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National Comprehensive Cancer Network



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Live webinar was held December 10, 2020.

 

OVERVIEW

Patients with cancer often have widely divergent care experiences from screening through survivorship. Differences in care delivery and outcomes may be due, in part, to varying patient needs and preferences according to age and stage of life; inconsistent implementation of guidelines, recommendations, and policies; and unintended age bias in health care. The National Comprehensive Cancer Network’s® (NCCN®) Virtual Patient Advocacy Summit provided an opportunity for a varied group of stakeholders including patients, caregivers, providers, patient advocacy organizations, policymakers, and industry to thoughtfully discuss the importance of providing quality, effective, efficient, and accessible cancer care across the patient lifespan.

The NCCN Digital Resource Booklet includes information from 25 patient advocacy organizations on their age-specific programs and resources. This Booklet was developed in conjunction with NCCN Virtual Patient Advocacy Summit: Cancer Across the Lifespan held on December 10, 2020. To view the NCCN Digital Resource Booklet, click here.


AGENDA*

12:00 – 12:05 PM

Welcome and Introductions

Robert W. Carlson, MD
National Comprehensive Cancer Network

12:10 – 12:30 PM

Keynote: Living and Thriving Through My Cancer Adventure

Jan S. White
Cancer Survivor and Patient Advocate

12:35 – 1:10 PM

Fireside Chat: Addressing Age-Specific Needs and Preferences from Early Childhood through Young Adulthood

Moderated by:
Clifford Goodman, PhD,
The Lewin Group

Congressman Buddy Carter (R-GA)

Senator Chris Van Hollen (D-MD)

1:15 – 1:35 PM

Patient Advocacy Updates: Resources for the Cancer Community

Peer Support Program
Sarah Miretti Cassidy
Cancer Hope Network

NCCN Guidelines for Patients: Pediatric ALL; Adolescents and Young Adults; Survivorship
Dottie Shead, MS
National Comprehensive Cancer Network

1:35 – 1:45 PM

Break

1:45 – 2:35 PM

Panel Discussion: Addressing Age-Specific Needs and Preferences throughout Adulthood

Moderated by:
Clifford Goodman, PhD
The Lewin Group

Darcie Green
Latinas Contra Cancer

Danielle S. Pardue, JD
Caregiver and Patient Advocate

Hyman Muss, MD, FASCO
University of North Carolina Lineberger Comprehensive Cancer Center

Efrat Dotan, MD
Fox Chase Cancer Center     

2:40 – 3:00 PM

Patient Advocacy Updates: Resources for the Cancer Community

Catalyst State-by-State Advocacy Program
Molly McDonnell
Fight Colorectal Cancer

digital sherpa™ Program
Andrea Conners, MS
Patient Empowerment Network

3:05 – 3:55 PM

Stakeholder Roundtable: Identifying Policy and Practice Solutions for Patients Across the Lifespan

Moderated by:
Clifford Goodman, PhD
The Lewin Group

Phylicia L. Woods, JD, MSW
Cancer Support Community

Alyssa Schatz, MSW
National Comprehensive Cancer Network

Aarati Didwania, MD, MSCI
Robert H. Lurie Comprehensive Cancer Center of Northwestern University

Maura Dickler, MD
Eli Lilly and Company

3:55 – 4:00 PM

Wrap-up and Conclusions

Gary J. Weyhmuller, MBA, SPHR
National Comprehensive Cancer Network

*Topics subject to change.


SUPPORTERS

Supported by AbbVie, Adaptive, ADC Therapeutics, AmerisourceBergen, Apobiologix, Astellas, BeiGene, Ltd., bluebird bio, Dendreon Pharmaceuticals, Eisai Inc, EMD Serono, Exact Sciences, Exelixis, Foundation Medicine, Inc., GSK, Heron, Incyte Corporation, Janssen Oncology; Pharmaceutical Companies of Johnson & Johnson, Kite, a Gilead Company, MorphoSys US, Inc., Regeneron Pharmaceuticals, Inc., Seattle Genetics, Servier, Sun Pharma Oncology, Taiho, Verastem Oncology. Supported by AstraZeneca through its NCCN Corporate Council Membership. Sponsored by Boehringer Ingelheim Pharmaceuticals, Inc. This event is sponsored by Lilly Oncology. Supported by an independent educational grant from Merck & Co., Inc. This activity was made possible by Pharmacyclics, an AbbVie Company.

As of October 21, 2020.


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