NCCN Guidelines for Patients® | Myelodysplastic Syndromes

55 NCCN Guidelines for Patients ® : Myelodysplastic Syndromes, 2018 6 Making treatment decisions Questions to ask What’s my diagnosis and prognosis? It’s important to know that there are different types of cancer. Cancer can greatly differ even when people have a tumor in the same organ. Based on your test results, your doctors can tell you which type of cancer you have. He or she can also give a prognosis. A prognosis is a prediction of the pattern and outcome of a disease. Knowing the prognosis may affect what you decide about treatment. 1. Where did the cancer start? In what type of cell? 2. Is this cancer common? 3. What is the cancer risk score and risk group? Does this risk score or group mean the cancer has progressed a lot? 4. Is this a fast- or slow-growing type of MDS? 5. What are the chances that this type of MDS will become AML? 6. What other tests results are important to know? 7. How often are these tests wrong? 8. Would you give me a copy of the pathology report and other test results? 9. Can the cancer be cured? If not, how well can treatment stop the cancer from growing?

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