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Live webinar was held December 10, 2020.
OVERVIEW
Patients with cancer often have widely divergent care experiences from screening through survivorship. Differences in care delivery and outcomes may be due, in part, to varying patient needs and preferences according to age and stage of life; inconsistent implementation of guidelines, recommendations, and policies; and unintended age bias in health care. The National Comprehensive Cancer Network’s® (NCCN®) Virtual Patient Advocacy Summit provided an opportunity for a varied group of stakeholders including patients, caregivers, providers, patient advocacy organizations, policymakers, and industry to thoughtfully discuss the importance of providing quality, effective, efficient, and accessible cancer care across the patient lifespan.
The NCCN Digital Resource Booklet includes information from 25 patient advocacy organizations on their age-specific programs and resources. This Booklet was developed in conjunction with NCCN Virtual Patient Advocacy Summit: Cancer Across the Lifespan held on December 10, 2020. To view the NCCN Digital Resource Booklet, click here.
AGENDA*
12:00 – 12:05 PM |
Welcome and Introductions
Robert W. Carlson, MD
National Comprehensive Cancer Network |
12:10 – 12:30 PM |
Keynote: Living and Thriving Through My Cancer Adventure
Jan S. White
Cancer Survivor and Patient Advocate |
12:35 – 1:10 PM |
Fireside Chat: Addressing Age-Specific Needs and Preferences from Early Childhood through Young Adulthood
Moderated by:
Clifford Goodman, PhD,
The Lewin Group
Congressman Buddy Carter (R-GA)
Senator Chris Van Hollen (D-MD) |
1:15 – 1:35 PM |
Patient Advocacy Updates: Resources for the Cancer Community
Peer Support Program
Sarah Miretti Cassidy
Cancer Hope Network
NCCN Guidelines for Patients: Pediatric ALL; Adolescents and Young Adults; Survivorship
Dottie Shead, MS
National Comprehensive Cancer Network |
1:35 – 1:45 PM |
Break |
1:45 – 2:35 PM |
Panel Discussion: Addressing Age-Specific Needs and Preferences throughout Adulthood
Moderated by:
Clifford Goodman, PhD
The Lewin Group
Darcie Green
Latinas Contra Cancer
Danielle S. Pardue, JD
Caregiver and Patient Advocate
Hyman Muss, MD, FASCO
University of North Carolina Lineberger Comprehensive Cancer Center
Efrat Dotan, MD
Fox Chase Cancer Center |
2:40 – 3:00 PM |
Patient Advocacy Updates: Resources for the Cancer Community
Catalyst State-by-State Advocacy Program
Molly McDonnell
Fight Colorectal Cancer
digital sherpa™ Program
Andrea Conners, MS
Patient Empowerment Network |
3:05 – 3:55 PM |
Stakeholder Roundtable: Identifying Policy and Practice Solutions for Patients Across the Lifespan
Moderated by:
Clifford Goodman, PhD
The Lewin Group
Phylicia L. Woods, JD, MSW
Cancer Support Community
Alyssa Schatz, MSW
National Comprehensive Cancer Network
Aarati Didwania, MD, MSCI
Robert H. Lurie Comprehensive Cancer Center of Northwestern University
Maura Dickler, MD
Eli Lilly and Company |
3:55 – 4:00 PM |
Wrap-up and Conclusions
Gary J. Weyhmuller, MBA, SPHR
National Comprehensive Cancer Network |
*Topics subject to change.
SUPPORTERS
Supported by AbbVie, Adaptive, ADC Therapeutics, AmerisourceBergen, Apobiologix, Astellas, BeiGene, Ltd., bluebird bio, Dendreon Pharmaceuticals, Eisai Inc, EMD Serono, Exact Sciences, Exelixis, Foundation Medicine, Inc., GSK, Heron, Incyte Corporation, Janssen Oncology; Pharmaceutical Companies of Johnson & Johnson, Kite, a Gilead Company, MorphoSys US, Inc., Regeneron Pharmaceuticals, Inc., Seattle Genetics, Servier, Sun Pharma Oncology, Taiho, Verastem Oncology. Supported by AstraZeneca through its NCCN Corporate Council Membership. Sponsored by Boehringer Ingelheim Pharmaceuticals, Inc. This event is sponsored by Lilly Oncology. Supported by an independent educational grant from Merck & Co., Inc. This activity was made possible by Pharmacyclics, an AbbVie Company.
As of October 21, 2020.
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