NCCN Guidelines for Patients® | Myelodysplastic Syndromes

6 NCCN Guidelines for Patients ® : Myelodysplastic Syndromes, 2018 How to use this book Who should read this book? The information in this book is about myelodysplastic syndromes—a group of cancers in which the bone marrow doesn’t make enough healthy, mature blood cells. Patients and those who support them— caregivers, family, and friends—may find this book helpful. It may help you discuss and decide with your doctors what care is best. Are the book chapters in a certain order? Starting with Part 1 may be helpful for many people. It explains what myelodysplastic syndromes are. Knowing more about this group of cancers may help you better understand the treatment options. Parts 2 and 3 explain how doctors assess for myelodysplastic syndromes and plan treatment. Part 4 introduces types of treatments that may be used. Part 5 is a guide to treatment options. Part 6 offers some helpful tips for making treatment decisions and questions to ask your doctors. Does this book include all options? This book includes information for many situations. Your treatment team can help. They can point out what information applies to you. They can also give you more information. As you read through this book, you may find it helpful to make a list of questions to ask your doctors. The recommendations in this book are based on science and the experience of NCCN experts. But, these recommendations may not be right for your situation. Your doctors may suggest other tests and treatments based on your health and other factors. If other recommendations are given, feel free to ask your treatment team questions. Help! What do the words mean? In this book, many medical words are included. These are words you will likely hear from your treatment team. Most of these words may be new to you, and it may be a lot to learn. Don’t be discouraged as you read. Keep reading and review the information. Feel free to ask your treatment team to explain a word or phrase that you don’t understand. Words that you may not know are defined in the text or in the Dictionary. Acronyms are also defined when first used and in the Glossary . One example is MDS for m yelo d ysplastic s yndromes.