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National Comprehensive Cancer Network

Educational Events & Programs

2012 NCCN Patient Advocacy Summit: Patient Perspectives Across the Cancer Care Continuum

Click here for the summary.

Following the U.S. Supreme Court's ruling on the Patient Protection and Affordable Care Act (PPACA), many questions remain for providers, industry, and particularly patients. What do patients need to know about the effect this ruling will have on their health care options and how they receive care? Even before diagnosis, what trends in cancer care delivery models impact patients?  An increase in the adoption of clinical pathways, the advent of medical homes and accountable care organizations (ACOs) and other models all impact the delivery of care compared to the traditional care model. How will the Supreme Court ruling impact these trends?

Patients are also concerned as to whether the Supreme Court ruling will affect the care they receive across the treatment continuum from diagnosis to active treatment to survivorship. At the point of diagnosis, what questions should patients ask? What about molecular testing, psychosocial needs, and financial burden? What role does distress screening play in helping patients navigate their decision-making about care during and after treatment? What about the caregiver? How does the Supreme Court ruling impact current programs that affect all of these areas?

On Wednesday, November 28, 2012, NCCN convened the 2012 NCCN Patient Advocacy Summit: Patient Perspectives Across the Cancer Care Continuum at the National Press Club in Washington, DC. This invitation-only Summit was attended by patient advocates, providers, employers, and industry representatives within the oncology community. These key stakeholders will gather for a day-long session to discuss the current issues that most profoundly affect patient care. The Summit featured a series of panel discussions including representatives from each sector in attendance. A summary of the Summit is now available for those who could not attend.

Click here for the summary.