National Comprehensive Cancer Network

Patients with cancer often have widely divergent care experiences from screening through survivorship. Differences in care delivery and outcomes may be due, in part, to varying patient needs and preferences according to age and stage of life; inconsistent implementation of guidelines, recommendations, and policies; and unintended age bias in health care. The National Comprehensive Cancer Network’s^® (NCCN^®) Virtual Patient Advocacy Summit provided an opportunity for a varied group of stakeholders including patients, caregivers, providers, patient advocacy organizations, policymakers, and industry to thoughtfully discuss the importance of providing quality, effective, efficient, and accessible cancer care across the patient lifespan.

The NCCN Digital Resource Booklet includes information from 25 patient advocacy organizations on their age-specific programs and resources. This Booklet was developed in conjunction with NCCN Virtual Patient Advocacy Summit: Cancer Across the Lifespan held on December 10, 2020. To view the NCCN Digital Resource Booklet, click here.

AGENDA*

12:00 – 12:05 PM	Welcome and Introductions Robert W. Carlson, MD National Comprehensive Cancer Network
12:10 – 12:30 PM	Keynote: Living and Thriving Through My Cancer Adventure Jan S. White Cancer Survivor and Patient Advocate
12:35 – 1:10 PM	Fireside Chat: Addressing Age-Specific Needs and Preferences from Early Childhood through Young Adulthood Moderated by: Clifford Goodman, PhD, The Lewin Group Congressman Buddy Carter (R-GA) Senator Chris Van Hollen (D-MD)
1:15 – 1:35 PM	Patient Advocacy Updates: Resources for the Cancer Community Peer Support Program Sarah Miretti Cassidy Cancer Hope Network NCCN Guidelines for Patients: Pediatric ALL; Adolescents and Young Adults; Survivorship Dottie Shead, MS National Comprehensive Cancer Network
1:35 – 1:45 PM	Break
1:45 – 2:35 PM	Panel Discussion: Addressing Age-Specific Needs and Preferences throughout Adulthood Moderated by: Clifford Goodman, PhD The Lewin Group Darcie Green Latinas Contra Cancer Danielle S. Pardue, JD Caregiver and Patient Advocate Hyman Muss, MD, FASCO University of North Carolina Lineberger Comprehensive Cancer Center Efrat Dotan, MD Fox Chase Cancer Center
2:40 – 3:00 PM	Patient Advocacy Updates: Resources for the Cancer Community Catalyst State-by-State Advocacy Program Molly McDonnell Fight Colorectal Cancer digital sherpa™ Program Andrea Conners, MS Patient Empowerment Network
3:05 – 3:55 PM	Stakeholder Roundtable: Identifying Policy and Practice Solutions for Patients Across the Lifespan Moderated by: Clifford Goodman, PhD The Lewin Group Phylicia L. Woods, JD, MSW Cancer Support Community Alyssa Schatz, MSW National Comprehensive Cancer Network Aarati Didwania, MD, MSCI Robert H. Lurie Comprehensive Cancer Center of Northwestern University Maura Dickler, MD Eli Lilly and Company
3:55 – 4:00 PM	Wrap-up and Conclusions Gary J. Weyhmuller, MBA, SPHR National Comprehensive Cancer Network

*Topics subject to change.

SUPPORTERS

Supported by AbbVie, Adaptive, ADC Therapeutics, AmerisourceBergen, Apobiologix, Astellas, BeiGene, Ltd., bluebird bio, Dendreon Pharmaceuticals, Eisai Inc, EMD Serono, Exact Sciences, Exelixis, Foundation Medicine, Inc., GSK, Heron, Incyte Corporation, Janssen Oncology; Pharmaceutical Companies of Johnson & Johnson, Kite, a Gilead Company, MorphoSys US, Inc., Regeneron Pharmaceuticals, Inc., Seattle Genetics, Servier, Sun Pharma Oncology, Taiho, Verastem Oncology. Supported by AstraZeneca through its NCCN Corporate Council Membership. Sponsored by Boehringer Ingelheim Pharmaceuticals, Inc. This event is sponsored by Lilly Oncology. Supported by an independent educational grant from Merck & Co., Inc. This activity was made possible by Pharmacyclics, an AbbVie Company.

As of October 21, 2020.

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