National Comprehensive Cancer Network

Interactive CME

Educational Events & Programs

NCCN PATIENT ADVOCACY SUMMIT DATE  > Monday, December 10, 2018 > Register Now!

LOCATION  > The National Press Club • Washington, DC



The NCCN will host the Patient Advocacy Summit: Advocating for Equity in Cancer Care taking place on Monday, December 10, 2018 in Washington, DC.

In preparation for this summit, NCCN will conduct an environmental scan that will consist of stakeholder meetings with patient advocates. The meetings will examine current disparities in access, cost, and treatment in oncology, and identify policy strategies to address these significant barriers for patients with cancer. The corresponding event will provide an opportunity for a varied group of stakeholders including patients, patient advocacy organizations, industry, providers, and payers to thoughtfully discuss equitable patient access to high-quality oncology care and present best practices regarding how patient advocacy organizations can influence health care policy moving forward.

Please check back often for additional updates regarding the summit. If you have any meeting content or agenda questions, please contact James McCanney, JD, Policy/Advocacy Fellow. For any media questions, please contact Rachel Darwin, Public Relations Manager.


8:00 – 8:30 AM

Breakfast and Registration

8:30 – 8:40 AM

Welcome and Introductions

Robert W. Carlson, MD
National Comprehensive Cancer Network

8:40 – 9:40 AM

Overcoming Disparities: A Case Study on the Navajo Nation

Keynote speaker:
Lynette Bonar, RN, MBA, BSN
Tuba City Regional Health

9:40 – 10:10 AM

Patient Advocacy Update: Advocating for Equity in Cancer Care
Language and Cultural Barriers

Language and Cultural Barriers
Gloria Zhang
New Tang Dynasty Television

Male Breast Cancer Coalition
Marc Futterweit
Male Breast Cancer Coalition

10:10 – 10:20 AM


10:20 – 11:40 AM

Panel Discussion: A Viewpoint on Cancer Equity from Patient Advocates

Moderated by:

Clifford Goodman, PhD
The Lewin Group




Donna Cryer, JD
Global Liver Institute

William Foster, Patient
Kidney Cancer Association

Cassadie Moravek
Pancreatic Cancer Action Network

Michael Sapienza
Colorectal Cancer Alliance

11:40 AM – 12:35 PM


12:35 – 1:05 PM

“Raising all Boats” with the 4R Oncology Program: Improving Cancer Care for the Underserved

1:05 – 2:25 PM

Panel Discussion: Identifying and Addressing the Barriers to Equity in Oncology

Moderated by:

Clifford Goodman, PhD
The Lewin Group




Nadine J. Barrett, PhD
Duke Cancer Institute Office of Health Equity

Shonta Chambers, MSW
Patient Advocate Foundation

Liz Margolies, LCSW
National LGBT Cancer Network

Christine Weldon, MBA
Center for Business Models in Healthcare; Northwestern University Feinberg School of Medicine

2:25 – 2:55 PM

Patient Advocacy Update: Advocating for Equity in Cancer Care

Advocating for Stigmatized Cancers
Justine Almada
The HPV and Anal Cancer Foundation

NCCN Guidelines for Patients®: Adolescent and Young Adults
Marcie Reeder
National Comprehensive Cancer Network

2:55 - 3:00 PM

Wrap-up and Conclusions     

Robert W. Carlson, MD
National Comprehensive Cancer Network

*Subject to change.


The National Press Club
529 14th Street NW
13th Floor
Washington, District of Columbia 20045


Supported by Adaptive Biotechnologies; Supported by AmerisourceBergen; Supported by Apobiologix, a division of ApoPharma USA, Inc.; Supported by Astellas; Supported by AstraZeneca through its NCCN Corporate Council Membership; Sponsored by Bristol-Myers Squibb; Sponsored by Boehringer Ingelheim Pharmaceuticals, Inc.; Supported by Celgene Corporation; Sponsored by Clovis Oncology, Inc.; Sponsored by Dendreon; Supported by Eisai Inc.; Supported by EMD Serono; Supported by a non-restricted medical education grant from Gilead Sciences, Inc.; Supported by a grant from Genentech, a Member of the Roche Group; Supported by HELSINN; Supported by Heron; Supported by Incyte Corporation; Supported by Janssen Pharmaceutical Companies of Johnson & Johnson; The National Comprehensive Cancer Network’s 2018 Patient Advocacy Summit was funded in part by a sponsorship from Jazz Pharmaceuticals, Inc; Supported by Juno Therapeutics; This activity is supported by a contribution from Lilly; Supported by Kite, a Gilead Company; Supported by an independent educational grant from Merck & Co., Inc.; Sponsored by Novartis Pharmaceuticals Corporation; This activity was made possible by Pharmacyclics, an AbbVie Company and Janssen Biotech, Inc.; Supported by Regeneron; Sponsored by Sandoz, A Novartis Division; Supported by Servier; Supported by Taiho Oncology; Supported by Takeda Oncology; Supported by an unrestricted sponsorship from TESARO; Supported by Verastem

Access the Library of White Papers!

NCCN offers a broad library of white papers from previous summits that may be pertinent to your organization.

View Supporter Opportunities.

NCCN offers organizations various supporter opportunities.