NCCN Guidelines for Patients® | Myelodysplastic Syndromes

NCCN Guidelines for Patients ® : Myelodysplastic Syndromes, 2018 60 6 Making treatment decisions Websites and resources | Review Websites and resources Aplastic Anemia and MDS International Foundation (AAMDSIF) aamds.org/about/MDS American Cancer Society cancer.org/cancer/myelodysplasticsyndrome/index cancer.org/Treatment/FindingandPayingforTreatment/ index The Leukemia and Lymphoma Society (LLS) lls.org/disease-information/myelodysplastic- syndromes MDS Foundation, Inc. mds-foundation.org National Cancer Institute cancer.gov/types/myeloproliferative/patient/ myelodysplastic-treatment-pdq National Coalition for Cancer Survivorship canceradvocacy.org/toolbox NCCN nccn.org/patients/resources/life_with_cancer/default. aspx 100 Questions & Answers about Myelodysplastic Syndromes by Jason Gotlib, MD, MS & Lenn Fetcher, RN mds-foundation.org/100-questions-answers-about- myelodysplastic-syndromes Support groups and events Aplastic Anemia and MDS International Foundation (AAMDSIF) aamds.org/support The Leukemia and Lymphoma Society (LLS) lls.org/support/support-groups MDS Foundation, Inc. mds-foundation.org/patient-caregiver-resources Review † † Shared decision-making is a process in which you and your doctors plan treatment together. † † Asking your doctors questions is vital to getting the information you need to make informed decisions. † † Getting a 2 nd opinion, attending support groups, and comparing benefits and risks may help you decide which treatment is best for you. “ I would never have made it through the tough spots without my husband, my family and friends - and my faith. Surround yourself with positive thinkers, eliminate or at least limit anyone who is negative from your daily routine. - Kate

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