NCCN Guidelines for Patients® | Myelodysplastic Syndromes

26 NCCN Guidelines for Patients ® : Myelodysplastic Syndromes, 2018 3 Prognostic scoring Review Risk groups also give doctors a general idea of how long a group of patients with MDS might live without any disease directed treatment. This does not apply to patients who receive treatment for MDS. It also does not predict how long a specific patient might live. Some patients will live many more years than predicted using these scores and others will live many fewer years. If you want to learn more, talk to your doctor or nurse. They will be able to give you information that is specific to you. Review † † A prognosis is a prediction of the pattern and outcome of disease. † † Something that affects and helps predict the likely outcome of a disease is called a prognostic factor. † † Doctors use prognostic scoring systems to rate the severity of MDS to help plan treatment. † † A risk score is a rating of the severity of MDS. It describes how slow or fast MDS will likely grow and progress to AML without treatment. † † MDS is classified into risk groups based on the risk score. Doctors use risk groups to decide what type of treatment is needed and when. † † When planning treatment, doctors look at the risk groups in terms of “lower-risk” MDS and “higher-risk” MDS. “ Officially diagnosed with Myelodysplastic Syndromes (MDS) in October 2011, I had never heard of it, couldn’t spell it, and certainly didn’t know what it was! Wow, things have changed since then. - Suzanne

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