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NCCN Guidelines for Patients


Adolescents and Young Adults with Cancer, Version 1.2017


Moving beyond treatment

What happens after treatment?

Follow-up is important because treatment-induced

damage can cause health problems that last long

after treatment is over. Survivorship may include

things like:




Dry mouth


Difficulty swallowing


Difficulties with memory or concentration


Neuropathy (pain/numbness in hands and



Lymphedema (swelling in arms or legs)


Menopause symptoms (hot flashes, sleep

difficulties, mood swings, or vaginal dryness)

In addition, many cancer treatments have been

linked to late effects that may not become obvious

until years after you’ve finished treatment. This can



Secondary cancers


Heart problems


Lung problems


Hearing problems






Kidney problems



Cancer leaves its mark in other ways, as well. You

may find that you have worries or doubts about the

future. You may also have concerns about school,

work, and your relationships. Dealing with these

effects will take time, patience, and plenty of support.

So instead of a cancer treatment team, you will now

need a cancer survivorship team.

To prepare, you’ll want to make sure you have all

your medical information as well as access to doctors,

therapists, and other professionals who can be part

of your survivorship team. To begin, make sure you

have complete records of your overall medical history.

This will include:



family medical history




vaccinations and immunizations


have had.



past injuries or surgeries


details on the treatment and results.


Information on any

ongoing health problems

you have other than cancer, including dental



A complete list of all


you are

currently taking, including over-the-counter

drugs. The list should specify drug names,

doses, and the name of the prescribing doctor.


Notes about any

side effects or reactions

you have had to medication or medical



History of

pain problems

including treatments

and results.


Information about

specific cancer


and side effects.


A list of

allergies and sensitivities


Step two is getting a summary of everything that was

done during your cancer treatment, including:


A record of diagnostic tests and their results.


The specifics of your diagnosis, including the

type and location of the cancer, stage, grade,

hormonal status, and markers.


History of your cancer treatments and hospital

stays including dates, cancer drugs given,

doses used, treatment response, and any

reactions or side effects.


Records of any other health care services

you received such as physical therapy,

psychosocial counseling, and nutritional



Names and contact information for all health

professionals involved in your treatment.