NCCN Guidelines for Patients® | Myelodysplastic Syndromes

30 NCCN Guidelines for Patients ® : Myelodysplastic Syndromes, 2018 4 Cancer treatments Supportive care Platelet growth factors TPO ( t hrombo po ietin) is a substance that helps the body to make platelets. TPO is made naturally in the body. But, drugs that act like TPO can also be made in a lab. Romiplostim and eltrombopag are drugs that act like TPO. Some studies have shown that these drugs might help treat low platelet counts in certain patients with MDS, but they are not approved by the FDA for this purpose. They may help to increase the number of platelets and decrease the risk of bleeding. Caring for yourself: Advice from a survivor MDS affects your bone marrow and blood, but it is not all of who you are. It is only a part of the whole person that is you. That is why it is so important not to lose sight of caring for and advocating for yourself. If you have been waiting for a chance to do this for yourself, now is the time. There are many things you can do for yourself to improve your sense of wellness and of well-being: ü Learn all you can about MDS. Attend a nearby conference. ü Find a community of MDS people. – Join a support group at your hospital or cancer center. – Join an online community through AAMDS International Foundation or another trusted organization. ü Cultivate a positive spirit. – Seek out and build upon support from family and friends. – Take part in activities that are meaningful and satisfying to you. – Eat healthy meals. Get enough rest. Sleep. ü Try to get regular exercise as it can improve energy and well-being. – Take a walk around a beautiful park, a riverbank, or your local mall. – Take a community class. – Try tai chi, yoga, or chi-gung. – Ruth Horsfall, MDS survivor, patient advocate, and member of the NCCN Panel for MDS

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