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NCCN Guidelines for Patients


Soft Tissue Sarcoma, Version 1.2014

Who should read this book?

This book is about treatment for soft tissue

sarcoma in adults. Patients and those who

support them—caregivers, family, and friends—

may find this book helpful. It may help you

discuss and decide with doctors what care is


Does the whole book

apply to me?

Part 1 briefly describes sarcoma and its

treatments. Parts 2 through 5 offer a treatment

guide for different types of tumors. Part 6 gives

tips for anyone making treatment decisions.

This book includes information for many

situations. However, it doesn’t address treatment

for rhabdomyosarcoma, Ewing’s sarcoma,

and desmoplastic small round cell tumor. Part

2 covers treatment for sarcomas in the arms,

legs, trunk wall, head, or neck. Part 3 covers

sarcomas in the space in front of your lower

spine (retroperitoneum), belly area (abdomen),

and between the hip bones (pelvis). Part 4 is

a treatment guide for GISTs (








umors). The last treatment guide, Part

5, discusses desmoid tumors.

Your treatment team can help. They can point

out what information applies to you. They can

also give you more information. As you read

through this book, you may find it helpful to

make a list of questions to ask your doctors.

The recommendations in this book are based on

science and the experience of NCCN experts.

However, these recommendations may not be

right for you. Your doctors may suggest other

tests or treatments based on your health and

other factors. If other tests or treatments are

suggested, feel free to ask your treatment team


Making sense of medical


In this book, many medical words are included

that describe cancer, tests, and treatments.

These are words that you will likely hear from

your treatment team. Most of these words may

be new to you, and it may be a lot to learn.

Don’t be discouraged as you read. Keep reading

and review the information. Don’t be shy to ask

your treatment team to explain a word or phrase

that you do not understand.

Words that you may not know are defined in the

text or in the


. Words in the


are underlined when first used on a page.

Acronyms are also defined when first used

and in the


. Acronyms are short words

formed from the first letters of several words.

One example is FAP for







How to use this book