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National Comprehensive Cancer Network

Interactive CME

Educational Events & Programs

Delivering Value for Patients Across the Oncology Ecosystem

SUMMIT DATE > Wednesday, December 11, 2019 > Register Now!

SUMMIT LOCATION > The National Press Club • Washington, DC



Register now! The NCCN will host a Patient Advocacy Summit: Delivering Value for Patients across the Oncology Ecosystem on December 11, 2019 in Washington, DC.

The gap between the understanding of value-based care from a patient perspective as compared to physicians and the health system is one of the biggest barriers to patient-centered care. This Patient Advocacy Summit will highlight the patient perspective related to delivering value-based and high-quality cancer care, implications associated with the term value, and the application of the value proposition within policymaking and clinical decision-making. The Summit will also provide opportunity to assess progress in the application of value across the health care ecosystem, utilization of tools, data collection efforts, and evaluation of continued challenges and next steps to promote patient-centered care.

Please check back often for additional updates regarding the summit. If you have any meeting content or agenda questions, please contact Terrell Johnson, MPA, Policy and Advocacy Fellow, U.S. and Global Development. For any media questions, please contact Rachel Darwin, Public Relations Manager.



Clifford Goodman Photo

Clifford Goodman, PhD
Senior Vice President
The Lewin Group



For the full agenda please click here.    

8:30 – 9:00 AM

Breakfast, Registration, and Patient Advocacy Resource Area

9:00 – 9:10 AM

Welcome and Introductions

Robert W. Carlson, MD
National Comprehensive Cancer Network

9:10 – 9:55 AM

Incorporating the Patient Voice into the Evidence

9:55 – 10:05 AM

Break and Patient Advocacy Resource Area

10:05 – 11:25 AM

Untangling Perspectives:
Identifying Patient-Centered Elements of Value

Moderated by:
Clifford Goodman, PhD
The Lewin Group

Ilana Feuchter, MA
National Ovarian Cancer Coalition

Elizabeth Franklin, LGSW, ACSW
Cancer Policy Institute, Cancer Support Community

Miranda Goff, LICSW
GO2 Foundation for Lung Cancer

Lillian Kreppel
HPV and Anal Cancer Foundation

Darryl Mitteldorf, LCSW
The National LGBT Cancer Project

Chuck Strand

Carla Tardiff
Family Reach

Ronit Yarden, PHD, MHSA
Colorectal Cancer Alliance

11:25 AM – 12:15 PM

Patient Advocacy Updates

Patient-Focused Research Center (Patient FoRCe)
Andrea E. Ferris, MBA

Resolving Financial Toxicity Issues
Brian Connell
The Leukemia & Lymphoma Society (LLS)

12:15 – 1:00 PM

Lunch and Patient Advocacy Resource Area

1:00 – 1:45 PM

Radiation Oncology Model, Oncology Care First Model, and Incorporating Value into Reimbursement

1:45 – 1:55 PM

Break and Patient Advocacy Resource Area

1:55 – 3:15 PM

Overcoming the Hurdles – Integrating the Patient Voice into the Care Continuum

Moderated by:
Clifford Goodman, PhD
The Lewin Group

Alan Balch, PhD
National Patient Advocate Foundation

Justin E. Bekelman, MD
Penn Center for Cancer Care Innovation, Abramson Cancer Center

Kimberly Bell, BSN, MBA
Services,Cleveland Clinic

Kristin L. Carman, PhD, MA
Patient-Centered Outcomes Research Institute (PCORI)

Anjelica Davis, MPPA
Fight Colorectal Cancer

Edward Kim, MD
NCI Central Institutional Review Board Chair, Adult CIRB - Early Phase Emphasis (EPE) Board

3:15 – 3:25 PM

Wrap-up and Conclusions                                                      

Gary Weyhmuller, MBA, SPHR
National Comprehensive Cancer Network

*Subject to change.


Supported by Adaptive Biotechnologies; AmerisourceBergen; an educational donation provided by Amgen; Apobiologix; Astellas; AstraZeneca through its NCCN Corporate Council Membership; Celgene Corporation; Coherus BioSciences, Inc.; Curium; Eisai Inc.; EMD Serono; Ferring Pharmaceuticals; Foundation Medicine, Inc.; Genentech; HELSINN; Heron; Incyte Corporation; Janssen Oncology, Pharmaceutical Companies of Johnson & Johnson; Kite, a Gilead Company; an independent educational grant from Merck & Co., Inc.; Novartis Oncology; Regeneron Pharmaceuticals Inc; Sanofi; Servier; Sirtex; Taiho Oncology; Takeda; TESARO, A GSK Company; and Verastem Oncology. Sponsored by Boehringer Ingelheim Pharmaceuticals, Inc.; Bristol-Myers Squibb; Dendreon Pharmaceuticals LLC. This activity was made possible by Pharmacyclics, an AbbVie Company; NCCN’s 2019 Patient Advocacy was funded in part by a sponsorship from Jazz Pharmaceuticals Inc.

As of September 10, 2019.

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