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NCCN Guidelines for Patients


Mycosis Fungoides, Version 1.2016

NCCN aims to improve the care given to patients with cancer. NCCN staff work with experts to create helpful programs and resources for many

stakeholders. Stakeholders include health providers, patients, businesses, and others. One resource is the series of books for patients called

the NCCN Guidelines for Patients


. Each book presents the best practice for a type of cancer. The patient books are based on clinical practice

guidelines written for cancer doctors. These guidelines are called the NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines


). Clinical

practice guidelines list the best health care options for groups of patients. Many doctors use them to help plan cancer treatment for their patients.

Panels of experts create the NCCN Guidelines


. Most of the experts are from NCCN Member Institutions. Panelists may include surgeons,

radiation oncologists, medical oncologists, and patient advocates. Recommendations in the NCCN Guidelines are based on clinical trials and the

experience of the panelists. The NCCN Guidelines are updated at least once a year. When funded, the patient books are updated to reflect the

most recent version of the NCCN Guidelines for doctors. For more information about the NCCN Guidelines, visit


NCCN staff involved in making the guidelines for patients and doctors include:

NCCN Guidelines for Patients

Dorothy A. Shead, MS


Patient and Clinical Information Operations

Laura J. Hanisch, PsyD

Medical Writer/Patient Information Specialist

Lacey Marlow

Associate Medical Writer

NCCN Guidelines

Mary Dwyer, MS

Senior Manager, Guidelines

Hema Sundar, PhD

Oncology Scientist/Senior Medical Writer

Rachael Clarke

Guidelines Data and Layout Coordinator

NCCN Marketing

Susan Kidney

Graphic Design Specialist

Supported by NCCN Foundation


The NCCN Foundation supports the mission of the National Comprehensive Cancer Network





to improve the care of patients with cancer. One of its aims is to raise funds to create a library of books for

patients. Learn more about the NCCN Foundation at


© 2016 National Comprehensive Cancer Network, Inc. All rights reserved. The NCCN Guidelines for Patients


and illustrations

herein may not be reproduced in any form for any purpose without the express written permission of NCCN.

National Comprehensive Cancer Network (NCCN)

275 Commerce Drive • Suite 300

Fort Washington, PA 19034



Endorsed by

THE Leukemia & lymphoma society (LLS)

LLS is dedicated to developing better outcomes for blood cancer patients through research, education and patient services

and is happy to have this comprehensive resource available to patients with mycosis fungoides.