NCCN Guidelines for Patients® | Myeloproliferative Neoplasms
6 NCCN Guidelines for Patients ® : Myeloproliferative Neoplasms, 2018 How to use this book Who should read this book? This book is about treatment for adults with myeloproliferative neoplasms. These cancers are called MPNs, for short. There are several types of MPNs. The focus of this book is on the classic types—essential thrombocythemia, polycythemia vera, and primary myelofibrosis. Patients and those who support them—caregivers, family, and friends— may find this book helpful. It is a good starting point to learn what your options may be. Are the book chapters in a certain order? Part 1 explains what MPNs are. It may be a good starting point if you do not know much about MPNs. Tests that doctors use to diagnose and plan treatment for MPNs are described in Part 2 . Treatment is discussed in Parts 3 through 5. Part 3 is a treatment guide for essential thrombocythemia. Part 4 is a guide to polycythemia vera, and Part 5 is a guide to myelofibrosis. Tips for talking and deciding your options with your doctor are presented in Part 6 . Does this book include all options? This book includes information for many people. Your treatment team can point out what applies to you. They can also give you more information. While reading, make a list of questions to ask your doctors. The treatment options are based on science and the experience of NCCN experts. However, their recommendations may not be right for you. Your doctors may suggest other options based on your health and other factors. If other options are given, ask your treatment team questions. Help! What do the words mean? In this book, many medical words are included. These are words that your treatment team may say to you. Most of these words may be new to you. It may be a lot to learn. Don’t be discouraged as you read. Keep reading and review the information. Ask your treatment team to explain a word or phrase that you do not understand. Words that you may not know are defined in the text or in the Dictionary . Acronyms are also defined when first used and in the Glossary . Acronyms are short words formed from the first letters of several words. One example is DNA for d eoxyribo n ucleic a cid.