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29

NCCN Guidelines for Patients

®

:

Brain Cancer – Gliomas, Version 1.2016

2

Test and treatment overview

Supportive care

To join, you’ll need to review and sign a paper called

an informed consent form. This form describes the

study in detail. The study’s risks and benefits should

be described and may include others than those

described above.

Ask your treatment team if there is an open clinical

trial that you can join. There may be clinical trials

where you’re getting treatment or at other treatment

centers nearby. You can also find clinical trials

through the websites listed in Part 6.

Supportive care

Supportive care doesn’t aim to treat cancer but aims

to improve quality of life. It can be received at any

point during your cancer journey. When the cancer

is advanced, supportive care is often called palliative

care.

Supportive care can address many needs. One

example is treatment for physical and emotional

symptoms. Some common symptoms that may need

management are described next.

†

†

Swelling (edema) in your central nervous

system may occur because of the cancer or

cancer treatments. Corticosteroids (steroids,

for short) are used to control the amount of

swelling.

†

†

Seizures are common among people with

brain tumors. If you’ve never had seizures,

preventing them with seizure medicine is

not advised in general. However, preventing

seizures after surgery is reasonable. If you

have seizures, you may take seizure medicine

to stop them. Be aware that certain seizure

medicines limit how well chemotherapy works.

†

†

A blood clot in a deep vein (deep venous

thrombosis) commonly occurs in people with

high-grade gliomas. It occurs in 20 to 30 out

of every 100 people with glioblastoma (ie,

20%–30%). The blood clot can travel to your

lungs and block the vein (pulmonary embolism).

Check your limbs for skin redness, swelling, or

a feeling of discomfort. Seek help right away if

symptoms appear.

†

†

Endocrine disorders are health problems within

your hormone system. A general decline in

your sense of well-being may be related to an

endocrine disorder. You doctor will assess if

your hormone glands are working properly.

Helpful Tips

ü

Depending on location of the

tumor you may experience slow/

slurred speech; longer time to

complete sentences; difficulty writing.

ü

Some people will interrupt you

when struggling to speak, be sure

to continue with your thought. If

need be, explain to them what is

happening.