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58

NCCN Guidelines for Patients

®

Soft Tissue Sarcoma, Version 1.2014

Parts 1 through 5 described the cancer

and gave test and treatment options

recommended by NCCN experts.

These options are based on science

and agreement among NCCN experts.

Part 6 aims to help you make decisions

that are in line with your beliefs,

wishes, and values.

It’s your choice

The role patients want in choosing their treatment

differs. You may feel uneasy about making treatment

decisions. This may be due to a high level of stress.

It may be hard to hear or know what others are

saying. Stress, pain, and drugs can limit your ability to

make good decisions. You may feel uneasy because

you don’t know much about cancer. You’ve never

heard the words used to describe cancer, tests,

or treatments. Likewise, you may think that your

judgment isn’t any better than your doctors’.

Your doctors will give you the information you need

to make an informed choice. However, letting others

decide which option is best may make you feel more

at ease. But, who do you want to make the decisions?

You may rely on your doctors alone to make the right

decisions. You can also have loved ones help. They

can gather information, speak on your behalf, and

share decision–making with your doctors. Even if

others decide the best option, you still have to agree

to have this treatment by signing a consent form.

On the other hand, you may want to take the lead

or share in decision–making. Many patients do.

In shared decision–making, you and your doctors

share information, weigh the options, and agree on a

treatment plan. Your doctors know the science but you

know your concerns and goals. By working together,

you are likely to get higher-quality care and be more

satisfied. You’ll likely get the treatment you want, at

the place you want, and by the doctors you want.

6

Making treatment

decisions

58 It’s your choice

59 Questions to ask your doctors

63 Weighing your options

64 Websites | Review