National Comprehensive Cancer Network

Educational Events & Programs

NCCN Patient Advocacy Summit:
Addressing Survivorship in Cancer Care

NCCN POLICY SUMMIT DATE  >  Friday, December 1, 2017 > REGISTER NOW!

NCCN POLICY SUMMIT LOCATION  > The National Press Club • Washington, DC

Early bird discount expires on November 20



On December 1, 2017, the National Comprehensive Cancer Network® (NCCN®) will host a Patient Advocacy Summit focused on addressing survivorship issues in cancer care. In preparation for the Patient Advocacy Summit, NCCN conducted an environmental scan of existing and emerging aspects of survivorship through stakeholder meetings with survivors and various patient advocacy groups to discuss needs, opportunities, and challenges in providing high-quality, patient-centered care for all cancer survivors. The corresponding patient advocacy summit will report on the findings of the stakeholder meetings and include discussions by the multi-stakeholder, multi-disciplinary larger cancer care community. These stakeholders perspectives are imperative to fully understanding the challenges of survivorship planning to improve the quality of, and access to, cancer care and in addressing post-treatment needs.

A subsequent article of the summit will be published in the Journal of the National Comprehensive Cancer Network―JNCCN.

Please check back often for additional updates regarding the summit. If you have any questions, please contact James McCanney.

Clifford Goodman, PhD
Senior Vice President
The Lewin Group






7:30 – 8:30 AM


8:30 – 8:35 AM

Welcome and Introductions

Robert W. Carlson, MD
National Comprehensive Cancer Network

8:35 – 9:05 AM

Cancer Survivor Perspective

Yelak Biru
Cancer Survivor, Patient Champion

9:05 – 9:35 AM

Patient Advocacy Update: Resources for Cancer Survivors

CancerConnect Community
Megan Murphy
National Ovarian Cancer Coalition

Survivorship Beyond Breast Cancer
Janine Guglielmino, MA
Living Beyond Breast Cancer

NCCN Guidelines for Patients
Marcie R. Reeder, MPH
NCCN Foundation

9:35 – 9:50 AM


9:55 – 11:15 AM

Panel Discussion:
A Viewpoint on Cancer Survivorship from Patient Advocates

Moderated by:
Clifford Goodman, PhD
The Lewin Group

Kendall Bergman, MA

Yelak Biru
Cancer Survivor, Patient Champion

George Dahlman
Children’s Cause for Cancer Advocacy

Andi Dwyer, BS
Fight Colorectal Cancer

Linda House, RN, BSN, MSM
Cancer Support Community

Merel Grey Nissenberg, Esq.
National Alliance of State
Prostate Cancer Coalitions

11:15 – 11:30 AM

“Living With” Series

Dorothy Phillips
Florida Society of Clinical Oncology
11:30 AM – 12:10 PM


12:15 – 12:40 PM

Fight Colorectal Cancer Collaboration with University of Colorado Cancer Center 

Andi Dwyer, BS
Fight Colorectal Cancer
University of Colorado Cancer Center

Chris Lieu, MD
University of Colorado Cancer Center

12:40 – 2:00 PM

Panel Discussion:
Navigating the Cancer Survivorship Landscape from a Multi-Stakeholder Perspective

Moderated by:
Clifford Goodman, PhD
The Lewin Group

Ken Braun
Cancer Survivor; Employers Health Coalition

Crystal Denlinger, MD, FACP
Fox Chase Cancer Center

Chris Lieu, MD
University of Colorado Cancer Center

Dorothy Phillips
Florida Society of Clinical Oncology

Julia Rowland, PhD
National Cancer Institute: Office of Cancer Survivorship

Richard Woodman, MD

2:00 – 2:30 PM

Patient Advocacy Update: Resources for Cancer Survivors

Live By Living
Dan Miller, JD
Live by Living

LUNGevity Lung Cancer Support& Survivorship Programs
Katie Brown, OPN-CG
LUNGevity Foundation

Patient Service Coordination Network
Sarah Cassidy
Cancer Hope Network

2:35 PM Wrap-up and Conclusions
Robert W. Carlson, MD
National Comprehensive Cancer Network

*Subject to change


The National Press Club
529 14th Street, NW
Washington, DC 20045


This summit welcomes patients, patient advocacy groups, provider groups, payers, clinicians, policy-makers, industry, and employers.


  Before 11.20.17 After 11.20.17


$40 $50

Health Care Professionals (Other)

$40 $50


$65 $75

NCCN Member Institution Employees

$20 $25


$40 $50


$40 $50


This summit is supported by: Adaptive Biotechnologies; AmerisourceBergen; Apobiologix, a division of ApoPharma USA, Inc.; Astellas; Gilead Sciences, Inc.; HELSINN; ImpediMed; Incyte Corporation; Janssen Oncology; Kite, a Gilead Company; Shire; Taiho Oncology; and Takeda Oncology. This summit is sponsored by: Boehringer Ingelheim Pharmaceuticals, Inc.; Boston Biomedical, Inc.; Bristol-Myers Squibb; Celgene; Clovis Oncology, Inc.; Dendreon; Novartis Pharmaceuticals Corporation; and Sandoz, A Novartis Division. This activity is supported by an educational donation provided by Amgen. Supported by AstraZeneca through its NCCN Corporate Council Membership. Supported by an unrestricted grant from Eisai. Supported by a grant from Genentech, a Member of the Roche Group. This activity is supported by a contribution from Lilly. Supported by an independent educational grant from Merck & Co., Inc. This activity was made possible by Pharmacyclics LLC and Janssen Biotech, Inc. Supported by an unrestricted sponsorship from TESARO.

As of November 14, 2017

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