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NCCN Guidelines for Patients



Waldenström’s Macroglobulinemia, Version 1.2017

How to use this book

Who should read this book?

This book is about




acroglobulinemia (WM), a type of non-Hodgkin’s

lymphoma. This type of cancer is considered to be

a lymphoplasmacytic lymphoma. This book is for

people with WM and those who support them like

caregivers, family, and friends.

Where should you start


Starting with Part 1 may be helpful. It explains what

WM is and how this cancer is diagnosed. Part 2

lists which health tests and other care are needed

before starting treatment. Part 3 briefly describes

all the types of treatments so you can understand

your options that are listed in Part 4. Tips for making

treatment decisions are presented in Part 5.

Does the whole book apply

to you?

This book includes information for many situations.

Your treatment team can help. They can point out

what parts of the book apply to you. They can also

give you more information. As you read through

this book, you may find it helpful to make a list of

questions to ask your doctors.

The recommendations in this book are based on

science and the experience of NCCN experts.

However, these recommendations may not be right

for you. Your doctors may suggest other tests and

treatments based on your health and other factors.

If other suggestions are given, feel free to ask your

treatment team questions.

Help! What do the words


In this book, many medical words are included.

These are words you will likely hear from your

treatment team. Most of these words may be new to

you, and it may be a lot to learn.

Don’t be discouraged as you read. Keep reading

and review the information. Feel free to ask your

treatment team to explain a word or phrase that you

don’t understand.

Words that you may not know are defined in the

text or in the


. Acronyms are also defined

when first used and in the


. Acronyms are

short words formed from the first letters of several

words. One example is WM for