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68

NCCN Guidelines for Patients

®

Adolescents and Young Adults with Cancer, Version 1.2017

8

Moving beyond treatment

What is a survivorship care plan?

This summary of information can be used to develop

a survivorship care plan for the days, months, and

years ahead.

What is a survivorship care

plan?

The goal of a treatment plan is to completely get rid of

or control the cancer. The goals of a survivorship care

plan are different. There are 3 areas in the plan.

††

Supportive care

(palliation or relief) of any

ongoing symptoms or side effects.

††

Prevention

of late effects of cancer treatment,

including secondary cancers.

††

Promotion

of overall good health and well-

being.

The U.S. Institute of Medicine has recommended that

all cancer patients be given a survivorship care plan.

This plan should spell out

who

you will be seeing

to monitor your health,

when

you should be seeing

them, and

what

they should be doing. Essential

components of such a plan include:

††

A summary of your cancer treatment history.

This will ensure that other doctors you work

with have a complete understanding of your

case.

See page 67.

††

Detailed recommendations for follow-up care,

which include:

o

Names and contact information for

follow-up doctors.

o

A schedule for follow-up visits with an

oncology specialist.

o

Tests that should be done to check for

recurrence like blood tests, imaging

tests, and an echocardiogram to check

your heart.

o

Recommendations for identifying and

managing long-term and late effects.

††

Information on available resources that can

help you deal with survivorship challenges

like:

o

Physical problems

o

Psychological and emotional stress

o

Financial concerns

o

Insurance issues

Ideally, your treatment team will take the lead in

putting together a survivorship care plan before you’re

even finished with treatment. If you want to start your

plan, the LIVESTRONG Foundation has partnered

with OncoLink (from Penn Medicine) to provide the

LIVESTRONG Care Plan at

www.livestrongcareplan. org .

This interactive website uses your answers to a

brief questionnaire to create a basic individualized

care plan. The resulting care plan can then be shared

with your oncology team and used as a start for

putting together your survivorship care plan.

For more on long-term

and late effects of cancer

treatment, check out:

††

The American Cancer Society’s

“ Late and long-term effects

of cancer treatment in young

adults” at

www.cancer.org/cancer/ cancerinyoungadults/detailedguide/ cancer-in-young-adults-treating-late- effects . †† Cancer.Net

’s “Late Effects” at

www. cancer.net/survivorship/late-effects .