments and hospital

stays including dates, cancer drugs given,

doses used, treatment response, and any

reactions or side effects.

††

Records of any other health care services

you received such as physical therapy,

psychosocial counseling, and nutritional

services.

††

Names and contact information for all health

professionals involved in your treatment.