NCCN Guidelines for Patients
Soft Tissue Sarcoma, Version 1.2014
Who should read this book?
This book is about treatment for soft tissue
sarcoma in adults. Patients and those who
support them—caregivers, family, and friends—
may find this book helpful. It may help you
discuss and decide with doctors what care is
Does the whole book
apply to me?
Part 1 briefly describes sarcoma and its
treatments. Parts 2 through 5 offer a treatment
guide for different types of tumors. Part 6 gives
tips for anyone making treatment decisions.
This book includes information for many
situations. However, it doesn’t address treatment
for rhabdomyosarcoma, Ewing’s sarcoma,
and desmoplastic small round cell tumor. Part
2 covers treatment for sarcomas in the arms,
legs, trunk wall, head, or neck. Part 3 covers
sarcomas in the space in front of your lower
spine (retroperitoneum), belly area (abdomen),
and between the hip bones (pelvis). Part 4 is
a treatment guide for GISTs (
umors). The last treatment guide, Part
5, discusses desmoid tumors.
Your treatment team can help. They can point
out what information applies to you. They can
also give you more information. As you read
through this book, you may find it helpful to
make a list of questions to ask your doctors.
The recommendations in this book are based on
science and the experience of NCCN experts.
However, these recommendations may not be
right for you. Your doctors may suggest other
tests or treatments based on your health and
other factors. If other tests or treatments are
suggested, feel free to ask your treatment team
Making sense of medical
In this book, many medical words are included
that describe cancer, tests, and treatments.
These are words that you will likely hear from
your treatment team. Most of these words may
be new to you, and it may be a lot to learn.
Don’t be discouraged as you read. Keep reading
and review the information. Don’t be shy to ask
your treatment team to explain a word or phrase
that you do not understand.
Words that you may not know are defined in the
text or in the
. Words in the
are underlined when first used on a page.
Acronyms are also defined when first used
and in the
. Acronyms are short words
formed from the first letters of several words.
One example is FAP for
How to use this book