National Comprehensive Cancer Network Breast Cancer Database: Five Years in Operation and 10,000 Patients Enrolled
ROCKLEDGE, PA, October 9, 2002 – The National Comprehensive Cancer Network (NCCN) is pleased to announce the NCCN Oncology Outcomes Database has achieved an exciting milestone by completing five years in operation. The most mature portion of this database — the breast cancer database — now collects, analyzes, and reports data on more than 10,000 women with breast cancer, providing researchers with valuable information to improve patient care.
“The NCCN Oncology Outcomes Database has progressed further on a national basis than any other effort in medicine,” said William T. McGivney, PhD, Chief Executive Officer of NCCN. “It serves to implement guidelines about appropriate care through performance measurement and seeks to improve the quality, effectiveness, and efficiency of patient care on an ongoing basis.”
The NCCN Oncology Outcomes Database, established in 1997, is a rich resource repository of data and information for NCCN clinical and health services research investigators. To find new ways to improve patient care, the database evaluates the extent to which practice within NCCN member institutions is in concordance with the NCCN Clinical Practice Guidelines in Oncology. These guidelines are the recognized standard reference for appropriate practice in the field of oncology, and measures the outcomes (clinical and non-clinical) associated with such practice patterns. The database also tracks trends in drug utilization, including use within and beyond the FDA-approved label. A planned expansion of the database may offer future applications in genomics and proteomics.
“We will also be able to use this database to study outcomes of standard treatments in populations that are typically underrepresented in clinical trials, such as the elderly, and to track patterns of adoption of novel therapies,” said Jane Weeks, MD, MSc, Chair of NCCN’s Outcomes Committee. Dr. Weeks is also Associate Professor of Medicine at Dana-Farber Cancer Institute and Harvard Medical School and the Director of the Center for Outcomes and Policy Research at the Dana-Farber Cancer Institute.
NCCN first began tracking newly diagnosed women with breast cancer, who were treated at five of their member institutions in July 1997. An additional seven member institutions currently submit data. They are: City of Hope Cancer Center, Dana-Farber Cancer Institute, Fox Chase Cancer Center, H. Lee Moffitt Cancer Center and Research Institute at the University of South Florida, University of Texas M. D. Anderson Cancer Center, Memorial Sloan-Kettering Cancer Center, Arthur G. James Cancer Hospital & Richard J. Solove Research Institute at The Ohio State University, Roswell Park Cancer Institute, Stanford Hospital and Clinics, University of Michigan Comprehensive Cancer Center, UNMC Eppley Cancer Center at The Nebraska Medical Center, and University of Alabama at Birmingham Comprehensive Cancer Center. Duke Comprehensive Cancer Center recently joined as the thirteenth participating institution and will soon begin submitting data.
About the National Comprehensive Cancer Network
The National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 27 of the world's leading cancer centers, is dedicated to improving the quality and effectiveness of care provided to patients with cancer. Through the leadership and expertise of clinical professionals at NCCN Member Institutions, NCCN develops resources that present valuable information to the numerous stakeholders in the health care delivery system. As the arbiter of high-quality cancer care, NCCN promotes the importance of continuous quality improvement and recognizes the significance of creating clinical practice guidelines appropriate for use by patients, clinicians, and other health care decision-makers. The primary goal of all NCCN initiatives is to improve the quality, effectiveness, and efficiency of oncology practice so patients can live better lives. For more information, visit NCCN.org.
The NCCN Member Institutions are:
- Fred & Pamela Buffett Cancer Center
- Case Comprehensive Cancer Center/University Hospitals Seidman Cancer Center and Cleveland Clinic Taussig Cancer Institute
- City of Hope Comprehensive Cancer Center
- Dana-Farber/Brigham and Women's Cancer Center | Massachusetts General Hospital Cancer Center
- Duke Cancer Institute
- Fox Chase Cancer Center
- Huntsman Cancer Institute at the University of Utah
- Fred Hutchinson Cancer Research Center/Seattle Cancer Care Alliance
- The Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins
- Robert H. Lurie Comprehensive Cancer Center of Northwestern University
- Mayo Clinic Cancer Center
- Memorial Sloan Kettering Cancer Center
- Moffitt Cancer Center
- The Ohio State University Comprehensive Cancer Center - James Cancer Hospital and Solove Research Institute
- Roswell Park Cancer Institute
- Siteman Cancer Center at Barnes-Jewish Hospital and Washington University School of Medicine
- St. Jude Children's Research Hospital/The University of Tennessee Health Science Center
- Stanford Cancer Institute
- University of Alabama at Birmingham Comprehensive Cancer Center
- UC San Diego Moores Cancer Center
- UCSF Helen Diller Family Comprehensive Cancer Center
- University of Colorado Cancer Center
- University of Michigan Comprehensive Cancer Center
- The University of Texas MD Anderson Cancer Center
- University of Wisconsin Carbone Cancer Center
- Vanderbilt-Ingram Cancer Center
- Yale Cancer Center/Smilow Cancer Hospital