NCCN Guidelines for Patients® | Neuroendocrine Tumors

6 NCCN Guidelines for Patients ® : Neuroendocrine Tumors, 2018 How to use this book Who should read this book? This book is about treatment for neuroendocrine tumors. Patients and those who support them— caregivers, family, and friends—may find this book helpful. It may help you discuss and decide with doctors what care is best. Are the book chapters in a certain order? Yes, information in early chapters explains treatment options found in later chapters. Starting with Part 1 may be helpful for many people. It explains the neuroendocrine system and tumors that grow there. Part 2 explains the tests doctors use to confirm (diagnose) a neuroendocrine tumor. Part 3 describes the types of treatments that may be used. Part 4, Part 5, Part 6, and Part 7 offer treatment options for certain types of neuroendocrine tumors. Part 8 is the last chapter of the guideline. It offers some helpful tips for making treatment decisions. You can also get sample questions to ask your doctors. Visit the websites in this section to learn more about neuroendocrine tumors. Does this book include all options? This book includes information for many situations. However, it doesn’t address treatment for adrenal tumors or Merkel cell skin cancer. If you need more information on these cancer types, visit the NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines ® ) for Merkel Cell Carcinoma or Neuroendocrine and Adrenal Tumors at www.nccn.org . Your treatment team can help with options. They can point out what sections apply to you. They can also give you more information. As you read this book, you may find it helpful to make a list of questions to ask your doctors. NCCN experts base the recommendations in this book on science and experience. However, these recommendations may not be right for your situation. Your doctors may suggest other tests and treatments based on your health and other factors. If other recommendations are given, feel free to ask your treatment team questions. Help! What do the words mean? In this book, many medical words are included. You will likely hear these words from your treatment team. Most of these words may be new to you, and it may be a lot to learn. Don’t be discouraged as you read. Keep reading and review the information. Feel free to ask your treatment team to explain a word or phrase that you don’t understand. Words that you may not know are defined in the text or in the Dictionary . Acronyms are also defined when first used and in the Glossary . One example is CT for c omputed t omography.

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