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46

NCCN Guidelines for Patients

®

:

Waldenström’s Macroglobulinemia, Version 1.2017

5

Making decisions

Learn about your options

Learn about your options

Deciding which option is best can be hard. Doctors

from different fields of medicine may have different

opinions on which option is best for you. This can be

very confusing. Your spouse, partner, or caregiver

may disagree with which option you want. This can

be stressful. In some cases, one option hasn’t been

shown to work better than another, so science isn’t

helpful. Some other ways to decide on a treatment

plan that works best for you are discussed next

Getting a 2

nd

opinion

Even if you like and trust your doctor, it is helpful

to get a 2

nd

opinion. You will want to have another

doctor review your test results. He or she can

suggest a treatment plan or check the one you

already heard about.

Things you can do to prepare:

†

†

Check with your insurance company about its

rules on 2

nd

opinions. You want to know about

out-of-pocket costs for doctors who are not part

of your insurance plan.

†

†

Make plans to have copies of all your records

sent to the doctor you will see for your 2

nd

opinion. Do this well before your appointment.

If you run into trouble having records sent, pick

them up and bring them with you.

If the new doctor offers other advice, make an

appointment with your first doctor to talk about the

differences. If you’re not sure what to do, get a 3

rd

or

4

th

opinion. Do whatever you need to feel confident

about your diagnosis and treatment plan.

Getting support

Support groups often include people at different

stages of treatment. Some may be in the process of

deciding while others may be finished with treatment.

At support groups, you can ask questions and hear

about the experiences of other people with WM. If

your hospital or community doesn’t have support

groups for people with WM, check out the websites

on the next page. You can also reach out to a social

worker or psychologist. They can help you find ways

to cope or refer you to support services. These

services may also be available to your family, friends,

and to those with children, so they can connect and

get support.

What to remember...

ü

Every treatment option has benefits

and risks. Consider these when

deciding which option is best for you.

ü

Talking to others may help identify

benefits and risks you haven’t thought

of.