NCCN Guidelines for Patients
Mycosis Fungoides, Version 1.2016
How to use this book
Who should read this book?
The focus of this book is mycosis fungoides.
Mycosis fungoides is the most common type
of lymphoma of the skin. Although related,
the book does not address care for Sézary
syndrome. People with mycosis fungoides and
those who support them—caregivers, family,
and friends—may find this book helpful. It may
help you discuss and decide with doctors what
care is best.
Where should I start
Starting with Part 1 may be helpful. It explains
what mycosis fungoides is and how it is
diagnosed. Parts 2 through 5 address issues
related to treatment. Part 2 lists what health
care is needed before treatment. Part 3 briefly
describes all the types of treatments so you
can understand your options that are listed in
Part 4. Tips for making treatment decisions are
presented in Part 5.
Does the whole book
apply to me?
This book includes information for many
situations. Your treatment team can help. They
can point out what information applies to you.
They can also give you more information. As
you read through this book, you may find it
helpful to make a list of questions to ask your
The recommendations in this book are based on
science and the experience of NCCN experts.
However, these recommendations may not be
right for you. Your doctors may suggest other
tests and treatments based on your health
and other factors. If other recommendations
are given, feel free to ask your treatment team
Making sense of medical
In this book, many medical words are included.
These are words that you will likely hear from
your treatment team. Most of these words may
be new to you, and it may be a lot to learn.
Don’t be discouraged as you read. Keep reading
and review the information. Don’t be shy to ask
your treatment team to explain a word or phrase
that you do not understand.
Words that you may not know are defined in the
text or in the
. Words in the
are underlined when first used on a page.
Acronyms are also defined when first used
and in the
. Acronyms are short words
formed from the first letters of several words.
One example is